Post Marketing Reports May 2003

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Sat, 31 May 2003 15:08:23 -0400 by Guest, #2524

I have taken 500mg. Levaquin once a day for 4 days. I started feeling really wierd, like I was walking through a tunnel that was closing in on me. I have joint pain and really bad leg pain below the knee. I can't seem to concentrate. I'm really hot, then I get very cold. I've noticed bruising on my legs. Last night my heart was beating fast when I was in bed. I didn't take my pill today. My head feels a bit clearer but my legs still hurt. My sinus pain isn't as bad, but it's not worth it to feel like this. I won't be taking Levaquin again. I wasn't told about the side affects.

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Fri, 30 May 2003 10:11:20 -0400 by Navywife, #2509

Hello, As I wrote in April .I was given the drug Levaquin as a precaution. I learn since then that I have a tumor the size of a Kidney Bean in my breast, I go for a Ductogram on June 3.After that we will learn when they will remove the tumor.
I still have the side effect from the Levaquin.I have problems getting around and some one is always with me at this time.
this is really effecting me now.I used to be real active and now taking simple walks is very hard. My family and friends have been a wonderful .
You all are in my Prayers . God Bless

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Wed, 28 May 2003 13:56:16 -0400 by tronix7787, #2494

Wow, after reading the side effects at a web site and reading the stories at this forum I found out that I was experiencing the same side effects that I read here.

I was being treated for a bacteria infection in my lungs, so my doctor put me on the 500mg tablets for 10 days (he said this should kill off any bacteria left around in there), he also prescribed me the Advair Diskus for my bronchial tubes (took this twice a day (morning and night)).

Well, the side effects I noticed were the following:

bad taste in my mouth
loss of appetite
nauseua
loss of weight - 5lbs (which of course coincides with the loss of appetite, "don't eat much, lose weight" duh!)
sleeplessness
a couple of nights of sweating (didn't help that on those paticular nights it was humid)
anxiety and depression
loss of energy
Sunburned (mowed the yard one day with a tank top on, shouldn't have done that)

Today is my last day of the medicine, I feel the infection has subsided so we'll see. looking back, I think I should have taken this medication with food or something. I was told not to take this medication with any dairy products at least 2 hours before and 2 hours later from taking this medication. So I just went ahead and took the medication without food altogether.


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Wed, 28 May 2003 12:09:06 -0400 by Guest, #2492

My mom was prescribed Levaquin (500 mg) for a UTI. She experienced many of the side effects already mentioned - rashes with blisters on her cheeks, nausea, dizziness, feeling weak, muscle aches, back ache, low blood pressure, heart palpitations, sleeplessness.
We're just waiting for this nasty stuff to clear out of her body.
We will now check for adverse side effects before taking future medications.


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Wed, 28 May 2003 11:17:18 -0400 by Guest, #2491

I can't believe I am reading all these side effects. I only had one problem and I am not sure if it has anything to do with Levaquin. I was in the sun for a few hours and I burned my nose, arms and feet. I was the only one that had a problem with the sun that day. The sunburn was a little blistery so I thought it was some type of sun poisoning. I was OK in a few days. Other then that I had absolutely no side effects. I was on vacation in Italy at the time I took the medication so thankfully I was great. I only took 6 500mg tablets because my pharmacy short changed me one. Maybe it was a good thing.


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Tue, 27 May 2003 11:26:22 -0400 by Guest, #2479

I was prescribed Levaquin 500 mg for an infected wound on my elbow.
The infection did decrease but didn't actually clear up and the drug affected my intestines causing inflammation and slight bleeding.
The effect on my joints had me hobbling around like an old man, unable to walk properly and stairs were agony to climb.
Within 24 hours of finishing the course I felt much improved and today I feel better still.
Verdict; Erythromycin from now on.

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Tue, 27 May 2003 09:47:22 -0400 by Guest, #2477

Was given Levaquin on May 16. Within days was unable to walk due to severe joint and tendon pain. As of today I can walk but only assisted with a cane. Prior to this antibiotic I was an active 36 year old mother but now have been reduced to being the grandmother!

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Mon, 26 May 2003 20:04:48 -0400 by Guest, #2473

I was put on Levaquin for a infection in my uteris. The first hour I took it I felt like I had the flu and then as the days passed I was gassy, stomach ache, diarrhea, headache, confusion and started hearing voices. On day 4 I didn't take my meds and called my doctor. I still heard voices the next day and here it is 3 days later I'm still having stomach problems and diarrhea. No voices but the confusion is still lingering. I have never had a problem with any medication. Never a single side affect until Levaquin.

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Mon, 26 May 2003 12:13:07 -0400 by Guest, #2469

itchy hives on arms and legs very bad taste no food taste right to me can't stand to eat the things i use to love. I cry alot and sometimes started laughing all at once felt very bad like i was losing my mind. I couldn't remember. But the worst is this taste in my mouth and hieightened smell things smell bad to me.

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Mon, 26 May 2003 10:34:14 -0400 by Guest, #2466

I was prescribed Levaquin 750mg tablets, for an UTI for 7 days, wow I thought I was going crazy, nightmares, anxiety, depression, headaches, just felt really bad. I totally agree this drug should be taken off the market, it is dangerous. It affected me in so many ways. I will never take it again.

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Mon, 26 May 2003 00:05:17 -0400 by Guest, #2464

I was diagnosed with a uti and a kidney infection. I started taking the medicine known as Levaquin. I fell sick and nauseated and this is only the third day. I called the pharmacy and they told me it was a normal side effect! I feel tired all the time and can not seem to do my normal day to day things. I first thougt it was the infection now I believe it is the medication. This is the first time I have taken it and my doctor stated that it was a good antiobiotic. Well we will see.

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Sun, 25 May 2003 21:46:55 -0400 by Guest, #2463

Thank God I found this site also! I thought maybe I was crazy! I have been taking Levaquin only a few days. I take it with dinner thinking it would help ward off side effects-yeah right. I feel very "drugged" about an hour after I take it, like I can't wake up for anything, but then I wake up in the middle of the night and can't get back to sleep! I aslo have been very achy in the legs and back and thought something was really wrong. Thanks to all who posted their expeiences, at least I know I am not crazy and I will not be taking the last 2 doses! Oh, I also have that metal taste-yuck! Good Luck and Health to everyone!

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Sun, 25 May 2003 12:45:51 -0400 by Guest, #2457

I'm so relieved to find this site! I was starting to think I was overreacting. I'm taking 500mg of Levaquin for a bladder infection and have had the most bizarre dreams that is if I actually sleep, woke up yesterday with the oddest rash all along my chin (several very tiny water bisters & bumps) Besides the fact that it doesn't feel as though it's helping the infection as I'm experiencing just as much pain as I was on day one. I've never had a problem with side effects of any drug so to me this is bit scary. My own prescription No more Levaquin and a few words with my doctor.

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Sat, 24 May 2003 17:24:22 -0400 by Guest, #2448

I was told I had a sinus infection and given Levaquin-550mg and was to take them for ten days. The first day I became ill from a nausea attack. I took some tagament and got some relief. In the AM I woke up with hand pain. I took the pill again for the second time and about two hours later I began sufferring from nausea and chills..After reading the posts involving this drug I am getting off ASAP and hoping for the best. Thanks for taking the time and putting your individual incidents on line..

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Fri, 23 May 2003 17:56:12 -0400 by Guest, #2444

I was given Levaquin for a skin infection. I started taking it 3 weeks ago and I have a prescription to get a refill now. For the last 3 weeks I have been extremely tired, short of breath (so much so that I went to the emergency room a few days ago), aches in my shoulders and neck, sleeplessness, and pain in my joints and lower back. I didn't know what could be causing this as I am in good health otherwise. My doctor just sent me through a lot of blood test and xrays, trying to find out why I'm feeling so bad all the time. Since I have read the other testimonies, I know what is wrong. Thank you so much for sharing your information. I thought that I was truely sick. I will stop taking this medication immediately.

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Fri, 23 May 2003 15:56:04 -0400 by milwaukeejoe, #2443

I went to the doctor earlier this week with cold/flu like symptoms, and the doctor prescribed levaquin. I then began to feel very sore in my neck and shoulders, and became very nauseous. I decided to see what would happen if I skipped one dose a few nights back. The result was waking up and feeling great. So, just to be sure, I took a dose of Levaquin when I got to work this morning...and, during lunch, I ran to the bathroom and "got rid of lunch"...and the achiness has also returned. Needless to say, I will not be taking it any longer, and the remaining pills in the bottle will soon find the same path that my lunch did.

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Thu, 22 May 2003 21:40:44 -0400 by Guest, #2436

I was prescribed Levaquin for sever Sinusitus. Almost one hour after the 2nd dose I began experiencing tightness in my chest that became progressively worse. At the 1.5 hour mark on day 2 I was in anaphylactic shock and had to be taken to the ER in an ambulance.
I am 41 years old and have know of an allergy to both Penicillin (from age 2) and Quibron (from age 15). I was saved with multiple doses of benadryl, adrenaline and another med I cannot remember.

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Thu, 22 May 2003 17:07:43 -0400 by Guest, #2435

I was on Levaquin 2 years & Tequin 6 months for prostate infection. Off several months and on Levaquin 1 week late January 2003. Had doctor's treatment on a Hako Pain Machine (like giant TENS unit) and afterwards had tingling & walking-on-springs feeling in right foot. Later felt like I was vibrating in the crotch. Week later had tingling/vibrating all over my body. In legs/feet most of the time but other times all over. It can be terrifying. Local doctors no help so went to Mayo Clinic where diagnosed "small fiber neuropathy" and "diffuse vibratory sensation". I KNOW this is result of the fluoroquinolones. Drugs I have been on either don't work or give side effects too much to tolerate. Doctors I've seen feel it "may" be result of the antibiotics. I am trying low carbohydrate diet and absolutely no sugar as that triggers the vibrating sensation bigtime. So far I have not found anyone with quite similar symptoms to mine.

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Wed, 21 May 2003 15:35:30 -0400 by Guest, #2421

It has been 3 months since I took levaquin. I took it after my TURP. I had anxiety, spaced out feeling, shortness of breath, vision problems, dizziness, irratibility. Also, I noticed in the recovery room that after taking it my lungs hurt with the least bit of exertion. And now, after 3 months, my lungs still hurt with very little exertion. I feel there has been permanent damage to my lungs. Why is levaquin being used when there are other drugs, that have passed the test of time, available.

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Wed, 21 May 2003 10:55:51 -0400 by Guest, #2420

I have been sick for two months now after taking Levaquin. All of my tests have come back normal but I feel hopeless. I do feel a bit better but I am worried that I will never be the same. I am interested in taking legal action. Would anyone be interested? ablondon@aol.com

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Wed, 21 May 2003 10:48:46 -0400 by brutus, #2417

I was relieved to see other peoples side effects. I thought I was just losing my mind. Since I started on levaquin, 1st time about a month ago, and currently finishing a script, I have been experiencing severe pain in all my joints upon awakening in the morning. I live on the second floor and to get out I feel and look like Frankenstein getting down the stairs. My achilles, knees, hips, shoulders and neck are most affected. The pain does seem to subside somewhat during the day, but believe me I am still in a state of moderate discomfort. I called my MD and he said he had never heard of such a thing and to finish the RX. If I am still uncomfortable in 2 weeks he wants me to call him so he can do a blood test to check for rheumatoid arthritis. Again thanx to all who have taken the time to write out their troubles related to levaquin therapy, now I don't feel alone or crazy. best luck and quick healing to all affected by this antibiotic.

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Wed, 21 May 2003 01:05:29 -0400 by alicia, #2411

I'm not sure if this has anything to do with Levaquin, but I started taking it a week ago for a bladder infection. And I have not been able to sleep, and I've been having weird dreams. Also, I was due for my period a coupld of days ago and have not yet had it. Not only that, but my bladder infection has not gone away and I am still in pain.

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Tue, 20 May 2003 18:35:57 -0400 by Guest, #2409

Took first dose of levaquin on Sunday. By monday extremely anxious with chest pain. Sunday evening chest pain continued monday with a anxious feeling. Sharp pain and ache donwn the arm on occasion. Tookn tylenol pm to help sleep. Took another dose this AM and have extreme anxiety and chest pain. I will not take another pill after reading this website information. Thank you everyone!

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Tue, 20 May 2003 00:48:28 -0400 by Guest, #2399

Ok, here goes! I've waited to enter this until I left the levaquin nightmare. This drug made my life miserable for three months. Iam a very healthy active person even ran a marathon in Novemember. I was prescribed levaquin for a lung infection in February. Was prescribed 500 mg for a week. When I started taking the drug I had very bad neck spasms but just assummed the drug was ridding me of infection. The full effects of the drug became more evident towards the end of treatment.
I was extremely tired, sleepy, very weak muscles hardly able to push the gas peddle without feeling weak. The thought of walking to the mail box was overwhelming. I had internal chills and shivering, muscle aches, muscle spasms and muscle twitching and just felt dreadful. This went on for about three months. I am still not myself but I think I am on the road to recovery. I was told by my doctor that I had neurotoxicity to levaquin. I cannot tell you how much money and agony this has caused me. I was also referred to a rheumatologist, and a neurologist to rule out other diseases.I went to a naturopath, my obgyn, my dermatologist (
weird skin things) I worried like crazy that I would never be the same all because of an antibiotic. This drug should be taken off the market immediately. Good luck to all of you who are suffering. I have things that seemed to help me but I think time is the only cure.

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Mon, 19 May 2003 15:22:29 -0400 by Guest, #2393

I have been on Levaquin for a UTI (infection of prostate) for over 2 months, and until I found this website I thought I had early stage cancer. I am a very active person, who now has tendonitis so bad in my shoulders, elbows and hips that I can barely move. I also have flu like symptoms and have problems sleeping. I have just called my urologist and now have an appointment.

Hopefully I can get off this drug and return to a normal life. Thank you all for your comments.

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Mon, 19 May 2003 13:17:24 -0400 by louie, #2391

Oh my gosh-thank god I found this website-I started taking this medication last Thursday for a UTI and I thought there was something really wrong with me-headaches, tiredness, feeling generally spaced out, vision problems, not sleeping-I felt good this AM and then took my dose and same exact thing-I'm not taking the rest of my doses and just called my doctor to complain-this is a terrible anitibiotic-get it off the market-NOW

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Mon, 19 May 2003 12:19:37 -0400 by Guest, #2388

My husband had a 102 degree fever after taking Zithromax for 5 days. We went to an immediate care facility where the young medic sent us to the emergency room for a chest X-ray. He prescribed this awful drug. The side affects include the nasty metal taste, extreme exhaustion, trembling, nightmares, cold sweats and now, on day 10, thrush with swollen tongue and feeling just plain horrible. It is outrageous that drug companies are allowed to promote their new products without regard to the consequences. My husband has other really significant health problems and 1 year ago finished radiation therapy. He did not need this exposure to a toxic drug! Plus it has not cleared up his respiratory infection. If his symptoms from this drug remain long term, I will certainly persue this legally.

I agree with the statement that another poster listed below: "Pharmaceutical companies are out of control, pushing new and expensive medications on doctors and then onto unsuspecting patients."

A curse on the drug companies!

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Mon, 19 May 2003 12:09:29 -0400 by Guest, #2387

I experienced drowziness and dizziness. I also had hot flashes and bouts of anger. I am a mother of a 4-1/2 month old baby and have never felt impatient towards him, but felt that way taking this stupid drug. I lost my car key, put out clothes for work the night before and forgot I did that, put my son's bottles in the freezer....and the list goes on. I was at the end stages of a sinus infection. All I needed was some freaking amoxicillin.

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Mon, 19 May 2003 11:18:28 -0400 by Guest, #2384

WHAT THE HELL?! Whatever happened to Amoxicillan? A simple UTI and I'm a complete freakazoid. Nightmares, short of breath - sighing all the time. I thought I was just getting stressed. Hand tremors. Muscle behind my knee just plain hurt but I thought I pulled something working out. I took it for 9 out of the 14 days prescribed but when I had a complete emotional meltdown over something stupid - I decided to stop. I'm still short of breath and my lungs hurt and it feels like I have a lump in my throat. More than anything I'm pissed.

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Sun, 18 May 2003 16:58:56 -0400 by Guest, #2375

The first two - three days on Levaquin, I experienced nausea and a spaced out brain.

Days four - ten (last day of medicine), I turned into the mom on Requeim for a Dream - not really that extreme but comparable. I felt like I was on speed, not an antiobiotic. I would lay in bed until about 3am, nightly. I kept thinking the next night I would be exhausted and fall asleep quickly since I had little to no sleep the prior nights, but this was never the case. I started getting worried daily, and randomly thought maybe I should see a counselor but did not attribute this to levaquin. I went running one days as normal. Usually I can run one-two miles without stopping. While on Levaquin I turned into a super runner, running 3-4 miles without stopping that is while getting no rest at night. I found this to be strange. I would have discontinued the medicine, but I have had reoccurning bouts of strep due to stopping my antiobiotics early; i didn't want a similar effect so I stuck with the drug.

Now that I am off the drug, I feel sleepy. i have had some random dreams, but that is fairly normal. After reading everyone's postings, I am a little concerned if more madness is yet to come. I would recommend anyone currently on the medicine to change drugs. I am still confused as to how an antiobiotic is able to have so many terrible side effects.

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Sun, 18 May 2003 16:21:27 -0400 by Guest, #2374

very bad bladder spasms. blurry vision,dry itchy eyes, fatique,
bad dreams, bad taste in mouth,just generally really feeling bad an not myself......i will NEVER take this med again!!

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Sun, 18 May 2003 13:05:47 -0400 by Guest, #2371

May 18, 2003

I was given Levaquin for Pneumonia at the local ER. I have taken it four days and will stop today. On the third day, the skin on my upper body became very sore to the touch, my hands felt swollen and I had nonspecific upper body pain. On day four, my hands began hurt in the joints. I've also had really weird dreams, fatigue, and reduced ability to focus. I will ask my GP for some other type of antibiotic. I'm very healthy and have not taken an antibiotic in years.

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Sat, 17 May 2003 12:27:43 -0400 by Guest, #2357

After 8 days of Leviquin 500 mg for a Sinus Infection, my side effects were: throat swelling, flushed face, headaches, nausea. two days to go -- will stop taking this drug.

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Fri, 16 May 2003 23:18:12 -0400 by Guest, #2354

I have taken three 500mg doses and have experienced a rash(Like Poison Ivy) on my face as a result. I am taking Toporol XL100mg and Lipitor 20mg also. However, these have never caused any problems. The Leviquin was for other infection Sinus/Kidney related. The infection seems much better but I will have to change to another antibiotic. I seem to be one of very few people that break out in rash.

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Fri, 16 May 2003 16:44:21 -0400 by Guest, #2352

I was prescribed Levaquin for a sinus infection, immediately upon taking 2 pills twice per day, for 15 days, symptoms included: muscle aches, uncomfortable fatigue, tingling all over, vomiting in the morning, loose stools, and weight loss. Finally went to the emergency room, but it was not until 3 months later (symptoms persisted after stopping Levaquin) that I was diagnosed with Mono (Jan. 2003), so I am assuming the sinus problems was brought on by EPV. However, I am still not sure if the extreme muscle aches were from the virus or the antibiotics. But, I will not take them again.

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Fri, 16 May 2003 13:29:16 -0400 by Guest, #2349

Life just seems to be getting more complicated from Levaquin. I have been off of it for two weeks (since my ER visit). The muscle aches were subsiding but after only moderate exercise they flare up again. Then I came down with a case of "thrush" in my mouth and throat and now have an infection in my chest. In the time since I began the levaquin I have only had three or four days when I felt somewhat "normal". And I only took it for five days! I am convinced that this drug has crossed some wires in my system and I am struggeling to find out how to get better. I have a good doctor but she is busy just treating the new symptoms that keep popping up. I am (or have been) a very healthy active 53 year old woman. I live near the canyons and mountains and spend much of my time doing wilderness hiking. Now I can barely hike up the driveway. I am also interested if any action is being pursued about this drug. If so I would like to know. schauf@randomc.com

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Fri, 16 May 2003 12:46:41 -0400 by Guest, #2347

I was put on levaquin 5oomg for three weeks to treat epidimitis. After 10 days my joints in my shoulder and rotator cups were painfully tight. Since I was a regular visitor to the gym I thought perhaps I was sore due to my workouts. But following my discontinued use, my joint pain has ceded. However, I have been dealing with abdominal pain in my large intestine area. The pain has been a dilemma for me for over six month’s now- I am looking to the day I can return back to normal. The greatest frustration is that doctor’s have not been able to id the cause of my abdominal pain. My only way to deal with the pain is to take 3 garlic capsules twice a day.

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Fri, 16 May 2003 11:54:15 -0400 by Guest, #2346

On April 15 I was prescribed Levaquin for a UTI infection following the insertion of a stent to treat a kidney stone. For the previous six months, I'd been doing daily a workout for my knees, which I'd discontinued for ten days because the stent had become so uncomfortable. On April 17, two days after I started taking the Levaquin, I resumed my workout, only at a diminished level of intensity to take into accout the ten-day hiatus from exercising. The following day my knees hurt so badly I could barely walk. I began experiencing intense depression, anxiety, and sleeplessness (I've always been a world-class sleeper, so this genuinely freaked me out), and incredible fatigue. I took the Levaquin, I believe, for a week or so. Since that time, I've experienced joint pains in my shoulders, ankles, and hands, as well as pain in the sternum and in my neck and lower back. I've had similar pains in the past so I don't know if these can be attributed to the Levaquin, but I hadn't had them in many months. Three weeks after discontinuing the Levaquin I'm feeling somewhat better -- I've been able to sleep relatively well, feel less depressed, and much less fatigued (though it comes over me once in a while).

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Fri, 16 May 2003 10:26:52 -0400 by Guest, #2344

My mother, age 73, has always been in excellent health. She was prescribed Levaquin for an upper respiratory infection. She immediately became nauseous and slept all day. She is the type of person who barely gets nauseous with stomach flu. Within 3 days of taking the Levaquin she began to have tremors. She can no longer write legibly. Her entire upper body and voice quiver constantly. Her legs feel week and quiver "from the inside" and she has no energy. She took the Levaquin for only 5 days. She stopped over a month ago and still has tremors and lack of energy. I don't believe people are being warned of the possible side effects of this drug.

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Fri, 16 May 2003 03:28:34 -0400 by Guest, #2341

took levaquin almost a year ago for 27 days; have had severe knee and foot pain and stiffness ever since; do not take this drug

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Thu, 15 May 2003 21:01:01 -0400 by Guest, #2334

Took a 10 day course of levaquin 1 year ago- ok. Took a 10 day cours for acute bronchitis, and needed another course when symptoms reappeared 2 days later. Second day into second course developed tiny hives head to toe. Doctor prescribed antihistamine treatment. 10 days later still itching and breaking out with tiny hives that scab over and itch like crazy. Will this ever end? This bites!

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Thu, 15 May 2003 21:00:28 -0400 by Guest, #2333

Began Levaquin for prostatitis, a result of unknown infection in the past, that has reoccured roughly once a year for about 7.5 yrs. Results are excellent, and healed a tooth that had seemed destined to be removed, and this after just 5 days. However, I have had difficult dreams, pain and burning in bladder area, and lower back, prespiration and hot/cold feelings. I am a 63 yr old male, and in the past was given a regimen of Cipro, which produced no effects other than cure,
but I took it for a month to produce the cure. I am to take three more doses, and will do them, but hesitate to say I would do it in the future, and will look for yet another regimen if needed. By the way, my health is excellent,(inc. prostate) other than this damn curse..and also, the Levaquin was free samples.....

Good luck to you all.

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Thu, 15 May 2003 20:59:58 -0400 by Guest, #2332

Took a 10 day course of levaquin 1 year ago- ok. Took a 10 day cours for acute bronchitis, and needed another course when symptoms reappeared 2 days later. Second day into second course developed tiny hives head to toe. Doctor prescribed antihistamine treatment. 10 days later still itching and breaking out with tiny hives that scab over and itch like crazy. Will this ever end? This bites!

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Wed, 14 May 2003 23:22:23 -0400 by Guest, #2314

I have itching all over head to toe...was prescribed this drug for cellulitus. Have trouble getting to sleep, once a sleep have the most vivid nightmares...have never had nightmares before. The dreams seem so real, I also have metallic taste in mouth.

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Wed, 14 May 2003 09:49:00 -0400 by Guest, #2309

Was on levaquin 10 days for diverticulitis. Had vertigo,
joint & muscle pain, drowsiness & noted pieces of what appeared to be tissue paper-like membrane in my stool. Last dose was 3 days ago, joint & muscle pain still severe, still have the bowel sideceffect. The vertigo has disappeared.

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Wed, 14 May 2003 06:59:05 -0400 by Guest, #2308

After taking the last of my 14 doses of Levaquin (500 mg) 5 days ago, I still feel intense waves of dizziness and nausea. The headaches come and go, and the full-body itching is beginning to fade. Notice I say "beginning."

During my 14-day course of Levaquin, I also experienced an inability to concentrate, and a sensitivity to both light and sound. Thankfully, my ability to sleep has come back.

I reccommend that anyone prescribed with this drug consult their physician as to whether there is a viable alternative, because (although not everyone experiences them), the side effects can be long-lasting and debilitating at times.

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Tue, 13 May 2003 20:19:36 -0400 by Guest, #2302

I took Levaquin for five days in early April as a preventative after minor surgery. I had been prescribed a 7 day course, but stopped after I suspected the side effects were from the Levaquin. It all began with a low grade fever, then extreme anxiety, mental confusion, depression, intestinal gas, loss of appetite, weakness, sweating, heart palpitations, and scariest of all, central nervous system disturbances, strange currents in my left arm and leg, twitches, shaking, jitters and vision problems. I was the most scared I have ever been in my life. I went to my GP and he told me it was "self-perpetuated" because the half life of the drug had passed and the effects should have subsided quickly. (But he was surprised to see my liver enzymes were elevated even after the drug was supposed to have left my body...hmmm.) Well, I was in pure hell for almost three weeks after stopping the drug, desperately wanting to get better, but it had a grip on me that only someone who has experienced it can understand.
I went to a psychiatrist and a neurologist. Both told me it could have something to do with the GABA receptors in the brain. My biggest fear was that it had caused permanent harm. Well, I'm happy to report that now a month and a half later, I feel like myself again. It was a gradual improvement, but it finally subsided at the end of the third week.
I just wanted to share my story in case there is someone who is as worried as I was a month ago, seeking comfort in this forum. (There is not much comfort, I know.) But although everyone is different and the side-effects run the gamut, at least it seems to go away in time for most people. Of course I'm not completely sure that there was no permanent damage...but I feel pretty confident that my body got rid of this poison. My liver enzymes went back to normal as well.
I feel each of us must report everything Levaquin has done to us to Medwatch (the FDA), to our doctors (although they will probably doubt you), and to anyone you care about in case they are ever given this over-prescribed time-bomb. Levaquin is a life saving drug, but it should only be prescribed for people in dire need. It is being marketed to doctors as a preventative and for minor infections, and that is where the real problem is. Ortho-McNeil knows more than they tell the doctors, I'm convinced. There are just too many of us. Imagine all the people who never figure out that the Levaquin caused thier ailments! Or they believe thier doctors who say "It's all in your head."
I hope my story has been of help...and to all who suffer...hang in there. It takes time, but chances are it WILL go away.

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Mon, 12 May 2003 18:22:47 -0400 by Guest, #2271

I received a 14 day course of Levaquin to treat a severe Pelvic Inflammatory Disease as a result of a forgotten Tampon on the 14th April.
I am 48 not had to take any form of medication for over 10 years, I go to the gym at least 3 times a week, never suffered from depression. The past 2 weeks I have suffered Anxiety, Mental Confusion, eyesight deterioration, and recently bouts of extreme depression. Thought I would investigate in case it was a side effect of the Levaquin, I am now worried if this will get worse...........It did knock out the infection however but at what cost and could I have been given something else???

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Mon, 12 May 2003 17:37:06 -0400 by Guest, #2270

At the beginning I had no effects. But then by the seventh, I had bad nausea, headaches, joint pain in both of my knee caps, sleeping problems, weakness, sweats, bad dreams, fever, severe stomach cramping.

In my opinion, this drug should be completely taken off the market. It not only affects you, but the ones you love too.

If I don't feel better once I stop the medication, I will seek legal counsel.

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Mon, 12 May 2003 15:13:11 -0400 by Guest, #2268

I was perscribed Levaquin 500mg at the ER for what was thought to be an infection caued by a cortisone shot. Had a 101.5 fever.
After the second dose, I experienced swelling and tendonitis in both feet. Consulted my family phisician and stopped the Levaquin.
All swelling and tendon symptoms disappeared with 24 hours.


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Sun, 11 May 2003 23:38:11 -0400 by Guest, #2258

Was prescribed Levaquin 500mg by an ER Doctor that could not definatively find the cause of a high fever (103.5). After 3 days on the pills I had to investigate the numerous side effects that I thought I was experiencing. This web site confirmed that they were indeed side effects. They included, insomnia, anxietyconfusion, loss of focusconcentration, depressionmood swings, intestinal gas, loss of appetite, weakness, sweating, and labored breathing. I am glad I stopped taking the pill before full 10 days. It's been 4 days since the last dose, and the side effects have finally passed. Good luck to all taking this evil drug.

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Sun, 11 May 2003 21:09:04 -0400 by Guest, #2257

I was prescribed Levaquin 500 mg. once a day for 14 days to treat sinusitus, etc. My joint pain and swelling is so severe I cannot function in a normal manner. I am an extremely active woman very much into physical activity and exercise. After the slightest exertion, I am crippled with pain in my joints and stiffness for days. The exhaustion is debilitating. I have been off the medication for a week. I WAS NOT TOLD TO THESE POTENTIAL SIDE EFFECTS. I WOULD CAUTION ANYONE BEFORE TAKING THIS DRUG.

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Sun, 11 May 2003 20:07:16 -0400 by Guest, #2255

Background on my self:

1- Never had an alcoholic drink in my life (religious reasons)

2- I suffer from Crohn's disease (bowel disease)

3- I smoke cigarettes (a pack a day)

I've been taking Levaquin for the past 21 days days (500 mg/day)

Side effects: minor pain in right rist joint, minor headache

My doctor prescribed the pain killer Oxicodone (5mg) to be taken when needed every four hours.

I take my Levaquin in the morning with a cracker or some white bread along with the oxicodone pill.

Conclusion: I'm almost side-effect free!!

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Sun, 11 May 2003 08:40:01 -0400 by Guest, #2251

Hello Everyone, sorry to here that so many of us have had such a bad reaction to this medication. Well, I'm on day 4 of a 14 day supply of Levaquin. I noticed on day 3 of taking this medication I have notice a painless swollen node behind my left ear and this morning I felt what could be another appearing almost vertically from the first one. I have read through the side affects over and over again, and the pharmacist script never mentioned anything about swollen lymph glands. My question is, has any had a problem with painless swollen lymph nodes if so, where did you find them?

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Sun, 11 May 2003 05:52:24 -0400 by Guest, #2250

It is hard to decide what is really happening.
Cold autoimmune hemolytic anaemia, ITP
IgG and IgM attack normal blood cells.
Liver and Spleen Hyperactivity due to damaged blood cells.
Combination of Pneumovirus, exposure to extreme cold, and Fluoroquinalone drug used for treatment.

Suspect Hospital cold drinks and Ice cream continue to exacberate.

Reaction with Ciprofloxacin treatment for ear infection. Nov 2001. First episode.
Jan 2002 repeat after 1 useage of CiPro in combination with Cortisteroid. landed in hospital cramps and CAIHA.

recovered and went north. -35C and ear drops. Clotting and CAIHA. counts down. Severe pulmonary emolism. Sever -Cramping in legs hands and chest.

This was my first experience with fluroquinalone drugs and doctor prescribed Levaquin three times afterwards have put me in hospital with repeat symptoms. Hemoglobulin counts 60-64.

Suspect that in certain persons Quinolone drugs react on autoimmune system to produce antigens against self.

This is probably an autoimmune condition that is pre-exisiting and in combination with the drug the autoimmune system overreacts.





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Fri, 9 May 2003 17:40:32 -0400 by Guest, #2235

I took Levaquin from May 1, 02 until July 19,02 for an infected hip prothesis. I developed severe pain in my fingers, knuckles, hands, shoulders and TMJ joints. The Dr. said it would go away. As of May 9, 03 I still have the problem and am seeing a rheumatologist. He, through blood test said I have ANCA Positive vasculitis which is caused from taking Levaquin. The course of treatment is steroids. I took steroids and the raised havoic with me, and only made matters worse. His next course of action is massive doses of steroids. IV therapy for three days followed by 100, yes 100 days of taking 15 mg prednisone daily. He treated his only other patient with ANCA Positive and it did not work.
I'm currently waiting to get in to Mayo Clinic, Cleveland Clinic or University of Michigan Medical Center.
My question to anyone out here is if there is a class action law suit going against the manufacturer of Levaquin.
jcoleman@shianet.org













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Fri, 9 May 2003 13:39:22 -0400 by esb192001, #2231

I am a 21 year old female who ended up in the hospital for a kidney infection. The Dr. there prescribed me Levaquin which I have bben taking for almost five days now. I thought I was CRAZY, untill I found this site. I have had the worst headache and neck pain since I have started this drug. Not to mention it feels like my sight is al messed up. Lights seem brighter, which only makes me more dizzy, but I would have to say the worst would be the fact that I can not sleep. I can lay there forever and be dead tired and still not fall asleep. But when I do fall asleep finally there are the weird dreams. I can't even explain them. My family thinks I am paranoid and that I worry to much, but after reading this I know that it is the levaquin. I have no health insurance and the pills were samples that cost me nothing so I am afraid if I complain to the doctor that he will prescribe me something I can't pay for. I thought that the kidney infection was bad but it is nothing compared to the way I feel now.

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Thu, 8 May 2003 19:23:16 -0400 by , #2219

I had bronchtis and took 10 days of bactrim, since it didn't get rid of all the infection my doc put me on eight days of Levaquin. Before I took Levaquin and even though I had bronchtis, I worked out for one hour each day. After two doses of Levaquin, I am lucky to get out of bed each morning but after getting my kids to school, I back in bed. I am so tired. My feet are cold. I take vitamins and iron. After reading this site, I am not taking the last two Levaquin tabs. Good luch and God bless.

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Thu, 8 May 2003 14:11:23 -0400 by Guest, #2211

This is a nasty drug. I took it for 8 days for pneumonia and felt worse each day - no energy, nausea, no appetite, and depression. After I stopped taking it I felt better immediately. This drug should never be prescribed!

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Thu, 8 May 2003 00:13:53 -0400 by Navywife, #2201

Hello, Wanted to give an update. Had an Emergency appointment with my Doctor today. My Belly got huge! I look like I am 7 months pregnant. I need to get a Full Belly Sonogram done now. That will not get done till next week. I was told they are book till then.
The bad news I got today is.Our Allergy Clinic refuse me. They told my Doctor since I am allergic to almost everything.There is nothing they can do for me. And if I get sick not to give me anything.
Take Care And God Bless

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Wed, 7 May 2003 15:29:24 -0400 by Guest, #2193

I'm a 58 year old male in good health. Was riding a bike 5 to 6 miles each day and no problems or arthritis. In January I got a Urinary tract infection and was put on a Sulfa drug which gave me a rash so I was switched to Levaquin.

Started taking Levaquin 24 Feb.
Started having lower back pain and heat in two days.
28 Feb went to Physical therapist to see if she could do something for the pain and the heat in lower back. She could not find anything wrong and sent me back to my Doctor. He checked me out and said the infection was gone and not to lift anything over 10 lbs.

1 Mar. pain almost unbearable.
2 Mar. by evening could not control my back and was laying on the floor.
3 Mar called doctor and told him I couldn't get out of bed and he called in a prescription for a muscle relaxant and recommended heat and ice. Called my therapist and she recommended ice 20 min every hour and to come in as soon as I could get out of bed.

5 Mar finally able to get out of bed and went to therapy.
6 Mar took last Levaquin.

Continued therapy and things seemed to be getting better but kept injuring joints when I used them too much.
Since then it has been all downhill. Symptoms include aching in all joints. Unable to sit or lay on my back. Anytime anything touches my back it gets hot. One Rib has gone out of place twice. My back continues to go out of control. Unable to sleep due to the pain. Knees weak. Sometimes have hot spots on legs and arms. Doctor has taken blood tests and had Xrays thinking I had Arthritis which isn't the case. Any physical exertion compounds problems. Had to quit therapy as it causes more pain. Doctor has me on muscle relaxants, Vioxx and pain killers. He doesn't believe this ailment was caused by Levaquin or if it was the effects would already be gone.

It's over two months since I took the drug and no relief. Seems to get worse every day. Tried to go to a Neurologist and he needed me to have a MRI and so far the insurance company has denied it.

Tried going to a Chiropractor but any manipulations cause more pain.

If anybody has suggestion on how to get over this and back to a normal life please let me know.


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Wed, 7 May 2003 11:25:17 -0400 by Guest, #2188

After taking it for 7 days, I have had two sleepless nights, a general level of anxiety much of the time, some diarrhea, and some loss of appetite. But it has killed off a sinus infection that I have been struggling with for 2 years.

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Wed, 7 May 2003 08:16:48 -0400 by Guest, #2183

started out by going to th er on fri with a very high fever.they did some testing said i had a resptory infection set me up with a iv drip of Levaquin.got home that night and every thing started first the metal tast in my mouth then the worst case of the runs i ever had became totaly spaced out all weekend every thing i would eat drink or or smell would be that sicking metal tast in my mouth. on monday called the doctor stop taking the Lavaquin 500 mill pill they told to take for seven days . been off it for 3 days now stiil got that tast of metal but not as bad can hardly stand for more than 10 min i hope this gets better as time gos on i need to get back to work this is the worst med i have ever been on the part not being able to stand on my own 2 feet scars me

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Tue, 6 May 2003 15:17:54 -0400 by Guest, #2175

I have taken Levaquin over the past three years for stubborn and recurring sinus infections. Although I was seriously ill with the infections (fever of 104) I have finally refused to take the antiobiotic despite the fact that it is quite effective in the treatment of the infection. The side effects are simply too debilitating. Each time I was taking the Levaquin, I suffered from tinitis, sleeplessness, extreme photophobia, and mild digestive upset. But it was the severe arthritis-like symptoms that crippled me for well over a month after discontinuing the antibiotic that finally forced me to seek other antibiotic therapy. The joint related symptoms were so serious, in fact, that I was misdiagnosed as having rheumatoid arthritis after my first use of Levaquin. I was prescribed plaquinil for the arthritis, but fortunately my pharmacist informed me of the possible side-effects of Levaquin and I never started arthritis therapy. Although the joint-related side effects diminish in time, I do not feel that I have ever fully regained my flexability or range of motion, nor have I been completely pain-free since using Levaquin.

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Mon, 5 May 2003 00:29:52 -0400 by Guest, #2155

I was put on Levaquin (500mg / day) for chronic prostititis. My doctor prescribed a 60 day supply / treatment. I am currently on day 56. A couple of times during the treatment, I noticed some minor, abnormal muscle pains in shoulders / upper arms / legs, with general weakness. When I informed the doctor, his nurse said that that is one of the side effects and it will go away after I am off the medication. Yesterday I spent all morning doing yardwork. Perhaps sun sensitivity or allergies have added to the side effects, but I have been in more pain today then ever. I just came across this website today. I hope to report back soon that the side effects do indeed lessen over time. But reading some of these posts concern me. Stay tuned.

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Sun, 4 May 2003 19:05:50 -0400 by Guest, #2152

I started taking Levaquin for 14 days for a culture they did of my nose which indicated a bacteria. After taking for eight days, I began shuffling my feet and could hardly walk. At work I walked very slow, which is not normal for me and I could not bend down. My kees and ankles hurt so bad I could hardly stand it. I asked the nurse about it when I went in for my allergy shot, as I thought it was the shot. She said no it was not the shot but the antiobiotic. I ignored the fact as I had never heard of that happening and the side effects weren't listed from the pharmacy receipt. I took Ascription and Ultram at the same time it hurt so bad.
I still have infection and called the Dr's office again and they gave me the same thing. When I went to pick it up, I asked to talk to the pharmacist and told him about the side effects I experience and he said they don't give the medication to anyone under 18 years of age because of tendon and ligament damage. He told me to take it easy while I am on it. I've decided I'm not taking it. I'll have to risk my infection.

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Sun, 4 May 2003 09:06:07 -0400 by Guest, #2145

I've been on Levaquin for 4 days. I feel rotten! My mouth feels like I've eaten a hunk of metal, I'm so irratable and having Anxiety attacks. Isn't there any other options for Prostritis instead of a body shattering medication? I HATE this stuff.

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Sat, 3 May 2003 20:19:07 -0400 by Guest, #2138

I have excruciating pain in my left shoulder while taking Levaquin; a pain that becomes more pronounced when you lay down. For those of you who have experienced it, you know the feeling.

One thing that has helped me is Theraflu- NOT Ibuprofen- as many of us might think.



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Sat, 3 May 2003 18:40:08 -0400 by Guest, #2137

What an awful day! I went to ER thinking I was having a heart attack because of the severe pain in my chest, neck and expecially right arm. After all the testing they sent me home saying it "might" be a reaction to the Levaquin I have been taking for five days (for a colon infection). I was convinced it was the levaquin since I am a very healthy 50 year old woman, hiker, runner ,ect and I have not taken an anitbiotic for over five years (for a tooth problem). Now all of a sudden I have this horrible aching and pain in my upper body. Needless to say, I am getting off the drug and will pursue this with my doctor on Monday. After reading all of this, I am hoping that the symptoms will leave and not cause permanent damage. I willalso contact the FDC and drug company. Thank all of you for writing this or I would have not known what happened to me.

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Sat, 3 May 2003 16:24:56 -0400 by Navywife, #2135

Hello. I want to warn everyone who takes Levaquin to be extra careful.( This is my third post here. )After taking just 8 Doses of Levaquin last month. I now am under Doctor care for the side effects. I am on Vicodin for pain .(which does not help much) I have to get blood work done every week ,Sometimes twice a week. My Doctor is talking about putting me in the Hospital if things do not get better. I will need IV Fluid for dehydration, I now need to see an ortho doctor for my hips , legs, and feet and shoulder. I used to walk all the time. and now just riding to the store ,I come home and take a nap. I can not go anywhere by myself. My mood swings are horrible and I get depressed so much easier now. I wish everyone luck . You all are in my prayers.

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Sat, 3 May 2003 15:36:36 -0400 by Guest, #2134

I took two series of Zithromax for a bronchial infection. It seemed to do nothing, so I asked the doctor for Levaquin which was recommended by someone else.
I have only taken it for two days. I have had a metallic taste in my mouth. After seeing this site, I won't take anymore. I'd rather cough than have some of the side effects I've read here.

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Fri, 2 May 2003 19:56:30 -0400 by Guest, #2124

My 86 year old mother was given levaquin for a respiratory infection and immediately began to exhibit the following side effects: diarrhea, confusion, sleeplessness, hallucinations, weakness (cannot stand up or walk at this time). We discontinued the meds today (after we got her home from the hospital with her primary care physician's consent).


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Fri, 2 May 2003 15:35:15 -0400 by Guest, #2121

I have been taking Levaquin since Tuesday for a UTI and I have been having the WORST stomach cramps, bloating and excessive gas. At first I thought it was something I ate, since we have been barbequeing a lot but now that I read this page I'm convinced it's the medicine. I feel like I've eaten 3 cans of beans, broccoli and onions mixed together, that's how bad my stomach hurts. It feels like it's going to explode. The only thing that seems to have calmed the pain a bit is Pepcid AC. I want to ask my doctor to switch me. I'm glad I read this site.

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Fri, 2 May 2003 08:58:13 -0400 by Guest, #2119

I only had nightmares the first night (of 14). But when you wake up praying you know it is bad!! Extreme fatigue, nausea and the most ungodly diareha you can imagine. That part did not start until I had only four doses to go. I was told to eat lots of yogurt. I told them I ate yogurt until it came out my ass and it was not helping. Am on a probiotic now recommended by a friend who had a similar experience. I would never take this stuff again. It would however make a good weapon of mass destruction.

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Thu, 1 May 2003 22:21:13 -0400 by Guest, #2112

Took 28 days of levaquin in summer 2001. Had all the side effects imaginable. Tingling/numbness, tinnitus, vision problems, cold hands and feet, metallic taste, hair loss, sun sensitivity, muscle twitching, and horrible full body pain in tendons, muscles and joints. Two years later, I have seen some recovery--especially the nervous system problems. However, the muscular skeletal problems continue to plague me. They are getting better, but it is VERY SLOW progress. Stay away from this drug, and if you have any type of reaction, please file a report directly with the FDA and the drug company.

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Thu, 1 May 2003 20:15:18 -0400 by Guest, #2107

I was a 52 yr. old healthy female and was diagnosed with pneumonia in October of 2002. My doctor prescribed 500 mg Levaquin. It did seem to help with the pneumonia, however while taking it I had the first anxiety and panic attacks I had ever had. Had bouts of crying. Was unable to concentrate, and could not sleep. Since that time, my eyes have been extremely watery and my allergy medication is no help. I am often achy and as of late I am experiencing pain in my right arm near the top. I have very little energy,no interest in seeing friends or doing things I used to enjoy. I have no interest in sex. I think this drug is very dangerous and should be taken off the market.

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Thu, 1 May 2003 16:49:26 -0400 by Guest, #2104

I've been taking Levaquin for 2 days now and have experienced all sorts of issues. Lack of sleep, horrible nightmares (when I finally do sleep), Rectal bleeding, head pain, nausea, hair loss, vomitting, memory lapses, vomitting, memory lapses, black feces, dyslexia, narcistic impulses, hypothermia, sudden urges to watch mtv and a craving for tea biscuits. Seriously, this medicine is horrible and you should avoid it at all costs.