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April 2005 Post Marketing
Reports 22430 From: Ida Almeida <sistared51@...>
Date: Thu Mar 31, 2005 4:59pm
Subject: Re: Re: rheumatologists sistared51
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Hi Michele
I have an appt today the Internist. I hope I get results; I am in so
much pain I could scream! I have been in pain for over three weeks in
both shoulders and upper arms. This is crazy. Why don't dr's tell you
the severe side effects of quinolones??!! I am just so depressed over
this.
I hope you are doing well.
I will let you know the outcome.
Bless You!!
Ida
22432 From: "pttmnlyn" <laynepittman@...>
Date: Thu Mar 31, 2005 9:31pm
Subject: I SHOULD LISTEN TO YOU GUYS pttmnlyn
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Well.... I went to see a rheumatologist today and i don't know why i
don't listen to you
guys:) I took about an inch thick folder with me with all my quinolone
toxicity research - i
took a detailed calendar of exactly when i took the levaquin and for
how long and exactly
when my symptons started.
He did an exam and told me that while he was on my side and hoped it
was the
quinolones, that it's been way too long for it to still be in my
system and he thought it was
rheumatoid arthritis. I said did you know this stuff can stay in your
system for years or the
effect of it anyway and he said no. Plus i asked him if he thought it
was a coincidence that
these symptons started a week into levaquin and i've never had joint
pain in my life and no
one in my family has arthritis. He said that women my age can develop
it quickly.
Anyway, they took blood and are doing all the arthritis, lupus etc.
etc. bloodwork. he
prescribed me something called Relafen or Relafin - that i don't plan
on taking cause im
scared. unless somebody out there has heard something good about it
and that it's safe.
My blood work comes back next week and i will be SHOCKED if i have
rheumatoid arthritis
but he started making me think it's just wishful thinking hoping its
the quinolone
poisoning. Does anyone know if i can get a false positive on the blood
work????
Anyway - just wanted you all to have the update.
Any thoughts?
layne
22433 From: "Kings1978" <kings1978@...>
Date: Thu Mar 31, 2005 10:26pm
Subject: Re: I SHOULD LISTEN TO YOU GUYS kings1978
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--- In quinolones@yahoogroups.com, "pttmnlyn" <laynepittman@m...>
wrote:
>>>>> He did an exam and told me that while he was on my side and
hoped it was the quinolones, that it's been way too long for it to
still be in my system and he thought it was rheumatoid arthritis.
I said did you know this stuff can stay in your system
for years or the effect of it anyway and he said no.<<<<<<
Yes, as if the chemical no longer being in one's system actually has
anything to do with the ADR.
>>>>Plus i asked him if he thought it was a coincidence that these
symptons started a week into levaquin and i've never had joint pain
in my life and no one in my family has arthritis. He said that women
my age can develop it quickly.>>
This is just major league BS and from an MD it's dangerous as hell!
Yes, a person can develpop any of these symptoms within a few days or
even a few hours of ingetsing the FQ and have then due to otehr
factors NOT the FQ. But I mean MF'ing REALLY! What are the chances
of it happening just exactly like that? What ARE the chances?!
Do they really want to be taken seriously when they which to conclude
that it's something with an almost zero chance of happening rather
than he pill that has been demonstrated to cause it? These are
scientists and empiricists and yet they insist on ignoring the
empirical evidence and go right for the Kook-assed "well maybe"
theory. Obcessing over the smallest of specks and ignoring the beam
22434 From: Ida Almeida <sistared51@...>
Date: Thu Mar 31, 2005 10:31pm
Subject: Re: Re: I SHOULD LISTEN TO YOU GUYS sistared51
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I went to an Internist today after suffering with pain for a month
after taking Levaquin! I am so sick of bloodwork, EKG's and all the
BS. Now they are sending me for an MRI and my Internist did agree that
it was a Levaquin side effect! But, down side is that I may need
surgery to correct the ruptured tendons in both of my upper arms! I am
so ticked off that a dr. even gave me this darn stuff. Don't they know
about quinolones??!! This doctor knew about them and I thank God
someone actually is listening to me. I am a very active 50 yr old
woman and I have never had any kind of problems with my arms, legs,
nothing! Now I can just about type this and I can't sleep at night!!!
I am so upset; someone needs to get this crap off the market. Where is
the FDA on this??? What's going on!!! I wish you luck though, please
keep in touch.
Ida
22435 From: Ida Almeida <sistared51@...>
Date: Thu Mar 31, 2005 10:34pm
Subject: Re: I SHOULD LISTEN TO YOU GUYS sistared51
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Oh, I had the same thing happen to me. Allkinds of bloodwork and
nothing! The dr. I went to today, an Internist/Rheumatologist DID
believe it was from Levaquin and that's why my shoulders/upper arms
ruptured! I had a booklet on quinolones also but the first dr. I went
to was doubtful; he kept saying it was arhritis but then again he said
it wouldn't hit both arms at once and be ever so painful so he was
baffled. I do believe I have Levaquin poisoning and even steroids do
not help. I may need surgery. I go for an MRI next week to see if they
are ruptured. Wish me luck and I wish you luck as well!
Ida
22436 From: "garym52" <ggmab@...>
Date: Thu Mar 31, 2005 10:38pm
Subject: Re: I SHOULD LISTEN TO YOU GUYS garym52
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Layne,
One thing I'm pretty sure about is that you don't have rheumatoid
arthritis, so don't worry about that. Second thing i know is that
docs are so ignorant about adr's to fq's, that it isn't even
remotely a shock that he doesn't think that's what it is. Nearly
every doc in the US will tell you the same thing, "it can't be the
fq, it isn't still in your system." They either choose to ignore,
or are just plain ignorant to the fact that spontaneous tendon
ruptures have been documented for 6 months to a year after
completion of fq rx. Why is it that it can be the fq in those
cases, but not in cases of joint/muscle pain, or neurological
issues? BECAUSE BIG PHARM AND THEIR LOBBY GROUP DO NOT WANT THE
WORLD TO KNOW HOW THEIR DRUGS ARE CAUSING SYSTEM WIDE, LONG LASTING,
DEBILITATING ADR'S! Third thing i've learned, most docs when
confronted with info contrary to their beliefs will automatically
clam up and not want to treat you. So i've stopped trying to
convince them of the fact that cipro caused my problems. Instead, I
just see if they can identify any issues that can be
helped/relieved. At nearly two years, it isn't that important to me
anymore that my docs believe that the cipro poisoned me, and ruined
the last two years of my life. At this point, I just use them for
any relief that they might offer. And up to this point, they
haven't offered any.
Good luck, I hope you find some answers. And one last thing I want
to say, it isn't just a coincidence that all your issues started
during treatment of fq's, no matter how much your doc wants it to be.
Take care,
Gary
22437 From: "Dachman" <dachman@...>
Date: Thu Mar 31, 2005 10:38pm
Subject: Re: I SHOULD LISTEN TO YOU GUYS Dachman
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Layne
I couldn't agree with you more it is very difficult to get any
of the doctors i've seen to consider that these drugs caused all are
problems. I wonder tho if I have some kind of auto immune process
going on that is attacking my joints it's just I've seen this kind of
talk in the back posts.
don't be surprised if your tests come back negative. I had
alot of tests rerun last week rheumetoid factor,sed rate and a few
others and they all came back negative at least at this point.
and like you I have the joint pain big time and the popping, tendon
pain and at times a fibro kind of feeling in my body especially when
laying down. I've had the ANA and all the others like HIV,Hepatits
b,c etc all have come back negative. This stuff has messed alittle
with my glucose number which is elevated by about 9-15 points above
what it has been for years. I have something you might be interested
in trying it is Visualization I'm learning it from a Healer out of
Canada through his books. He's has specific visualizations for
muscle,joint,neuro and pain in general. After doing them my body does
feel energized. I learned about him from someone who posted his
website here and that's where I purchased his books. Here is his
website http://www.dreamhealer.com he holds workshops in Canada and
I plan to go to one in June he's only about 150 miles from me. Wish I
could work one on one with him but it seems the demands on him are
huge and he's trying to live a normal life as well. Anyway the group
healings are very powerful at least that's what he says. The books
are very interesting reading and I'm going to do the visualizations
30 days min and at least 1 hr a day to see how it goes. Alternative
options have given me the most releif to this point.
David
22439 From: "Jen" <nettazig@...>
Date: Fri Apr 1, 2005 0:37am
Subject: Re: Reality Check! -Leslea nettazig
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Leslea,
According to the medical expert I was dealing with when I was involved
in group mediation against Ortho-McNeil, taking a steroid right after
taking a fluoroquinolone is just as damaging as taking them
concurrently. I asked this question myself, because I didn't start
steroid therapy until about 2 weeks after I stopped taking Levaquin.
Can it prolong your ADR? Without a doubt. In fact, being exposed to a
steroid can and most likely will WORSEN your ADR, especially tendon
pain, the risk of a tendon rupture, and the peripheral nerve problems
you mention having. When I was given Medrol, my hands and feet started
burning, tingling, and went numb at times, and I had burning in the
back of my right leg. I take Topamax now, an anti-seizure med, which
helps a lot. People exposed to steroids generally have a longer
healing period, and sometimes end up with permanent damage.
I know the pain and other symptoms are a nightmare. Please do not be
afraid to seek out treatment for your more bothersome symptoms, but
tread lightly. I know the fear of "what if it makes things worse, or I
have another reaction", but the way I saw it, the suffering just
wasn't
worth it. I had a life to live, and a family to raise, so I did what I
had to do to get on with my life. Please feel free to contact me off
the group if you have questions.
All my best,
Jen
22442 From: "Jen" <nettazig@...>
Date: Fri Apr 1, 2005 0:46am
Subject: Re: Reality Check!-Margaret nettazig
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Margaret,
If you were exposed to fq's prior to your FMS diagnosis, it is
entirely possible that they could have caused it!
Yes, I do rely on meds to make my life more bearable, and I'm not
ashamed of it. I've spent way too many days in bed, unable to move,
crying my eyes out because it hurts too much. I've had my muscles
spasm up so bad that my massage therapist could touch me. Just 2
weeks ago, my trapezius muscle was in such bad shape that I was put
on medical leave for a week, on total bed rest. I also have
inflammatory arthritis that affects my spine. Sometimes it feels
like someone is stabbing me in the lower back and SI joints with a
red-hot poker. NO ONE should have to suffer in that kind of pain.
I take daily "preventative" meds to keep my illnesses under some
sort of control, and I have relief meds for when they do get beyond
control.
Since I'm well past my floxing, and now into what it left behind, I
focus now on creating a "stable baseline" in my pain level and
overall well being. It's not always easy, but it's my goal.
Jen
22443 From: "hjvander" <hvandeventer@...>
Date: Fri Apr 1, 2005 1:04am
Subject: Re: I SHOULD LISTEN TO YOU GUYS hjvander
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Hi Ida,
"Been there, done that", as some people say. I took two Levaquin
pills back in early January (concomitantly with steroids) and finally
got in to see a Rheulatologist about 2 months later. He told me that
the Levaquin could have caused my symptoms, but that he thought it
was doubtful since my symptoms had improved and then gotten worse
again (most drs don't understand the 'cycling' nature of the adr
symptoms related to FQ use). He ended up ordering 11 different lab
tests - including sed rate, rheumatoid factor, lupus, etc, - and all
came back normal. Most of my syptoms involved joint pain and some
tendon issues. My Rheumatologist thought my condition most closely
resembled that of a auto-immune disorder, but none of the tests were
able to confirm this.
I tend to agree with Gary about the whole dr / diagnosis affirmation
issue. At this point, it doesn't matter to me whether a dr affirms
that my condition was a result of FQ's or not, b/c I know that was
the cause. Nonetheless, it certainly doesn't hurt to see a dr and
have whatever tests done to rule out other conditions - for personal
peace of mind if nothing else.
I wish you all the best.
22445 From: "Helen" <acenzi@...>
Date: Fri Apr 1, 2005 1:39am
Subject: pennicillin hlnczn
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Does anyone know why the Canadian warnings are different from the Us
warnings for levaquin? The Canadian warning says to use caution if
prescribing levaquin to anyone allergic to pennicillin. I am allergic
to pennicillin and had an immediate adverse reaction to that poison.
22446 From: Ida Almeida <sistared51@...>
Date: Fri Apr 1, 2005 2:22am
Subject: Re: Re: I SHOULD LISTEN TO YOU GUYS sistared51
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Well, finally after two doctors, I found an Internist/Rheumotologist
that told me it WAS a side effect of Levaquin! He is sending me for an
MRI to see what the ruptures may have done to both arms. This is just
absolutely crazy! I also spoke with another person who now has
fibromyalgia, as a result of Cipro and Levequin and she's just
devastated. I will let you know my outcome after 4/8 when I have the
MRI.
I wish you all the best too.
Ida
22456 From: "Helen" <acenzi@...>
Date: Fri Apr 1, 2005 2:09pm
Subject: Re: pennicillin--please post a link hlnczn
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Hi, This was found "Canadian Lung Association-Prescription drugs
forLung Diseases Levaquin tablets"
http://www.lung.ca/drugs/pages/375.html
I called ortho mcneill and asked why Canada had a warning and they
didn't and she said "we don't have a warning for pennicillin." I have
not been able to get any answers. Helen
22459 From: Ida Almeida <sistared51@...>
Date: Fri Apr 1, 2005 6:14pm
Subject: Re: Re: I SHOULD LISTEN TO YOU GUYS sistared51
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I told my dr. that especially my left arm blew up, I had to pack it in
ice for 24 hrs, he made me do certain things with my arms and told me
that I was probably right. He is sending me for an MRI next week, but
he did agree it was a side effect from Levaquin.
I wish you luck Michele; I can't wait to see what happens next week. I
will keep you informed.
22472 From: Ida Almeida <sistared51@...>
Date: Sun Apr 3, 2005 2:19am
Subject: Re: New FQ - Factiv sistared51
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Linda
I have been out of work for a month because of taking Levaquin.
Tendonitis and tendon ruptures in both upper arms and shoulders. Any
suggestions? I am going for an MRI on 4/8....don't know what the
outcome will be.
Ida
22476 From: "floxhole" <floxhole@...>
Date: Sun Apr 3, 2005 7:19pm
Subject: Is there any hope left? floxhole
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I feel dismayed once more. In 2002, the Center for Disease Control in
Atlanta did a research on the ADHERENCE of the postal workers to a
program of antimicrobial prohylaxis with cipro.
10.000 postal workers were asked to take 60 days of cipro or
doxycycline. Some refused and some stopped the treatment, mostly due
to adverse effects.
Although the researchers ONLY wanted to know wether the specific or
general population would comply with the government instructions to
take antibiotics in case of a massive bioterrorist attack, it happens
that they unveiled that there was an adverse reactions rate of about
77% after 30 days taking the cipro. Seventy seven percent does not
look pretty close to the "less of 5%" acknowledged by the
manufacturers, does it?
Nothing was mentioned about the adverse reactions rate after taking
the whole 60 days worth of cipro, but you can guess correctly that it
would have been 100%.
In the article, the researchers seemed to beg perdon because of
having unintentionally uncovered such devastating profile of the
cipro.
I deluded myself thinking that this impacting discovery would release
an inmediate investigation and follow-up of the 10.000 postal workers
that were submitted to the treatment.
So, I thought, the federal authorities or the Centre for Disease
Control, that should supposedly work pursuing the health and
weelbeing of the american citizens, would inmediately order a firm
medical investigation on all the events and a very professional
follow-up of the workers for some time (up to a year or two), and
will get a good picture about the safety of the quinolones because
never before so many people have been homogenously treated like in
this case.
What a mistake.
What has really happened is that the researchers of the Center for
Disease Control of Atlanta have been warned to mind their business,
that is to say the ADHERENCE to the program and not the adverse
reactions: to investigate ONLY wether the population will blindly
follow future goverment instructions to take massive doses of
antibiotics.
Therefore, instead of increasing the scope of the study, in the new
releases it has been severed and manipulated so, unless I am wrong
and according to the papers that I have studied, in the updated issue
of 2004 most of the references to adverse effects have been deleted
and there are some addings attributing adverse effects to the stress
of the workers.
Apparently the government (FDA?) did not tolerate a bold,
professional work that disclosed the truly toxicity of quinolones
because of several reasons:
1. The massive prophylaxis was a mistake and wrong approach to the
health issue of anthrax postexposure, so they try to avoid
responsibilities.
2. The authorities are afraid of the responsabilities of admitting so
severe damage on so many people that can easily regroup for a class
action. Dennying any relationship between the toxic reactions of the
workers and the antibiotics they try to mess up the issue into an
endless and inconclusive discussion.
3. The authorities don't want to scare people about quinolones,
because they can be of some use under certain conditions, and in the
end the antibiotic resistent bacterias are on the rise and new
antibiotics are not being developed at the neccesary velocity.
Is there any hope left?
22477 From: "floxhole" <floxhole@...>
Date: Sun Apr 3, 2005 7:23pm
Subject: Some excerpts from the CDC report floxhole
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For those that are relatively new to the forum and don't know the
paper of the Center for Disease Control (CDC) on the postal wrokers,
here you can read some excerpts:
Adverse Events
Of the 5,343 persons who reported taking at least one dose of
antimicrobial prophylaxis, 57% (n=3,032) reported adverse events
during the first 60 days of antimicrobial prophylaxis use.
At 10 days, the rate of one or more adverse events among persons
taking ciprofloxacin most recently (45%) did not differ significantly
from that of persons taking doxycycline most recently (49%).
At day 30, this rate was slightly higher (77%) among persons taking
ciprofloxacin most recently than persons taking doxycycline most
recently (71%, p<0.01).
Of 3,374 persons participating in 30-day follow-up, 13% reported
seeking medical attention.
At the post 60-day evaluation, 16% of respondents who took at least
one dose of antimicrobial prophylaxis (n=842) reported seeking
medical care for adverse events caused by prophylaxis at some time
during their 60-day course. Nine percent (n=493) reported that their
physician or other health-care provider advised them to stop taking
antibiotics; 54% of these persons (n=267) reported that the presence
of adverse events was the only reason for the recommendation to
discontinue.
Medical follow-up of persons reporting potentially serious adverse
events after 60 days is ongoing. [PLEASE, CAN ANYBODY FIND THE
RESULTS OF THIS FOLLOW-UP].
The overall rate of reported adverse events during this campaign was
higher than the rate (16.5%) listed on the usage information provided
with ciprofloxacin.
However, comparison of these rates with adverse event rates
associated with antimicrobial prophylaxis must be made with caution.
Adverse events reported in the ciprofloxacin literature are
categorized by their likelihood to be drug related, while this
relationship was assessed only for the small proportion of
potentially serious adverse events resulting from antimicrobial
prophylaxis. Adverse event rates are ideally derived from data
collected under controlled circumstances, including the presence of a
control group, while these data were collected as part of a response
to a public health emergency. [HERE THEY SELF-QUESTION THE RESULTS
CLEARING THE WAY TO A COMPLETE DISALLOWING]
A recent published review of adverse events among patients taking
long-term (>30 days) ciprofloxacin in clinical trials found an
overall rate of 32% and a rate of gastrointestinal adverse events of
22% (14).
Adverse events to antimicrobial prophylaxis in this event may be
attributed to the known pharmacology of the drugs taken. However,
some portion of the adverse events may also be ascribed to above-
average symptom awareness related to fear of contracting anthrax.
[HERE, THE RESEARCHERS START TO SHOW NULL KNOWLEDGE OF THE REAL
ADVERSE REACTIONS OF QUINOLONES. IT CANNOT BE THE QUINOLONES, SO
THERE MUST BE ANOTHER REASON, AND THE FEAR AND AWARENESS IS ENOUGH TO
CAUSE IT]
Data from focus groups of exposed workers support this hypothesis and
suggest that self-reports of stress were frequent. Anxiety may have
led to symptoms or physiologic changes that cannot be explained on
the basis of the known pharmacology of the antimicrobial agents given
but are temporally related to antimicrobial prophylaxis. Regardless
of their relation to antimicrobial prophylaxis or fulfillment of
criteria for serious adverse events, high rates of reported adverse
events during this event suggest the need for a management strategy
in addition to monitoring efforts for future antimicrobial
prophylaxis campaigns.
Data on adverse events and adherence must be interpreted in light of
the unusual circumstances of the bioterrorist attacks of 2001. [THE
RESEARCHERS WERE ASTOUNDED AT THE VERY HIGH RATE OF ADVERSE EVENTS
THEY MET SO THEY HAD TO SOFTEN IT UP].
22478 From: "floxhole" <floxhole@...>
Date: Sun Apr 3, 2005 7:32pm
Subject: Many of you are stressed, not floxed floxhole
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From the new release of the report prepared by the Center for Disease
Control of Atlanta, in reference to the massive intoxication of postal
workers after taking long term doses of ciprofloxacin.
Look at the efforts made towards dismissing the workers' complaints.
"Many workers mistook signs of stress (e.g., complaints of fatigue,
lack of sexual drive, and increased crying) for adverse effects of the
antimicrobial therapy. Further, the stress associated with the
bioterrorist event magnified the adverse effects associated with
prophylaxis".
"For some symptoms, distinguishing between adverse effects of stress
and those of the antimicrobial therapy, such as gastrointestinal
upset,
was impossible".
I have now learned that all of you (and me) that have complaints of
fatigue, fibromylagia-like symptoms, lack of sexual drive or semi-
impotence, and increased crying, despair, mood disorders and
depersonalization are simply stressed. It doesn't matter that we had
never had any of that problems before, not in situations of greater
stress than our current one, and it is just coincidental that they
showed up with the quinolone pills.
I did write to the CDC with some information, trying to fill that
illiterate gap that all doctors exhibit on quinolones.
22479 From: "Debra Morse" <debm@...>
Date: Sun Apr 3, 2005 8:12pm
Subject: Re: pennicillin wildreader2000
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No, I don't know but when I read that, I wrote Ortho-McNeil(sp?) about
it since
I too am allergic to Penicillen but I never heard anything from them!
Debra
Does anyone know why the Canadian warnings are different from the Us
<BR>
warnings for levaquin? The Canadian warning says to use caution if
<BR>
prescribing levaquin to anyone allergic to pennicillin. I am allergic
<BR>
to pennicillin and had an immediate adverse reaction to that
poison.<BR>
22482 From: "Debra Morse" <debm@...>
Date: Sun Apr 3, 2005 9:36pm
Subject: Re: Emailing: Canadian Lung Association - Prescription Drugs
f or Lung Diseases - Levaquin ® tablets wildreader2000
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Checked out this site and then from there went to Ortho-Jansen's (the
Canadian
manufacturer of Levaquin) site. On their site, they don't mention
anything
at all about penicillen allergy! Went back to the Canadian Lung
Association's
website and used the link there to send an email message to them about
the whole
thing. Unfortunately, they state that due to the volume of email they
receive,
they don't respond to queries sent from outside Canada. Still, I did
write
them a message about the whole thing because I'd like to know about it
as I
am allergic to Penicillen myself.
Debra
22487 From: "Sarah" <sarahhollis@...>
Date: Mon Apr 4, 2005 3:29am
Subject: New w/Questions about Cipro Reaction--esp tingling
sarahhollis
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Hello,
I'm new here. I took my first course of 7 days of Cipro fine except
for some unexplained pretty bad tailbone pain. The infection came
back, so I was put back on it 2 or 3 weeks later. Five days into it I
started sudden severe tingling and twitching of my right leg. I went
to the doctor the next day and they took me off Cipro and sent me for
a leg ultrasound (no blood clot). I'd love to hear some feedback from
some of you who have been around this longer than me! I've since read
that the tingling/twitching of my leg can happen from Cipro. Is it
weird that it's only one leg? How long does it last? It's been 4
days and isn't much better. Also, could the tailbone pain be at all
related? TIA for anyone's help. I tend not to tolerate many meds
well and I'm only 25 and trying to chase around a toddler w/this leg!
Thanks,
Sarah
22488 From: "lrzbrown" <lrzbrown@...>
Date: Mon Apr 4, 2005 6:29am
Subject: DMSO as a therapy? lrzbrown
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Hi, I haven't posted for a while. I'm 4 months post floxing. Still
have
pain in joints and tendonitis. The nero is less, but still there. I've
been doing all the usual supplements and diet and rest. I did a search
for DMSO but didn't find any mention in the messages. I'm wondering if
anyone has tried or considered this therapy? I'm not suggesting anyone
try it, but does anyone have any expierence with this?
I wish you all a speedy recovery.
P.S. All my lab tests have come back neg to date.
22489 From: "chriscinms" <chriscinms@...>
Date: Mon Apr 4, 2005 8:03am
Subject: Quinolones for over 13 years. chriscinms
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Looking back I have been on everything from Cipro to Ofloxin in the
past 13 years. I am 38 now. Too much to list as far as the details.
I was one of the rare individuals that had prosititis at a very young
age. Dr.'s think it was caused by some kind of infection brought on by
a clamydia outbreak from an ex girlfriend.
Weirdly enough I cannot remember ever having real severe side affects
until just recently. Meaning the last year. My joints started hurting.
First it was my hips. A little annoying not real severe. Now it has
worked its way to my elbows, hands, ankles. etc in just 6 months after
taking 5 rounds of 7 day at a time Ofloxin. It has come on very
strong. Just finished my last round Feb 17th.
I also take many supplements. I have now just started to reduce the
amounts 1 at a time to see maybe if the affects are heightened by
them. Weird though I have taken the same thing for years.
This website has somewhat scared me. I have experinced so many of
these side affects the people are talking about in this forum. Maybe
this poison has caught up with me.
Here are a few. Some have been occuring for long time others not.
Weird tingling, mandible pain, grinding of teeth, pressure in the
head, muscle spasms, muscle pain, Pelvic pain, (Joint pain lately)
Severe enough that it made me thing about a rheumatologist, feelings
of depression, weird shooting electric pain in the head, Wow just
plain weird.
I am a very active. I work out 5 days a week and take a form of Korean
Martial Arts Called Kuk Sool Won. It particularly stresses joint
manipulation and throwing. The pain from both of these activities has
increased by 10 in the last 6 months. It did not bother me before.
Maybe age has something to do with this maybe not. All that I know is
it has progressed quickly enough to scare me.
I did not take anything for for 2 years prior to this and all was
well. Being a health nut and understanding the body as well as some
doctors I know without a doubt that these drugs have damaged my body.
Not only my tendons, but also my joints.
The pain is geting severe. I am having to take Ibuprofen before I work
out. I have found another pain reliever that is all natural. I
encourage everyone who reads this to try Celadrin. I discovered it in
Muscle and Fitness Magazine. It lubricates the joints and works in
concert with Glucosamine. It has worked so well that I have even told
some friends about it whose parents suffer from arthritis. The pain
relief was almost immediate for me. It may be just a patch but who
care if it works well.
Enough said. I will continue to read. Remember exercise, eat healthy,
keep researching, and do not let the drug companies keep getting the
leg up on us. They are aware of the side affects but the all mighty
dollar keeps things quiet.
Thanks,
Chris
Don't forget to look celadrin at http://www.celadrin.com
22496 From: "garym52" <ggmab@...>
Date: Mon Apr 4, 2005 2:17pm
Subject: Re: New w/Questions about Cipro Reaction--esp tingling
garym52
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Sarah,
The tingling and twitching (so is the tail bone pain) you describe
is a pretty common symptom of a cipro adverse drug reaction. That
is exactly how my problems started. I noticed twitching in my left
calf muscle within a week of completing my rx of cipro. That was
June of 03. In my opinion, it is critical that you never take
another fq unless it is a life or death situation. Hopefully, your
problems will not linger like so many here have. I would also
advise that you try a magnesium supplement.
Take care,
Gary
22517 From: "quilthreads" <Leequilts@...>
Date: Thu Apr 7, 2005 1:50am
Subject: E.R. for Levaquin pain quilthreads
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Saturday morning, April 2, 12 days after my two week Levaquin dose,
my husband took me to the E.R. Pain increased in lower back as well
as all over, and I was hesitant to double my pain med. I received a
shot of Dilaudid, and one of Phenergan, and eventually the pain
subsided there. They sent me home with a presc. for Endocet, which
I haven't needed to take, thank God. That degree of pain has not
returned.
The two-week dose was the second experience I had with Levaquin --
but because it is one of the few Quinolone antibiotics that will
affect the bacteria Pseudomonas Aeruginosa that had "made a home" in
my sinuses, I elected to try it, although 5 years ago, when I'd
received my first Levaquin, I reacted with crippling back and leg
pain. Ever since, I listed Levaquin as a drug I could not take.
I asked my E.N.T. what was the "down side" if I tried it again. He
said it could cause ruptured tendons. That is the only adverse
effect he mentioned, which is on their list, of course.
But being at "my wit's end" with this chronic and recurring
infection, which also affects my asthma, I elected to give it
another try. He did say to try the 7-day samples, and then if no
problem to go ahead and fill the 7-day prescription. It was
immediately after the 14th day that my pain all over began -- and
the infection showed up immediatley also, lasting only a few days.
However, with the excrutiatingly painful morning Saturday, I was
really afraid I was not going to live. Strangly, though, Sunday,
Monday and yesterday (Tuesday) the pain in my lower back has
lessened -- and I have absolutely no sign of infection so far.
What a price to pay, though.
I had had a course of Cipro, however in December, and never realized
it was a member of the quinolone family until reading stories from
this site.
I still walk "crippled" like -- lower back pain all the time, but
each day is better.
I am grateful for all your help, however, and do think that perhaps
stretching and/or walking will improve the pain in my back.
I'm 76, and have osteoporosis from years of misdiagnosis of Celiac
Sprue Disease (malabsorbing calcium for most of my life) and need to
walk for that -- and for my recurring Fibromyalgia (which now I
wonder isn't really adverse reactions to my previous Levaquin and/or
other quinolones I've been prescribed since.)
I am so grateful for the help I've received from this group.
Margaret in Naples, Florida
22520 From: "cutte71" <nhoward5@...>
Date: Thu Apr 7, 2005 9:05pm
Subject: Vision Problems cutte71
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I know a lot of people, including myself, have flashing lights as a
visual side effect of the floxing. But, does anyone notice black spots
in their vision that disappear when you attempt to look at them? They
are not floaters but seem more like missing spots in your vision. The
doc said it was an optical migraine, but I believe that it is linked
to the floxing. Any and all replies are appreciated.
22521 From: txthyroid-Jan Nathan <txthyroid@...>
Date: Thu Apr 7, 2005 9:14pm
Subject: Re: Vision Problems txthyroid
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I do not have any floaters or blind spots, but I did notice that my
vision got worse shortly after being floxed and has not improved.
22522 From: "cutte71" <nhoward5@...>
Date: Thu Apr 7, 2005 9:24pm
Subject: Re: New w/Questions about Cipro Reaction--esp tingling
cutte71
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Hi, my adx started in a similar manner. I had horrible back, tailbone
and leg pain. I actually thought it was sciatica. Then the twitching
started in my right calf and became widespread. I took Cipro in
August 2004 and after a few rough months, I finally feel like I am on
an upswing save for a few lingering problems. So, hang on in there,
it may be a little difficult now, but I hope like many of us you will
see improvement too.
22524 From: "jayguitar1000" <jayguitar1000@...>
Date: Fri Apr 8, 2005 1:27am
Subject: Newbie Tendon Rupture -- please help! jayguitar1000
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Hi All,
Thank god for this wonderful and helpful group. Please take a moment
to read my
story and then feel free to send a flood of advice, experience, or
relevent
information.
In Jan '05 I was on Cipro 500mg for two weeks. Aside from a little a
tingling that
came later and nausea during, it seemed uneventful. Some time after
completing
the course of medication, the tingling is few and far between, but i
notice at night
some fingers go numb for no reason. Later i notice my knees seem weak
after
walking a flightof stairs, etc. Then, a week ago, I'm trotting out of
a restaurant and a
tendon in my upper calf ruptures halfway for no apparent reason (talk
about a POP!).
Since then I've been struggling with walking (luckily i still can),
but moreso sleeping,
loss of appetite, and severe depression and anxiety like I've never
known. Plus, I
now notice my muscles twitch randomly (esp. in calves)
If I knew i would heal up and that would be the end of it, I'd jump
for joy, but after
reading dozens of posts here, I know it is likely a symptom of being
"floxed." It's
hard because, of course, none of my doctors have anything but
(probably vastly
inaccurate) side effects statistics. They've never actually met a flox
victim. Please,
if you have just a moment, advise me -- and any other sufferers who
happend to log
on -- with any hints on:
Thank you in advance for any suggestions or experiences you'd like to
share.
May we all get better soon. God Bless.
--jay
22526 From: "Margaret Lee" <Leequilts@...>
Date: Fri Apr 8, 2005 4:54am
Subject: Re: Vision Problems quilthreads
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Hi, cute with the vision problems,
I've had floaters for many years, off and on (I'm 76) and wavy blurred
vision sometimes, that the doc said were optical migraines, also -- no
pain, however. But who knows if they weren't due to my past
quinolones? I'm just learning about others I've taken, e.g., Cipro,
not realizing they were in the same family of antibiotics.
Interesting question.
Margaret in Naples, FL
22532 From: "Deb Morse" <debm@...>
Date: Fri Apr 8, 2005 2:25pm
Subject: Re: debra_morse
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Someone recently posted to the list about the Canadian Lung
Association's website and how they state that an allergy to penicillen
would be a contraindication to prescribing quinolones to a patient.
I wrote the association an email asking about that very thing since
Janssen-Ortho (the Canadian manufacturer) didn't mention anything
about it on their site. Below you will see the reply that I received
from them about this.
>Thank-you for bringing this matter to our attention. We reviewed your
concern with a pharmacist working in the drug information centre that
did
the original work on this site for us. We were informed that there is
no
cross-sensitivity between Levaquin and penicillin. The only possible
connection would be that people who react to penicillin are more
likely than
the general population to have allergic reactions to other medications
BUT
NOT specifically to Levaquin. The statement in question will be
removed from
the information on our web page.
I am sorry to hear about your problems and I hope that your recovery
will be
complete. Thanks again for taking the time to bring this to our
attention.
Brian Graham
22536 From: "emibustillo" <emibustillo@...>
Date: Fri Apr 8, 2005 5:05pm
Subject: eye disconffort emibustillo
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Hello every one , I took 3 cipro pills 10 weeks ago and after all the
horrible scary simptoms that everyone experienced I now for the last 4
days have a eye dissconfort is like if my eyes where tired all the
time, specially at night and I have problems focusing into things ,
has anyone experience this ??
pls help
Emi
22540 From: "misster_e" <ecathle@...>
Date: Sat Apr 9, 2005 2:10am
Subject: an appreciation -- and a rant misster_e
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hi, all --
just wanted to send a note of support and sympathy to all of you who
are suffering from this drug. Though I haven't personally been
affected by it (thanks to you guys!), I've done a lot of research on
it recently and my heart breaks for those of you who have been harmed
by it. So much of this, I think, has to do with the broken medical
establishment we're dealing with now, not to mention the shady
dealings of drug companies. And therein lies my rant :)
Last week I visited a new GP for a check-up and asked him to check me
for a UTI, as I was having mild symptoms off and on. Before I left the
office and my labs were read, the doc had already filled out a
prescription for Levaquin, telling me to fill it if I didn't want to
wait for the results. No instructions or information about the drug
were offered, other than it was a "standard" antibiotic for UTIs, and
I only glanced at the paper before putting it away. When my results
arrived a few days later, he called me and said I did have a UTI with
a "very rare" strain of bacteria (never heard that one before, and
I've had my share of UTIs), and he was holding some samples of this
drug, Levaquin, in the office for me. Again, no special instructions,
just once a day for five days. The envelope containing the samples
didn't have an insert or any other info, so I went online.
Thank goodness I did! I sat for hours reading through support groups
like these, legal sites, medical papers. By the end of it I'd made up
my mind: 1) this doc was remiss in handing this stuff to me with nary
a word, and 2) though I did understand that these ADRs may be rare,
there was no way I'd risk taking it for a UTI I wasn't even suffering
from all that much.
I called the guy today and requested another antibiotic. This is the
part that really gets me going: When I mentioned I was concerned about
side effects, he became quite hostile and dismissive, declaring that
there are absolutely no side effects associated with this drug, and I
have to take it because of my strain of bacteria. He'd give me another
one, he finally agreed, but he didn't think it would work as well.
This raised a few questions for me. If this particular drug is so
special that it must be taken for my rare UTI, why did he prescribe it
to me BEFORE even seeing my lab results? And why on earth would he
deny the presence of ANY side effects associated with it, when it's
right there on the insert? Is this guy clueless, or does the fact that
he has bundles of these "samples" lying around the office have
anything to do with it?
I'm just so angry -- not for myself, because I was spared, but for all
those people who have to suffer the ill effects of RX drugs that are
handed out willy-nilly without any information, and receive (as I
gather many of you have) nothing but dismissive arrogance after any
damage is done. It's outrageous. As a professional writer who spends
all day online, looking stuff up is second nature to me, but what
about people who don't have the ability to look this stuff up? It's so
disempowering -- and I can't help but think that it all smacks of
corruption somehow.
Well, thanks for letting me vent -- I know my anger pales in
comparison to your suffering. I'm off to the pharmacy to get my next
RX (which, believe me, I'll research!) and some good old cranberry
juice -- and then find a new doctor. You all are in my thoughts and
prayers, and I wish you strength and good health in the future. For
everyone who's taken the time to post their appreciation on this
forum, I'm sure there are dozens of lurkers who've also been helped,
so thanks for sharing your experiences.
Best wishes,
EC
22542 From: "garym52" <ggmab@...>
Date: Sat Apr 9, 2005 2:42am
Subject: Re: an appreciation -- and a rant garym52
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EC,
Thanks so much for the kind words of support. There are many
members here that need them. I'm so thankful that you took it upon
yourself to research Levaquin before taking the rx. I was given
cipro for a suspected UTI, and filled it, and took it, before my doc
discovered I didn't even have an infection! I have wished at least
a million times that I would have done some research before hand,
but I didn't. You are right in your assumption that there are
corrupt motives behind the rx. One of my best friends is a drug
rep., and the things that docs demand so they will write his rx's
are shocking. When you go to the doc, you do not get the best drug
for you, you get the best drug for the doc....That is an absolute
fact. Just think about how many times you go to a doc for a cold
and they give you an rx for an antihistamine along with the cold
medicine.
Take care,
Gary
22543 From: "misster_e" <ecathle@...>
Date: Sat Apr 9, 2005 4:59am
Subject: Re: an appreciation -- and a rant misster_e
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Thanks, Gary -- your UTI story and mine are similar except that you,
unfortunately, had to go through this -- we can only hope others will
continue to find your words on this forum and be as lucky as I was.
What you say is true -- even the idea that docs can blindly hand out
"samples" instead of running something through the controls of a
pharmacy seems crazy. Not to mention the well-known dangers of
overrescribing antibiotics in general, with long-term health
implications for everyone. This really has reminded me how much we've
been trained to put blind faith in doctors (oh for a perfect world,
where we could!). But it's also pointed out just how much valuable
info is out there online these days. Even just a few years ago, the
idea of going online to find "health information" was seen as
something dangerous and suspect. And I think many docs still have that
attitude. Meanwhile, the information gets better, people are
increasingly savvy about weeding out the silly stuff, real stories
like yours are shared, and we're left with a great resource for
empowering ourselves, arming ourselves with knowledge about our
health. It will be interesting to see how this trend -- including
forums like this one -- affects the doc/patient relationship in the
long run.
I'm so impressed by all the thoughtful, caring people in this group --
again, thanks for taking the time to allow a bystander to chime in.
Ultimately, this is an issue that affects all of us.
Best,
EC
22544 From: "Ellen" <bbaptie1@...>
Date: Sat Apr 9, 2005 7:08am
Subject: Re: an appreciation -- and a rant rosesinjanuary
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My experience was similar to yours - I was prescribed Levaquin but
never took it. My heart goes out to all of the victims of this
terrible drug.
What happened is that I went to a clinic and was diagnosed with a
sinus infection. I told the doctor some antibiotics I had taken
successfully in the past.
The doctor waved off this information. He was determined to give me
something I'd never taken before. He wrote the prescription for
Levaquin and when I asked about side effects, said "This drug is very
well tolerated". He wouldn't tell me anything more.
When I filled the prescription, I asked the druggist "Are there any
side effects I should be aware of?" She said "None that I know of.
It's very widely prescribed. It's a popular drug."
When I got home and read the drug insert, I became uneasy. I first
went to this site: www.askapatient.com. This is a website where
patients evaluate the drugs they've taken. The ratings for Levaquin
were very low. I wanted to find out more. Then a google search led
me here.
After reading the experiences, I was determined not to take
Levaquin. I called the doctor back, and he gave me grieve for being
an "alarmist". I kept asking why I couldn't take something I'd taken
in the past; he refused to go that route, and ended up prescribing
Ceftin, which is in a different group of drugs. It worked fine, and I
had no side effects at all.
I remain deeply disturbed by the experiences I've had with doctors
and the drugs they choose to prescribe. For one thing, they don't
give a hoot about the cost. They'd rather prescribe the "latest and
greatest" expensive new drug (which health insurance may not cover),
than a reasonably priced drug with a long track record of safety.
We have to look out for ourselves. This board is a godsend. I hope
the people here who have suffered from Levaquin realize that by
relating their experiences, they have saved others from taking this
dangerous drug.
I'm also interestsed in any actions which can be taken to get the
word out about this drug and the whole class of Quinolones. I hate
that so many people are being exposed daily to the dangers.
22549 From: "pttmnlyn" <laynepittman@...>
Date: Sat Apr 9, 2005 5:19pm
Subject: symptons pttmnlyn
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does anyone know if the neurological or muskoskeletal symptons hang on
longer? in the
beginning i had insomnia, some twitching and some eye floaters. all
that is gone but the
joint pain just seems to keep spreading. it's not getting worse, just
spreading. in fact, i
really hurt in the morning but by lunch im pretty good to go and at
night i feel good - not
that i could go running, but i don't hurt. then it's starts over in
the morning. just
wondering if anyone has a theory as to the course of symtpons????
could it be a good thing
that all that is left is the joint pain and what feels like tendonitis
(very very sporadically
and not all the time) in shoulders and elbows? my hands are the worst
still.
gary, i also wanted to thank you for always being so helpful and
supportive to people.
how are you feeling?
22554 From: "maggchar" <maggchar@...>
Date: Sun Apr 10, 2005 9:36pm
Subject: Re: Bursitis? maggchar
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I have bursitis on the backs of my heels - frustrating since it makes
my choice of footware difficult - I want something with more ankle
support for my achilles, but anything that comes up the back of my
heel makes the bursitis worse.
22558 From: Ida Almeida <sistared51@...>
Date: Mon Apr 11, 2005 3:10pm
Subject: Re: Re: an appreciation -- and a rant sistared51
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Ellen
Thank God you never took it. Since I did, my life has changed
dramatically.
I had ruptured tendons in both upper arms due to this drug! I am out
of work, can't type for more than a minute and I am in pain all day!
My life will never be the same
Ellen <bbaptie1@...> wrote:
My experience was similar to yours - I was prescribed Levaquin but
never took it. My heart goes out to all of the victims of this
terrible drug.
What happened is that I went to a clinic and was diagnosed with a
sinus infection. I told the doctor some antibiotics I had taken
successfully in the past.
The doctor waved off this information. He was determined to give me
something I'd never taken before. He wrote the prescription for
Levaquin and when I asked about side effects, said "This drug is very
well tolerated". He wouldn't tell me anything more.
When I filled the prescription, I asked the druggist "Are there any
side effects I should be aware of?" She said "None that I know of.
It's very widely prescribed. It's a popular drug."
When I got home and read the drug insert, I became uneasy. I first
went to this site: www.askapatient.com. This is a website where
patients evaluate the drugs they've taken. The ratings for Levaquin
were very low. I wanted to find out more. Then a google search led
me here.
After reading the experiences, I was determined not to take
Levaquin. I called the doctor back, and he gave me grieve for being
an "alarmist". I kept asking why I couldn't take something I'd taken
in the past; he refused to go that route, and ended up prescribing
Ceftin, which is in a different group of drugs. It worked fine, and I
had no side effects at all.
I remain deeply disturbed by the experiences I've had with doctors
and the drugs they choose to prescribe. For one thing, they don't
give a hoot about the cost. They'd rather prescribe the "latest and
greatest" expensive new drug (which health insurance may not cover),
than a reasonably priced drug with a long track record of safety.
We have to look out for ourselves. This board is a godsend. I hope
the people here who have suffered from Levaquin realize that by
relating their experiences, they have saved others from taking this
dangerous drug.
I'm also interestsed in any actions which can be taken to get the
word out about this drug and the whole class of Quinolones. I hate
that so many people are being exposed daily to the dangers.
22564 From: "hntzngr" <hntzngr@...>
Date: Mon Apr 11, 2005 9:44pm
Subject: Tequin hntzngr
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Oh my God! If I had known Tequin could do such damage.
My story reads like everybody else's: my PCP prescribed Tequin end
of Oct. (after previously prescribing Amoxicillin) for sinusitis. At
the time,I wasn't sure I had sinusitis but the doc was convinced
that Tequin "would clear it up". After a trip to an opthamologist
and retina specialist, it turns out it was just dry eye that $8
drops cleared up. Incidentally, I did have a retinal bleed that
healed but was unexplained (MMMMMMM....) I got the scrip filled and
it sat in my cupboard for three days before I took it.
I was sick, very sick. I read the info from the pharmacy--I had no
rash and did not think the reaction was severe. I regret the day I
took that stuff. I'm 6 mos. since taking the drug. Mos. 1-3 were
horrible with the ususal stuff--dizziness, fullness in the ears,
migraine headeaches, (I never had one prior to Tequin) tingling,
numbness, crying all the time, brain fog, unexplained muscle and
joint pain, etc. I thought my head would explode. The worst part
though, is that I plummeted into severe anxiety--panic attacks (no
history of panic attacks or disorder ever!). I thought I had MS or a
brain tumor. I recently saw my PCP and he prescribed Klonapin--he
told me that none of the symptoms I had concerned him and that I was
just suffering from anxiety.
I think some things are getting better--I now know I am not the
cause of my anxiety--it's drug induced. I have three young kids--
I've always been healthy and active--this drug has taken a good 6
mos. of my life. By the way, I had not had any antibiotics for 6
years. I'm discouraged but hanging in there. I keep thinking I
should have thrown out the Tequin--and listened to my gut feeling!
Any encouraging words or treatment regimens would be appreciated.
22571 From: "hopesprings1024" <hopesprings1024@...>
Date: Tue Apr 12, 2005 1:51am
Subject: How do you tell Friends, Family, Business Associates that
You've been Floxed? hopesprings1024
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It's a tough one explaining to your co-workers, friends, and more
distant family, and
business contacts that you've have become a statistic; a "rare"
sufferer of an
"uncommon" allergy to a popular class of prescription drugs. It's
depressing to tell
people the bad news, and when you do, it raises more questions than
answers.
Does anyone here have any tips for me on the best way or time to
reveal (or not
reveal) the bad news to the outside world? I mean, I can still work
and be somewhat
social at this point, but everyday it seems like more of an ordeal;
that I'm putting on
a big charade. What are the political and social consequences of
revealing to the
world you've been floxed? Is there a smart way to go about this? (I
hope this
question makes sense)
22575 From: "patjcase" <PatJCase@...>
Date: Tue Apr 12, 2005 8:48am
Subject: Re: Avelox and bipolar disorder patjcase
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Hello,
Has anyone experienced a worsening of bipolar disorder symptoms as a
result of taking Avelox (or any other quinolone)?
My 20-year-old daughter (who attends college in a neighboring state)
was diagnosed with bipolar disorder three years ago, and finished a
14-day course of Avelox for a sinus infection this past Thursday. She
commented to me a few days later that she had felt unusually anxious
and "out of it" while on the Avelox, and was continuing to experience
these strange symptoms. I chalked it up to coincidence, because at
the time, they seemed to me to be peculiar side effects for an
antibiotic. (I now know otherwise...)
Unfortunately, my daughter is now facing an underage drinking citation
(with a mandatory license suspension) because she became intoxicated
Sunday night while out with friends. She had never before this time
consumed any alcoholic beverages, knowing full well about the dangers
of combining alcohol with her meds. The young man who was driving my
daughter's car at the end of the evening, because she knew she was
incapable of doing so herself, was pulled over and charged with a DUI,
and my daughter with UAD.
We are, of course, devastated by these events. I am wondering,
however, if it is possible that the Avelox contributed to a worsening
of her bipolar disorder, causing her to indulge in the reckless
behavior that led to her intoxication?
I would be most grateful for any comments or suggestions.
Thank you so much.
22598 From: "emibustillo" <emibustillo@...>
Date: Thu Apr 14, 2005 3:00am
Subject: after 2 months and 2 weeks of 3 cipro emibustillo
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Hello everyone,
just wanted to report to everyone my progress after taking 3 pills
of 500mg of cipro for a UTI, first day of taking the pill I was so
sick almost fainting , compleatly white in my face and low blod
press., the doctor told me to continue, so I did and I was having
panik attacks and imsomnia etc, very dry mouth, flotters in my eye,
pain in my eye, white tounge etc, after a week of having stoped
cipro I felt a bit better, but then I develop so much pain in my
back in my kidney area I had to go to ER 3 times they took all kind
of tests and found nothing, so the doctot thought I was probably
stressed ( or crazy ) then I took some antiinflamatiories and
actually that helped and after 5 days of that I started to take
calcio/mag and omega 3 and that really helped now slowly I m much
better but I develop some stomach problems they are almost gone
now, my yeast infection that would not really go away and the worse
right now is my eye problem, I see blurry not all the time but many
times a day it comes and goes, I try to pray to God that I would get
better a 100% and just be patience that I would be fine.
so everyone hang inthere ,
Emi
> > > > > results as I am enjoying. It may seem like a lot of
> > > > > pills to take, but if you are truly as sick and suffering
as
> I
> > > > was,
> > > > > you will not find it too much.
> > > > >
> > > > > If any of you would like to email me to discuss any of this
> or
> > > > have
> > > > > any questions please feel free. It may take a day or two
to
> > get
> > > > back
> > > > > to you but I will get back to you.
> > > > >
> > > > > May God bless all of you and restore your health to you.
> > > > >
> > > > > Pamela
> > >
> > >
> > >
> > >
> > >
> > > ---------------------------------
> > > Yahoo! Groups Links
> > >
> > > To visit your group on the web, go to:
22627 From: "hjvander" <hvandeventer@...>
Date: Fri Apr 15, 2005 6:05pm
Subject: Re: Cycling again ? My apology hjvander
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Your certainly not alone Randy. There's many of us on this board
that can relate to the cycling of these quinolone-induced symptoms.
Other people have a hard time understanding what we are experiencing,
because the common understanding is that medication side-effects
generally go away shortly after stopping the offending medication.
However, as well all have unfortunately come to realize, this is
definitely not the case with Flouroquinolones. So it's difficult
telling people that you're suffering from side-effects from a
medication which you stopped taking months (or in some cases, years)
ago. Most people have no comprehension of side-effects lasting this
long. Many doctors don't even recognize this. I'ver personally
experienced the cycling, and I've read numerous posts on this board
dating back several years from others with similar experiences. Gary
is right -the cycling appears to get less intense and less frequent
over time. There is no medical cure. Some people find certain
medications to help with their symptoms -but, again, this is just
treating the symptoms, not the origin, of this condition. I'm
convinced that time is on our side though. We also must be patient,
try to keep a positive attitude, and seek out support during down-
times. Best of luck.
22628 From: "MicheleRuffin" <ruffin@...>
Date: Fri Apr 15, 2005 6:30pm
Subject: Re: Re: Cycling again ? My apology ruffin144
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How many people experience a weird muscle/nerve feeling like you have
had
legs crossed too long and foot kind of goes numb and feels week and
clumsy?
I have had this off and on. Right now- it is pretty bad. It feels like
every thing touching my feet- like socks - are too tight and causing
pressure. Same with my bra. It feels like it makes me kind of numb
around
shoulder blades or underneath them and bothers my arms. It seems
pretty bad
after laying down- maybe pressure on my back. Very hard to describe.
I am going back to neuro for more test because it has been almost a
year. I
am pretty sure I have the peripheral neuropathy or axonal
demyelinating
neuropathy the FDA warned about in October 2004. I had a very hard
time
moving arms and legs when first floxed due to weakness. Sometimes it
flares
up so bad still.
Just curious if anyone else had nerve/muscle problems and/or twitching
still.
Michele
22639 From: "johnsoma626" <m.johnson@...>
Date: Sun Apr 17, 2005 0:13pm
Subject: Delayed Reactions johnsoma626
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I took one month of Cipro and 1 month of Levaquin last summer/fall.
Almost immediately I have twitching all over, and as I stopped the
medicine I had burning muscle pain all over (but mostly in arms and
legs). This went on for a few months, and then seemed to subside.
However, two months ago (5 months after stopping the Levaquin), I
started having odd feelings in my feet. Some spots on my feet felt
as though they were tingling (though not numb) at times, and then
the burning started. The burning is usually mild, comes and goes,
and feels like it is on the surface... not inside my feet. It seems
like it can be on both the tops and bottoms of my feet. Note that I
never had any odd symptoms before taking these drugs. My
questions...
Has anyone had a delayed reaction to these medicines that was months
later?
Has anyone experienced the burning feet sensation?
What testing have doctors done? A Neuro didn't know what was wrong
with me, and said it could be the Levaquin... but wanted me to do an
EEG, EMG, MRIs, and blood tests. If it's the Levaquin, all the
testing seems like a waste.
Thanks for any feedback you can provide.
22647 From: "britefish1" <britefish1@...>
Date: Sun Apr 17, 2005 8:18pm
Subject: Re: Cycling again ? My apology britefish1
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I can relate to your problem , mine is soreness in my right
shoulder , headache stomach knot and fatigue . I seem to go awhile
then will have a relapse lasting a week or ten days . I finished my
prescription Oct 14 and was miserable for three months and finally
started feeling better but still relapse to date. Compared to earlier
i'm much better but still not gone. Hopefully both of us will be
better in a few days and hopefully these relapses will get smaller
and less frequent. Stay Well , Randy
22648 From: "Susan" <susanl95@...>
Date: Sun Apr 17, 2005 10:37pm
Subject: Levaquin susanl95
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Hi. I just started an iv of levaquin three days ago and think I am
experiencing adverse reactions:
-I am tired, constantly. This could be due the infection, but I wasn't
like this before the Levaquin.
-I have feelings of malaise.
- I feel hopeless about the future.
-The pain from my bone infection is worse.
I am worried. I will read your posts later.
any thoughts.
22653 From: "pttmnlyn" <laynepittman@...>
Date: Mon Apr 18, 2005 1:14am
Subject: weird symptons pttmnlyn
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ok i have a question. a week or so ago, it seemed like the joints in
my fingers, wrists and
knees were hurting. over the past ten days it has changed from a
hurting joint feeling to
just feeling like the entire hand and has been beaten with a rubber
hose. my whole hand
feels bruised and it is hard to make a fist. there is no actual
bruising but my fingers are
swollen - not all of them but about 6 of them. what the heck? do any
of you have swollen
fingers that last for days?
also, i have had a weird kind of painful "lump" in my throat when i
swallow. and it moves
around. one day on the left side, one day on the right, and now my
right ear feels full and
is kind of ringing. is this another lovely ear infection or a ADR.
Dang im tired of calling the doctors.
anybody familiar with this stuff?
also, i use the Tom's toothpaste.
my last levaquin pill was Jan. 25 so i wonder how much weird stuff is
going to keep
appearing and for how long. sure hope not 18 months.
goog night all. blessings. keep the faith
22654 From: "Susan" <susanl95@...>
Date: Mon Apr 18, 2005 2:20am
Subject: Newbie susanl95
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What symptoms do you all have from Levaquin? I was just on it thru IV
for three days and feel terrible. I am pretty sure it is the Levaquin.
I have been on it in the past-- oral and no problems that I connected
to it, but now I am not so sure. Please let me know what symptoms you
all experienced.
I have fatigue-- but had it before.
I have a terrible forboding feeling that I never will feel well
again,b ut this could be from my bone infection in my jaw.
Feel achy all over and my back hurts and constipation.
I think the risks are outweighing the benefits so I am stopping the
drug asap.
Thank you.
Susan
22656 From: "emibustillo" <emibustillo@...>
Date: Mon Apr 18, 2005 2:21pm
Subject: cycling again for how longggg????????????????????help
emibustillo
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Hello,
Im desperate , I started to have this bad feeling where I cant feel
quite and cant sleep, after been well for almost 4 weeks, my neck
feels weird and my stomach too like cold feeling , and cant sleep of
that feeling, I feel terribly depressed, has some one been feeling
like that ????? help me pls??? how long is htis going to
lasttttttttttttttttttttttttttttt is it the worse yet to come??? the
last day of cupro was feb 2, and I had a really hard time for almost a
month and a half, I only took 3 pills. helpppppppppppppppppppp
22660 From: "buddy9144" <buddy9144@...>
Date: Tue Apr 19, 2005 0:36am
Subject: Circulation problems buddy9144
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I am having circulation problems especially in my feet. They are
always cold. However when I take a hot bath or shower the turn bright
red and stay that way for 20 or more minutes after my shower. It
looks like a sunburn. Has anybody had a symptom like this or know what
causes it? If so, does it go away? Is there anything I can do to
help my circulation? Any imput would be appreciated. Thanks!!
22674 From: "Linda" <wakko1689@...>
Date: Tue Apr 19, 2005 11:21pm
Subject: Re: Avelox and bipolar disorder wakko1689
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The way you describe it, it sounds like it may not have specifically
been the bipolar that was aggrevated. Some meds can cause anxiety
and other side effects that make people feel "out of it". Which in
a sense can lead them to do things they normally wouldn't do. So I
wouldn't directly say it enhanced her bipolar disorder, but side
effects could have contributed to her behavior. If she still felt
out of it, she probably wasn't thinking straight when she took the
first drink. I haven't specifically taken Avelox so I can't be
certain.
22676 From: "hjvander" <hvandeventer@...>
Date: Tue Apr 19, 2005 11:57pm
Subject: Re: Circulation problems hjvander
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Yes, I had the same symptom of extremely cold feet. I'm not sure what
causes it, but if you look at various Vasculitis conditions - our
ADR's from quinolones have similarities in terms of symptomatology. I
found nothing that I did particularly helped, although it did
eventually completely resolve with time.
22682 From: L S <buddy9144@...>
Date: Wed Apr 20, 2005 2:07am
Subject: Re: Re: Circulation problems buddy9144
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Thanks so much for the feedback! Is nice to you had this symptom and
improved with time.
hjvander <hvandeventer@...> wrote:
Yes, I had the same symptom of extremely cold feet. I'm not sure what
causes it, but if you look at various Vasculitis conditions - our
ADR's from quinolones have similarities in terms of symptomatology. I
found nothing that I did particularly helped, although it did
eventually completely resolve with time.
22684 From: "maggchar" <maggchar@...>
Date: Wed Apr 20, 2005 3:59am
Subject: Re: Circulation problems maggchar
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My feet get really cold too, in addition to my entire lower legs.
It's like there's a barrier at my knees that keeps the heat from
going down any further. At least a couple of the docs I've seen have
said the pulse in my ankle/foot feels normal, though one of them
pointed out that this observation wouldn't rule out circulation
problems in the smaller capillaries. They also did a venous
ultrasound that was normal (I thought it was odd the venous
ultrasound looked at my upper leg only).
For me the frequency and intensity of the coldness has reduced some
with time.
My PT suggested soaking my legs in a hot tub, and heat has always
felt better than ice on my tendonitis anyway. He also suggested
using a bike some to get the blood flowing, which I do on occasion
very cautiously.
22694 From: "emibustillo" <emibustillo@...>
Date: Thu Apr 21, 2005 2:09am
Subject: listen to this emibustillo
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Hello everyone ,
just wanted to let you know that I just whent to the eye doctor and
guess what ? he could not find anything and he agreed it was the
cipro,
he asked me to wait until the effects died off, ( tell me something I
did not know ) still my eyes are bodering me cant see clearly
allthough
the doctor says I see 20-20
has anyone else experience this simptoms like blurry vision like tired
eyes ??????'' pls help if some one else has the same.
I have been poison with this for 10 week, my neck hurts and some weard
back stuff, I hope im over it soon, I was better for a 3 week period
and then bam again the stupid cycle .
thanks for your support
Emi
22696 From: "dezzi44305" <dezzi44305@...>
Date: Thu Apr 21, 2005 3:24am
Subject: QUESTION: Please read! dezzi44305
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Hello all,
Sorry this is such a long post.
About 2 1/2 months ago, I went to the Dr. with pneumonia symptoms.
X-ray showed I did have it. My Dr. wanted me to start taking
"Levaquin". I got the prescription filled, then came home to read
everything I could about this drug. (I've had several bad reactions
to other antibiotics in the past, so I read about any drug I am
prescribed BEFORE I take it.) This is the first time I had ever been
prescribed a "quinolone" drug. After reading all of the horrible
things people have gone through taking it, I decided against it.
I called Dr. back, and asked for something else. I had safely taken
"penicillin" type drugs in the past without any adverse reactions. So
he agreed to let me try high mg. of Amoxil. After 2 wks., pneumonia
was still there, and getting worse. He then changed antibiotic to
Augmentin 875. Still didn't work. Then on top of the pneumonia, I
also got a horrible sinus infection. He changed me to Bactrim "double
strength". No change. He finally did a culture, the nurse called me
the following week, and said "we need to change your antibiotic
again". You have "strep pneumonia", and yours is resistant to all of
the drugs you've been on. She told me I REALLY NEEDED to take Avelox.
She claims this is the "only" type drug that will help this.
That was almost 2 weeks ago. I am not getting much better, and I'm
so afraid to take the Avelox. But I'm also concerned about having
this strep pneumonia. I just don't know what to do now. Do any of
you have any suggestions? Has anyone here had strep pneumonia?
I don't know if only taking the "one a day" dose for a FEW DAYS would
help/hurt me. Please offer any ideas.
Thank-you all so much.
22698 From: Susan <susanl95@...>
Date: Thu Apr 21, 2005 4:42am
Subject: Re: Re: anniversary susanl95
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Thank you for the response.
Have people committed suicide because of these drugs? Or was it do to
complications from the drugs? I am still uncertain what side effects
you all have that have lasted for years. I understand some side
effects as most drugs have a side effect or two, but long term?
I think there is another drug that could be used, but I am in a
precarious position with my doctor wanting me to go get a third
opinion and quite frankly, after all I have been thru, I am not up for
a third opinion. I feel he is trying to dump me off on someone else
because he doesn't want to deal with it anymore.
22702 From: "Helen" <acenzi@...>
Date: Thu Apr 21, 2005 2:10pm
Subject: Re: info sheet from pharmacy hlnczn
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Jeanne, Thanks for the information. Yes, I'm angry and I want
someone to help pay for the dr bills I have since this happened to
me. My so-called dr. didn't warn me about anything when he have me
the prescription. That was in Oct 2004. In Dec,when I realized
that I had a adr to this poison, I asked the pharmacy for the info
sheet so that I could try to figure out how I was so stupid to take
it. When they gave me the copy and I read the warning not to take
with nsaids, I couldn't understand how I missed that. I was taking
both for fever and aches, for the pneumonia. Then I found the
original
info sheet in a drawer and found it to be different than the new
one. It said nothing about nsaids. I believe that some of my cns
symtoms were increased because of mixing the poison with the advil
and aspirin. They are trying to tell me that there isn't room for
everything on the information sheet. I told them that that was a
poor excuse for not including somehting this important. They said
that it wasn't a warning but a caution.
22715 From: "Helen" <acenzi@...>
Date: Sat Apr 23, 2005 1:40am
Subject: 6 month anniversary hlnczn
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Hi everyone,
Today it is 6 months since being poisoned by levaquin. It's been a
long, hard six months. I have had pain from head to toe. I have had
insomnia, tinnitus, nightmares, psychotic episodes, depression,
metalic
taste,anxiety, floaters, brain fog etc,etc,etc. I know you all
understand! I can say that after 6 months some of the symtoms I've had
have eased up. I had no pain for the last week and then last night I
got that burning pain in my knee. I can't even touch my leg. Some
nights I sleep well but if I wake up during the night I can't fall
back
to sleep. The tinnitus is still as bad as it was 6 months ago. I
don't have as many nightmares. The psychotic episodes are still
happening but I'm getting control over them. I've been very depressed
but afraid to take anything for it. I can taste almost everything
again.
I guess I can say that I'm 50% better than I was. I can also say that
I"m 60 and If I was 80, I never would have lived through this.
I wish everyone well and I'm so thankful that I'm not in this alone.
Helen
22724 From: "bthejh" <bthejh@...>
Date: Mon Apr 25, 2005 0:27am
Subject: Re: Cycling bthejh
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Sally,
I would also like to know why we cycle, I just passed my 8 month mark
and am getting discouraged. I try to eat only the things I should but
have been having alot of burning the last couple of weeks. I do have
the cold and then the intensive heat that you mentioned. In the
beginning I was cold all the time but that has gotten better. Was glad
to see Brian was better at a year, maybe by then we all will be.
Maybe because I am an "older" person I won't recover as fast.
I have been away so haven't posted in awhile but is good to read and
see how everyone is doing. There is much to be learned from everyones
different experiences.
Hope everyone gets better soon.
Bev
22725 From: "robc_3" <robc_3@...>
Date: Mon Apr 25, 2005 2:10am
Subject: New User, Thank God for you all. robc_3
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Hello,
I cant tell you all how much I thank God for this group.
about 1 month ago I was given Cipro for a UTI, The nurse stated it
is a fantastic drug. (Boy was that a mis-statement) The dose was
twice daily for 10 days. About 7 days into taking it I felt a
numbness in my arm, it seemed to move locations in my arm- from
shoulder to wrist.
I was concerned so I called the nurse. The nurse said I was so close
to being finished to continue the last three days.( So I did)
To-date my symtoms are: sore shoulders from time to time. Soreness
& Numbness in my left arm. Somtimes the pain moves minute by minute
to my neck and then to my hip or chest. Its by far the weirdest
thing I have ever experienced. My hands are affected the most they
feel swolen but look ok.
I went to the two weeks ago and described the pains, he told me it
was nerves from stress on the job. I told him I was worried about a
heart attack. So after a stress test I know it is ok> Waiting on
colesterol results.
I have noticed mood swings and some hair loss. ( Is it from nerves?)
I am 36 years old and was in fair to good health before the CIPRO
now I feel like I have the aches and pains of someone older.
I have three children to keep up with and a wife that dosent need a
husband with mood swings. God bless all of you on this group. I was
not sure what was going on and was getting stressed out. Just
knowing that I am not alone helps.
I look forward to reading the many other post in this group.
Regards,
RobC
22729 From: "pmfddm" <pamsy48@...>
Date: Mon Apr 25, 2005 2:35am
Subject: Re: Why do Many of us cycle? pmfddm
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-I have been having two very rough days and was so surprised that
almost all the messages were about cycling. My face is very red and
swollen like in December when I was on the prednisone and can't
figure
out why except I was wondering if it might be weather related. I
live
near Chicago and we have had temps just this week in the 80s and now
in the 30s so could it
be atmospheric pressure on our body. Just an odd thought about
something I just can't figure out.
22731 From: "MicheleRuffin" <ruffin@...>
Date: Mon Apr 25, 2005 3:29am
Subject: Re: New User, Thank God for you all. ruffin144
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I doubt the hairloss is from nerves. My hair fell out for months after
Levaquin. It has since started growing back.
Good luck.
Michele
22741 From: "thirteenmilerunner" <thirteenmilerunner@...>
Date: Tue Apr 26, 2005 8:01am
Subject: Avelox Reaction? thirteenmile...
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Hi,
First I'd like to say thanks to all of you for posting and sharing
your experiences with quinolone medications. I find that sites such
as this usually provide much more info than a drug manufacturer's
package insert! I also extend my best wishes to each of you in
recovering your health.
I've been researching Avelox this evening after going through days of
dry, swollen, puffy eyes that just wouldn't go away. Initially I
attributed the puffy eye problem to sinus congestion, but then began
to wonder if it was caused by a reaction to the Avelox.
Avelox was prescribed after a round of Zithromax didn't clear up a
sinus infection & bronchitis. The doctor prescribed Avelox and said
to use Nasacort three times a day, rather than just twice. The eye
problem worsened. (I believe Nasacort is a corticosteroid which is a
medication that should be avoided with Avelox, is that correct?)
After 6 days of Avelox I was also experiencing an ability to "spit it
out" correctly when it came to thinking of & saying the right words
in conversation. I have gained about 6 pounds in one week (last time
I weighed this much was when I quit smoking 20 years ago!). I take an
Iron supplement as well as a multi-vitamin with Iron...something else
the pharmacist didn't advise me could interact with Avelox.
After reading about all the potential side effects, that was it! No
more Avelox. I'm into triathlete training and and the news about
possible tendon issues concerns me. I just hope it isn't too late as
I see some folks developed the muscle pain & tendon problems after
the meds were stopped. I'll heed the advise of many here and take it
really easy when I re-start my training. I've been too sick to
workout for the past three weeks--probably was a good thing, now that
I am reading about some people's injuries! Yikes!
I went for blood tests today re liver & kidney function, immune
levels, and a bunch of other stuff. I see the specialist (ENT) in two
days. In the meantime I am continuing with the Cotridin (Codeine)
Cough Syrup as the nagging night-time (post-nasal drip)cough has
returned. I stopped using the NasaCort and resumed the use of Sudafed
which has worked for me in the past.
Any comments on the Cotridin or Sudafed? I'm taking the cough syrup
because I can't sleep due to the cough. I've already been off work
for 2 1/2 weeks and just want to do whatever I can to get over
this "bug" and to try to minimize what I think has likely been an
Avelox reaction.
Is there a list of foods to be avoided? Many posts here refer to
certain foods, but a compiled list would be great to have.
Thanks in advance for whatever information or advice you might have
for me.
13MR
22742 From: "THERESA" <HOKE777@...>
Date: Tue Apr 26, 2005 10:16am
Subject: " A WHOLE NEW WORLD " ibe2much777
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HELLO EVERYONE. MY NAME IS THERESA. I JUST TURNED 44 THIS MONTH AND
FEEL AS THOUGH I AM 104. I HAVE BEEN SERIOUSLY ILL FOR THE PAST 2
YEARS FROM 1 OR MORE OF 3 DIFFERENT QUINOLONES PRESCRIBED ME BY MY
PHYSICIAN IN A 6 MONTH PERIOD.(I WAS FORCED TO QUIT MY JOB!) IT WAS
NOT UNTIL ABOUT 10 DIFFERENT DOCTORS AND A BIZILLION " COSTLY " TESTS
THAT THE QUINOLONES WERE DETERMINED THE CULPRITS!
I AM ONLY 2 YEARS NEW TO THIS DIBILITATING & LIFE CHANGING DRUG AND I
DO NOT EVEN HAVE TO LIST MY SYMPTOMS... YOU ALL KNOW WHAT THEY ARE.
I WAS DIAGNOSED OVER THE PAST 2 YEARS WITH EVERYTHING YOU COULD
IMAGINE,ALSO, HAD SURGERY 7 MONTHS AGO FOR ULNER NERVE NEUROPATHY ON
MY RIGHT ARM, WHICH I HAVE FOUND OUT RECENTLY MAY NOT HAVE EVEN
EXISTED ! PRIOR TO 2 YEARS AGO I WAS AN ACTIVE, HYPER, CAN'T SIT DOWN
TYPE OF PERSON. SUDDENLY, EVERYTHING CHANGED. I WAS STOPPED DEAD IN
MY
TRACKS. I HAVE SPENT 2 YEARS OF MY LIFE IN A STATE OF CONFUSION,
FRUSTRATION, PAIN AND EVEN GUILT. I THOUGHT I WAS " SUDDENLY " LAZY
!!
I WAS RESEARCHING THESE DRUGS BEFORE THE DR'S EVEN KNEW ( OR WOULD
SAY)
WHAT WAS WRONG AND CAME ACROSS YOUR GROUP. I WAS AMAZED AT THE AMOUNT
OF PEOPLE AFFECTED BY THESE DRUGS!!! THE MAIN QUESTIONS I HAVE ARE
ABOUT THE DIET??? NO DAIRY , BEEF ETC. NOT MUCH ADVICE ON THAT
THROUGH
OUR HEALTH RESOURCES HERE. THE OTHER QUESTION BEING, WHO IS TO BE
HELD
ACCOUNTABLE FOR THE DAMAGE?? IT SOUNDS ALOT LIKE "WE" WHO HAVE BEEN
WRONGED BY OUR PHYSICIANS,PHARMACISTS & DRUG MANUFACTURERS
ARE BEING EXPECTED TO ACCEPT THIS UNACCEPTABLE WRONG DONE TO US. I
MYSELF PLAN TO FIGHT TOOTH AND NAIL FOR SOME SORT OF ACCOUNTABILITY
FOR THE DAMAGE THIS HAS DONE TO NOT ONLY MY BODY AND HEALTH, BUT FOR
THE YEARS OF MY LIFE WHICH HAVE AND WILL BE CHANGED FOREVER.I AM
SORRY
THIS POST IS SO LONG. I NEEDED TO LET YOU ALL KNOW WHO I AM AND WHAT
MY SITUATION IS.....NOW MY POSTS SHOULD BE SHORTER.:)
BLESS YOU ALL..... THERESA
22744 From: "poison911levaquin" <m4stal@...>
Date: Tue Apr 26, 2005 2:24pm
Subject: Newbie poison911lev...
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Hello everyone,
I am so grateful for this board. Half the time I feel like I'm
losing my mind. I took levaquin last year for more than 100 days.
I had side effects that I didn't realize were the levaquin. Blamed
tennis elbow on tennis etc. In November I went to the ER twice
while on levaquin with tendonitis in my shoulder then wrist then
other shoulder... You all know the drill. I saw a rheumy in Jan and
he thought early stages RA. All tests were negative although I did
have a positive Anti CCP which he believes is a strong indicator for
RA. At my last appt he said "This very well could be nothing
because all of my joints were cracking and not swelling and no
morning stiffness.
UGHH!!!! I wanted to scream he wouldn't admit it could be the
levaquin. He said that affects the achilles tendon.
Well, today I have extreme pain in both achilles and I'm on my way
to see him I'll keep you posted. I was just starting to feel
better - I guess I'm cycling like everyone! I just wish I could
know for sure if this was RA or levaquin or something else.
Thank you for listening and thanks for all of your posts. It truly
gives me hope. Wish me luck with the Rheumy!
Michelle
2746 From: "Vandeventer, Heath" <hvandeventer@...>
Date: Tue Apr 26, 2005 2:55pm
Subject: RE: Newbie hjvander
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Michelle,
Sounds like we've had similar reactions to Levaquin. In my case, I
only
took 2 pills of Levaquin - but I was also taking Prednisone at the
time,
which greatly intensifies the negative side effects. Everything I've
read seems to indicate that these two medications have a synergistic
effect when taken together - so even though I only took two Levaquin
pills before stopping, I might as well have taken 50 or 100 of them.
By
the way, I had already been taking the steroids for a couple of weeks
before starting the Levaquin, and my reaction to the Levaquin was
immediate (i was having bilateral knee pain within a few hours after
taking the first pill). I saw a Rheumatologist a couple of times as
well, but all tests came back negative (normal). I had the same deal
where all of my joints were painful and were constantly popping and
cracking, but no evidence of swelling (even though they "feel"
swollen).
Anyway, wish you well.
Behalf Of poison911levaquin
Sent: Tuesday, April 26, 2005 9:25 AM
To: quinolones@yahoogroups.com
Subject: [quinolones] Newbie
Hello everyone,
I am so grateful for this board. Half the time I feel like I'm
losing my mind. I took levaquin last year for more than 100 days.
I had side effects that I didn't realize were the levaquin. Blamed
tennis elbow on tennis etc. In November I went to the ER twice
while on levaquin with tendonitis in my shoulder then wrist then
other shoulder... You all know the drill. I saw a rheumy in Jan and
he thought early stages RA. All tests were negative although I did
have a positive Anti CCP which he believes is a strong indicator for
RA. At my last appt he said "This very well could be nothing
because all of my joints were cracking and not swelling and no
morning stiffness.
UGHH!!!! I wanted to scream he wouldn't admit it could be the
levaquin. He said that affects the achilles tendon.
Well, today I have extreme pain in both achilles and I'm on my way
to see him I'll keep you posted. I was just starting to feel
better - I guess I'm cycling like everyone! I just wish I could
know for sure if this was RA or levaquin or something else.
Thank you for listening and thanks for all of your posts. It truly
gives me hope. Wish me luck with the Rheumy!
Michelle
22747 From: "cart1267" <cart1267@...>
Date: Tue Apr 26, 2005 3:21pm
Subject: What levaquin did to me cart1267
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Hi,
I can't belive I stumbled upon this board. I took Levaquin about 6
months ago and had no idea until now it was the cause of my
symptoms. I was give the prescription for a sinus infection. As soon
as I took my first pill I felt hot and flushed, light headed and my
heart started to race. I thought this really sucks but if it is as
good as they say mabe it will be okay. After about two day on the
med my left knee started feeling swollen and achy. I remember the
night I stoped taking it very vividly. I had taken it and about 45
minutes later went into bath my baby son. I had to set down because
I felt so light headed and hot and my heart was racing. My teenage
daughter said are you okay you don't look good?. I said I'll be fine
in a minute and knelt down to bath the baby. That was a big mistake
I felt my knee shift and god the pain was horrible. I didn't realize
the pain in my knee had anything to do with the drug.
I called my mother and she said I can't take that stuff it makes me
feel funny. She described the same symptoms I had. I flushed the
rest of it down the toilet.
Well my knee pain p |
