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March 2005 Post Marketing
Reports
22090 From: "karp5050" <karp5050@...>
Date: Tue Mar 1, 2005 4:01am
Subject: Re: Physical Therapy experiences appreciated karp5050
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I was advised by my doctor to wait with PT for six month (which is
the latest recorded possibility of rupture of tendons after quinolone
exposure). After that time passed, I started very mild PT - massages
and some exercises. I was visiting PT three times a week, and with
each time my pain was getting worse. I took one week off saying I
need a break because of pain, after which statement they discharged
me from PT. After stopping PT I got remarkably better so I am not
sure if it actually had helped.
22089 From: "karp5050" <karp5050@...>
Date: Tue Mar 1, 2005 3:42am
Subject: Food reactions karp5050
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I would like to know if there is any kind of explanation, why after
one year past Levaquin ADR (severe tendinopathy)there are still
certain foods that cause me to relapse into pain. I am aware and
very careful about all poultry, meat and other food issues, however,
since the onset of my ADR in March 2004, certain vegetables cause me
always a setback. I would like to understand why. They are:
zuchini, eggplant, white radish, cucumber, and also melons or
squashes. What do these contain that makes my symptoms to come back?
Takes me several days to get better again after eating any of these.
Otherwise I am back to normal about 90-95%. I would appreciate any
info if anyone had the same experience.
Thank you! [Please post]
Helen
Floxed March 2, 2004 after two doses of Levaquin
22087 From: "Joy Scurr" <joyscurr@...>
Date: Tue Mar 1, 2005 0:03am
Subject: Re: Re: Worried about this symptom joyscurr
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Sally,
I have the same burning sensation. it started in lower abdomen, pelvic
area and then up to chest. I never had a history of heartburn, and had
been healthy all my life (I am 45).I have been to several doctors. The
doctors in the past 7 months have said I could have gastritis, h.
pylori, depression... the list goes on and on.
Last week I went to an OBGYN and they found a complex ovarian mass
cyst.I am sheduled for surgery next week. I have been burning for 7
months after taking Avlox. I have been reading all the posts on this
site and have been planning to tell my story. Sally, Have you been to
see an OBGYN? Joy
From: cellolang
To: quinolones@yahoogroups.com
Sent: Sunday, February 27, 2005 6:06 PM
Subject: [quinolones] Re: Worried about this symptom
Sally,
Don't feel alone. Last weekend, after having been off Levaquin for
about a month, both of my arms felt like they were burning from the
inside. The pain went from my elbows to my wrists, on the inside, as
if it were nerves or something...
It finally went away after my doctor put me on a different pain
medication.
Jennifer
-- In quinolones@yahoogroups.com, "Sally" <tailsclown@a...> wrote:
>
> I know I inquired about this before but didn't get much of a
> response...which worries me. Wondering if this symptom is unique to
> me. I have burning pain. It feels as though my entire body, inside,
> is on fire. Not so much in my extremities, but in my torso.
> Especially in my butt and genital area... but also in my back and
> chest. It sometime radiates into my arms or upper legs. I haven't
> read that anyone has this and am wondering why. I'm assuming this is
> quinolone related as the joint stuff and shakes started first. I
> still shake deep inside all the time. Especially upon awakening in
> the morning. My knees crack constantly as well as my ankles. Really
> worried about my knees.
> Are there any doctors on this list that have suffered these
reactions
> from quinolones? There has to be one somewhere!
> Please, if anyone has had this burning, please let me know. I'm
> feeling alone in this one.
> sally
22084 From: Lance Duffdecker <hsspedsec@...>
Date: Mon Feb 28, 2005 5:40pm
Subject: Re: Physical Therapy experiences appreciated hsspedsec
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For me, PT had nothing but negative effects and
eventually I came to believe it actually delayed some
healing.
Like you, ALL my tendons were affected by the fqs, so
any PT we attempted would cause a problem with some
other area, though the therapists valiantly tried a
variety of different exercises, positions, etc. The
ultrasound therapy they tried on the shoulder injuries
(of course I adamantly refused to let them use the
steroidal ointment with it) only seemed to re-injure
them and put me back into excruciating pain after each
visit.
Although I was not happy to be missing the many
benefits derived from exercise of any sort, all of my
tendons were so incredibly fragile that I finally
"gave in" and minimized every, single physical thing I
did, as best I could, to just let the poor things
heal. I personally wish I'd done that sooner and
skipped the PT altogether.
Sorry not to have more encouraging input for you.
-- Linda B.
22083 From: "aimee anderson" <andersonaimee@...>
Date: Mon Feb 28, 2005 11:27am
Subject: Re: Shingles? aimbogame
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Oh gosh Sally,
I wouldn't recommend taking the steroids as they can cause heart
palpitations and heart racing, and I'm pretty sure you described these
symptoms early on.
I really did have alot of burning, tingling, and what I called "hot
spots".
It was worst for me in the 3 - 6 month period after I took
Cipro/Levaquin,
but has gone away completely on its own.
Aimee
22080 From: L S <buddy9144@...>
Date: Mon Feb 28, 2005 3:20am
Subject: Re: Re: Worried about this symptom buddy9144
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The last day I took a Levaquin, my whole body burned from the inside
out. I felt like I was on fire. It left me with the feeling of having
a bad sunburn. My back and arms were red with a rash for 3 weeks. It's
slowly getting better for me but I still have to wear soft shirts that
don't irritate my skin. As for the shakes, I was tremmoring very badly
for several weeks. Now I mostly just tremor at night when I'm asleep
or half asleep. Since March 04, I was on cipro for 3 months, tequin
for 1 month, and had 4 short rounds of levaquin before I realized it
was the drugs causing all my problems ( I had lyme disease and thought
my ADRs was the lyme). I've been getting much better in just 8 weeks,
so have faith that you will get better too! Some things that have
helped me are: drinking lots water, fish & evening primose oils, mag &
calcium, phosphatidyl choline, lipoic acid, b12 (specifically
Methylcobalamin), and massages. Hope this helps!
cellolang <cellolang@...> wrote:
Sally,
Don't feel alone. Last weekend, after having been off Levaquin for
about a month, both of my arms felt like they were burning from the
inside. The pain went from my elbows to my wrists, on the inside, as
if it were nerves or something...
It finally went away after my doctor put me on a different pain
medication.
Jennifer
22077 From: "hjvander" <hvandeventer@...>
Date: Sun Feb 27, 2005 9:15pm
Subject: Re: Joint/muscle pain experiences hjvander
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Yes, I have a lot of my joints making constant popping / cracking
sounds. I'm about 7 weeks out from taking 2 doses of Levaquin (was
also on Prednisone). It's mainly my ankles and knees that "pop" a
lot, but occasionally my elbows and shoulders as well. When the
joint pain is real severe, they also feel like they are burning.
22076 From: "Debra Morse" <debm@...>
Date: Sun Feb 27, 2005 8:41pm
Subject: Re: Shingles? wildreader2000
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Well, I can also answer to this one as well. I had shingles two years
before
I was floxed and I can tell you that the burning in my right hip was
absolutely
NOT shingles. The type of burning pain I experienced in my hip was
NOTHING
like the burning, stinging pain of the shingles! Nor was the pain of
the shingles
ever deep inside my body. My shingles pain was confined to being just
under
the skin in a band from my spine around to my middle front on the
right side.
And, as for the rash, it took my doctor two weeks to decide that I
actually
had shingles because I only had 3 or 4 tiny little red spots that
resenbled
a rash with my shingles too!
Debra
22075 From: "Debra Morse" <debm@...>
Date: Sun Feb 27, 2005 8:32pm
Subject: Re: Question wildreader2000
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Hi,
When I was floxed with Levaquin in May, 2003, I had a problem with my
right
hip joint feeling like it was on fire deep in the hip socket. This was
almost
always at night, particularly if I tried sleeping on my right side. It
sometimes
occurred during the day but not often. I took almost a year for that
symptom
(among many others) to finally disappear.
22074 From: "Dachman" <dachman@...>
Date: Sun Feb 27, 2005 6:43pm
Subject: Re: Joint/muscle pain experiences Dachman
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Curious
Did your joints pop alot? mine do all the time now
and has this resolved for you over time? Others experience are
appreciated as well
I'm 8 weeks out now
David
22071 From: "Dachman" <dachman@...>
Date: Sun Feb 27, 2005 6:28pm
Subject: Re: One other thing that helped Dachman
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Layne
I know I have to hang in there but it is very difficult
right now I feel so terriable all my joints are hurting and pop and
along with the other symptoms eye pain,numbness,circulation problems
in fingers and toes at times,chills, etc it makes it hard to stay
positive I wish I was further out because time seems to be one of
the major influences to recovery. I will look at doing some massage
but I feel it will have to be fairly gentle to see how it goes I
dont want to break something which feels like a possibility the way
I feel currently quite fragile.
David
22069 From: "avalonsands" <avalonsands@...>
Date: Sun Feb 27, 2005 6:10pm
Subject: Re: Joint/muscle pain experiences avalonsands
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Hi David,
I think physical therapy is probably worth a shot regardless of the
exact mechanism underlying the joint/muscle pain(s) that you have. See
the reply I sent to Emi about back pain a few minutes ago.
A number of people here have been told they've developed a
drug-induced fibromyalgia. Fibro remains an ill-defined disorder but
there seems to be general agreement that exercise is indispensable in
dealing with it. Today I'm very much aware that I haven't managed to
get to the gym the past five days--my hips, glutes and hamstrings are
killing me. I get the feeling that one of the pre-eminent challenges
to us with fluoroquinolone ADR syndromes is to locate that fairly
small window of therapeutic exercise that doesn't put us in too much
danger of rupturing tendons. I use pretty modest weights and back off
of anything that causes a sharp or well-localized pain.
I am into my eighth month since being floxed and I am hopeful that the
worst of my resultant musculoskeletal problems is past, I feel like
I'm coming down the far side of the bell curve, but it's probably a
little too soon to judge that.
A.
22068 From: "avalonsands" <avalonsands@...>
Date: Sun Feb 27, 2005 5:57pm
Subject: Re: back pain, stomach upset. help avalonsands
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See if you can get your doctor to refer you to physical therapy, or
get to an orthopedist who will do that for you.
About three months after being treated with Levaquin and Cipro I
suffered two spinal compression fractures (at age 52, which is young
for that). I believe they were precipitated by the weakening effect of
the drugs on my spinal support structure, an effect that my
orthopedist acknowledged. After the acute central thoracic back pain
went away, I developed a painful spot just to the right of the spine
that made it very difficult to do anything that required standing up
for more than 30 to 45 minutes; I also had chronic soreness across the
back that caused pain whenever I bent or twisted. The orthopedist,
somewhat skeptically, wrote me a prescription for PT. I couldn't go
during the holiday season because I wouldn't have been able to
schedule the appointments close enough in time for optimal effect. I
finally got started about a month ago. The first two treatments almost
seemed to make matters worse, but the third one was the charm. My
course of treatment was interrupted when I lost the use of my car for
a while, and it's not finished yet, but I am about 80% better than I
was, as far as back pain goes. I'll save the other stuff (which lately
includes dizziness) for another message ;).
I wish you the best of luck, believe me, I know how upset you must be.
A.
22067 From: "Mark & Kim" <starrenz1963@...>
Date: Sun Feb 27, 2005 5:47pm
Subject: Lavaquin Reactions. starrenz1963
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I had a really weird reaction to lavaquin. I had the shakes all over
my body and especially my shoulders for over a 2 years. I had a
problems focusing and shakiness with my sight. If I worked my
muscles to hard they would strain and hurt. It's has been three
years and I am finally back to normal. I don't care with anyone says
there is something wrong with that drug.
22065 From: "pttmnlyn" <laynepittman@...>
Date: Sun Feb 27, 2005 2:43am
Subject: Re: One other thing that helped pttmnlyn
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Hey David. Yes, please hang in there. You know what, i really didn't
have muscle aches
just really bad joint pain. But it just made sense to me that massage
might help get the
toxins worked out of wherever they had settled. And i think it did
help alot. For a while i
couldn't even put my 3 year old's velcro shoes on. I couldn't make a
fist, had no strength
in my hands and my joints were killing me - my fingers, wrists, ankles
and feet were
extremely painful in the mornings and would get better as the day wore
on (sometimes)
but now, my joint paint is much much better. in fact, i had a full 7
day run without ANY
joint pain a week or so ago. Then like an idiot i started feeling very
brave and ate some
lasagna with meat in it. As a result, my joint pain is back but very
mild. It just takes
along time to get this crap moving out of your system. so, im a big
believer in staying
away from the meat. as far as numbness.... not really. maybe a little
in my hands. hope
that helps. keep me posted on how you are doing.
22064 From: "medication_problem" <medication_problem@...>
Date: Sat Feb 26, 2005 11:36pm
Subject: Re: back pain, stomach upset. help medication_prob...
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Hi All,
I took just one tablet of levaquin around four weeks ago and since
the past two to three weeks I have been getting pain in the area
where the lower abdomen meets the thigh on both legs,some times its
very bad and I feel a lot of pain while walking but sometimes its
not there.Please let me know if anybody had something like this.
regards,
jim
22121 From: "emibustillo" <emibustillo@...>
Date: Wed Mar 2, 2005 6:21pm
Subject: Re: To emi emibustillo
Hello,
I very much hope that my problem is due to quinolones now. coz this
is very strange. the only thing that I know is that apart from
having a Urine track inf, I had nothing wrong with me and the day
that I took the cipro I got ill and I have never been the same
since. today for exsample I have my back pain as well as my stomach
pain in my right side. if I keep feeling like this I will go to the
Doctor again, but I dont want them to do to much exsams if in the
end it would be just the quinolones.
Probably what you had was from the cipro as well. doyou still have
the stomach problems???? did they dissapear ? how long did it take?
Thanks for replying ,
Emi
22120 From: "hlnczn" <acenzi@...>
Date: Wed Mar 2, 2005 6:06pm
Subject: 4-1/2 months and still waiting hlnczn
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It's been 4-1/2 months since I was poisoned. 10 days of levaquin
and my entire life has been changed.
This past week I actually felt good for two days. But today
I feel just like the first day of poisoning. I have tried to think
of what I did different or what I ate that was different and I just
don't know what happened. It's very depressing. I have been reading
the posts and so many are feeling almost 100%. It gives me such
hope when I read them but today I don't have much hope left. I'm
very tired and very angry. Ortho=McNeill sent me two letters asking
me to sign a medical release form. I e-mailed them and told them
that the only thing I will sign is a check from them to help
compensate me and my family for what we've been through. And
truthfully, money really won't help. I just want my life back!!!
22113 From: "avalonsands" <avalonsands@...>
Date: Wed Mar 2, 2005 6:23am
Subject: Re: Joint/muscle pain experiences avalonsands
Before being floxed I was no stranger to joint-popping, but it was
only after Levaquin/Cipro that I experienced popping in my spine,
which I find especially unnerving.
22112 From: "KKelley" <karol61@...>
Date: Wed Mar 2, 2005 6:07am
Subject: Levaquin side effects kkelley111
After taking 2 different antibiotics for a sinus infection, the
infection returned so my doctor decided to put me on Levaquin/500mg
for 14 days. I thought it would be like any other antibiotic but on
the 9th day I started feeling unfocused and having a slight rash. I
called my doctor and at first they wanted me to stay on it and I
said I couldn't finish my dosage. Nine days later I had blood work
done for a physical and my blood sugar levels were very high(first
time ever) and then I started having severe pain on the bottom of
both feet and in my calves. Then the joints in my right fingers
starting hurting. I finally decided to investigate this drug and
discovered that these are all symptoms. My doctor didn't say a word
to me and actually ignored my symptoms.
I have been off of this drug since February 5 and my symptoms come
and go. I just want to find out how long I can anticipate my
symptoms lasting and wish I could contact the drug company or FDA to
let them know the seriousness of this drug and I don't feel that my
doctor explained the dangers to me.
I would like to hear from someone who has experienced this also.
22109 From: "Dachman" <dachman@...>
Date: Wed Mar 2, 2005 0:09am
Subject: What can you eat Dachman
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I'm in the ninth week after being floxed and I have a large amount
of symptoms muscle twitches,joint/tendon pain, eye pain floaters
more then I had before,bowel disorder ,urinating all the time,dry
mouth etc......I'd like to know what others are eating as a diet and
what supplements.....I know about the mag/calcium and I've seen
alpha lipoic acid and omega 3 fish oils also I try my best to eat
organic
sincerely
David
22107 From: tailsclown@...
Date: Tue Mar 1, 2005 3:41pm
Subject: To emi aeroclowngirl
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I was at my doctor yesterday and realized that I had taken a full
course of
Cipro in 2002! After this I developed GERD and esophageal problems,
Had
colonoscopy, scope down the stomach, abdomenal CT... Drastic changes
in diet
helped me. Then this past Nov/Dec I got bronchitis, went on the Z pack
first and
didnt' get rid of the bronchitis so the doc prescribed Avelox. I got
violently ill with the avelox. I took 2 doses. Now I have the
neuropathy, the
tremors and joint pain... etc. Like opening Pandora's box with the
avelox. But
I never saw the relationship between the Cipro in 2002 and the stomach
problems that followed! I only put those 2 things together yesterday.
Am I mad???
If only I knew. If they don't find the cause of your stomach problems,
it's
probably the quins. In which case, diet and doing all that we need to
do to
detox the quins will ultimately heal the stomach as well i assume.
Sally
22101 From: "emibustillo" <emibustillo@...>
Date: Tue Mar 1, 2005 4:37pm
Subject: after a month of cipro, stomach pain, back pain...
emibustillo
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Dear all,
after a month of having taking the Cipro(only 3 pills) I can sleep
better, Im not feeling as dizzy as I did 3 weeks ago. alltough I
still have a feeling of unwellness. I have back pain on my right
side, and also have very bad stomach pain, on the right side too. I
also have been experiencing black spots on my left eye, as well as
dry mouth.The doctor send me to take a CT scan to see if there is
some thing wrong, but I have the feeling that is due to Cipro,
everyone thinks im crazy that im just stressed and that it cant be
the Cipro. even my family do not belive it anymore. I went to a
Gastroenterologist and he send me some pills that are not working at
all, also whent to an Nefrologist and he does not think is the
kidney.
I just know that I feel sick, weak and that nothing is helping .
has some one experience back pain as well as stomach pain??? is like
my stomach is full of air. 3 days ago I waked up having to pee every
15 minutes and having a terrible disconfort feeling.
helppppppppppppppp me pls
22100 From: tailsclown@...
Date: Tue Mar 1, 2005 10:49am
Subject: To Joy aeroclowngirl
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Joy,
My doc said that the burning Is the peripheral neuropathy, though...
it's
not really "peripheral" when it's also located in the chest, stomach,
lower
abdomen. I have a obgyn visit this month but I'm closely monitored
cause I had
surgery on my cervix last Sept. (atypical pap) I saw my doc yesterday
and I
gave him all the info on quinolones and was really sympathic and said
he'd read
all the material. He knew immediately about the tendon rupture side
effect
and his comment was that I was the first person he's met that had the
neuropathy side effects. So... He's sending me to physical therapy and
I feel that
he's on my side. Hopefully he'll be an allie in my struggle.
I found out that I had Cipro in 2002!!!!!! Didn't know this! And all
my
stomach troubles started after that! Go figure!!!! Never put the two
together.
So, when I took the Avelox in Dec 04 I think I let the genie out of
the bottle.
If only I had known...
sally
22152 From: Blue Balloon <redwhiteblueballoons@...>
Date: Sun Mar 6, 2005 0:42am
Subject: Re: Re: Complete Recovery - Final Message redwhitebluebal...
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I had that (neck/shoulder pain/tightness) crop up after five months.
In my experience, and I took Cipro and I know you didn't ask me but
I'm just trying to be helpful - but in my experience, new symptoms
came and went over the whole course of this post-floxing. Some things
would improve or go awya for a while only to find another new symptom
cropped up. I can't even remember what they all were offhand, but lots
of odd things. The upside though is at least some of the things did go
away. How do I know they were from flox? I didn't have these things
before and it's all too bizarre the types of things going on. I mean,
we each KNOW our bodies and know what's normal.
So maybe the newer ones (side fx) will dissipate in time too. The two
things that haven't gone away is the CNS damage, meaning less
sensation and things not quite working right, and the aching backs of
the ankles. SOmetimes it feels like a rubber band pulled WAY too tight
and other times I can feel it sort of shredding, but they ache
constantly. So far no major SNAP, but I have been REAL careful. (My
life is like a 90 yr old's).
Someone from J & J really needs to tell us at least, WHAT is happening
to us, and WHY.
Isn' t that the least they owe us?!
medication_problem <medication_problem@...> wrote:
Hi Michele,
I took just one tablet of levaquin more than four weeks ago and
since the past one week I have been experiencing tightness in the
neck and shoulders,it wasn't there for three weeks after I took the
levaquin.Can the sideeffects appear even after three weeks,please let
me know.
Jim
22148 From: "lableslea" <leslea@...>
Date: Fri Mar 4, 2005 4:30pm
Subject: Found Help for Nerve Pain lableslea
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Hi Everyone,
My physical therapy didn't help because of the neuropathy (I still
go to the pool for the exercise, it doesn't help, but it doesn't
hurt since there is no weight bearing and I want to keep my muscles
in shape), I couldn't tolerate the Neurontin because I cannot stay
awake on it. He has now put me on Gabitril similar to Neurontin.
After just one dose I had great improvement, now two weeks later, my
pain has gone from 7-8 on the 1-10 scale to 4-5 (my tendons still
hurt in my hips, knees and shoulders). My ortho is a good man and
listens to me and treats me with respect, I hope everyone can find a
doctor to listen and believe their pain is from an ADR. It took me
12 months to find someone willing to help, my GP believed, but was
just out of his element. My ortho is researching my condition and
trying to do whatever he can to reduce my misery. So everyone keep
plugging and have faith and hope, I am now almost 15 months post
Avelox. I still have loads of symptoms (eye twitching, floaters,
depression if I miss my med, but just to have the nerve pain reduced
is such a blessing. So with the help of Lexapro (helps depression)
and Gabitril (nerve pain) I feel on the mend. I post to give
information and hope that might help someone, so I hope I accomplish
that. Leslea
22145 From: "Michele Ruffin" <ruffin@...>
Date: Fri Mar 4, 2005 7:32pm
Subject: Re: Re: Complete Recovery - Final Message ruffin144
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Brian,
Fellow twitcher here. We have talked before. I am 10 months out. I am
still twitching and having weakness in my arms. Three days of driving
seemed to trigger the weakness in arms. Now when I use them repetively,
they seem to tremble. My twitching was better, until the past week. It
comes and goes (never goes away, just less at times). I feel I have
lost
muscle mass. I have decided to start walking, now that I can. My feet
and
calves still bother me too. But, I can walk (just not on incline).
Do your muscles get tight? Mine are tight in the neck and shoulder
area
right now. I did eat chicken last weekend and now I feel worse.
I don't know anymore. Just when you feel a little better, WHAM, it's
back.
I know you can and Gary can relate, since you twitched the whole time
as
well. I still worry about some underlying muscle disease. Guess if I
am
still walking next year, it was the Levaquin.!!!!!!
Michele
read more about Rx pills too in my opinion.
I wish someone would set up a website or at least a list FAQ covering
what we discover along the way... would help newbies and "oldbies" too
I think, as well as conserving precious energy covering the same
questions over & over in here........ What does the group think????
22132 From: Blue Velvet <aunt_heap@...>
Date: Fri Mar 4, 2005 1:05am
Subject: Re: Nerve spasms aunt_heap
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To answer the 1st person's question, for any type of CNS or nerve
problems I think you would go to see a neurologist. Just don't be too
upset if they don't help or believe you. I mentioned Cipro & after
that he treated me like a mental patient. I was trhere too early into
this for much nerve problem to show up on the VERY rudimentary types
of tests they have. (They scratch your foot a little, and put a needle
in and then put electricity thru your nerves. But they don't listen
when you tell them, I'm not saying my function is GONE just really
altered and lessened) In other words I couldn't feel normally on my
skin, lost a lot of sensation, but that doesn't matter with them.
Doctors are used to seeing really bad cases so if you go in and tell
them you aren't ticklish any more or can't feel things normally or
your skin feels like rubber they look at you like you grew another
head.
In other words to anyone new I'm saying don't be surprised/upset if
your Doctor does not believe you. They are boneheaded as it gets.
They have usually not even read the pkg. insert, yet we've done
research and they still don't want to believe us. SO we usually get no
help from Dr's at all. When abnormal results do show up they never
want to believe it is from Cipro and do not know what to do about it
anyway.
I just wish word wouild get out about this poison since prevention is
the only real "cure".
But maybe you will get a good Doctor so it's worth a try if you want
to... I just wanted to warn you cos in the middle of my intense pain
and sufferinng to be told to see a shrink and it was in my head only
traumatised me more. It was NOT in my head.
I have since been diagnosed with peripheral neuropathy - so it was
there, just not there enough early on to show up on their tests. I
haven't taken other pills so it was not any other pill that caused it.
It all began with that stupid Cipro. But you can bring in stats and if
they bother to look they still will not believe it. If the drug co's
don't tell it to them they won't believe it. Of course the drug co's
have their own agenda namely billions of $$$$ to be made.
Good luck with it, I truly do mean that.
Dwight Ruffin <ruffin@...> wrote:
What kind of nerve spasms are you talking about? Do you mean muscle
twitching or irrated nervousness, like when you drink too much coffee.
I have had muscle twitches for 8 months now. They usually start when I
wake up. They continue all day until I go asleep. Sometimes they are
better. I think certain things I eat or drink make them worse.
They are maddening. I am 8 months out from Levaquin 500mg--7 pills. It
really caused a lot of problems. Starting with muscle pain and
twitching
and numbness.
I am having a lot of weakness in arms and legs and chest muscles right
now,
with twitching.
Good luck.
22129 From: "Jay Davis" <jerry.davis@...>
Date: Wed Mar 2, 2005 10:45pm
Subject: Complete Recovery - Final Message jay_davis242
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Hello all, I don't come back here often anymore, and even less post
but I wanted to post my story for those new here to offer some hope.
In 2001 I took 6 weeks of Levaquinn (500mg Once a day) over a three
month period. Two 3 week sets, then I took 2 weeks of Cipro, and
another week of Levaquinn. On July 15, 2001 the wheels starting
coming off my body, I was 32 years old. I had massive tendon pain,
hands, shoulders, elbows, back, neck, knees, calves, and every part
of my feet and toes. I also had crazy eye pain, anxiety like you
would not believe, and a host of other issues. Like elevated liver
enzymes, high blood level of uric acid. Over the next 12 to 18
months symptoms would come (new ones, like a gout attack) and some
would disappear for a day or so. The first week my wife thought I
was crazy, as I was acting like a crazy person. Could not sleep, and
when I did I would kick the sheets to the point of tearing them into
shreads. She asked me to go so a psych. doctor which I did, I was
reluctant to talk to him but every symptom I was having was in his
PDR and other medical books. He put me on ativan, and informed by
doctor of what was going on. My doctor (Internist) did not know what
to do, so I ended up at Shands at University of Florida and went
through them. Again they recognized the symptoms but there really is
no treatment. I was put on Oxycontin, muscle relaxers, and other
stuff I don't remember. I also started PT and this did help. One of
the key identifiers for me was a Pisyologist (spelling is wrong)
conducted range of motion tests, and they could not get 15 degree's
out of my legs (normal is 90). I saw a neurologist, luckily
everything was ok. I had a bone scan (my joints were ok), which was
good. For a year I dealt with crazy stuff pumped up on Oxycontin and
Ativan. Finally after 14 months I moved to Duragesic Patchs. I was
basically a walking zombie, the pain was killed but the dosage had to
be increased about every 3 months. I did over 180 sessions of PT,
had two massages a week, and tried to stay as active as I could. At
the three year mark, I was getting dope sick from medication and
decided it was time to try another route. I checked into the pain
and rehab clinic in Miami and stayed there for 5 weeks. They put me
thru hellish rehad with 4 hours of PT a day, 4 hours of OT a day,
weight training, walking, biofeedback, it was hell. Plus they had me
detox. When I got out in June of 2004 I could barely walk. Over the
next 8 months I swam as much as I could, sat in hot tubs, and spent
time with my family. Now at almost the 4 year mark I can trully say
I feel back to normal. My flexability has comeback (with a lot of
work), I'm building muscle strengh back (working out) and I'm
enjoying life again. Two to three years ago I thought my life was
over, but with time I did heal. My liver functions went back to
normal, the crazy muscle twitchs ended, along with everything else.
I had floaters as well and they have gone away. I never had ear
problems, or lost my vision, I'm still 20/20 in both eyes. During
this all I was on the following meds at one time or another -
Oxycontin, Ativan, Valium, Klonipin, Neurontin, Baclofen, Paxil,
Zoloft, Lexapro, Wellbutrin, Duragesic Patches (fentyl), OxyIR,
Hydrocodone (pure not mixed), Oxycodone (with is what OxyIR is but
this was another pill), Bupernorphen, and various sleep medications
(Sonata, Ambien). I also took a lot of supplements to many to name.
A total of 1290 hours of PT. Total cost out of pocket for me was
$285,000.00. And that's my 20% PPO deductible plus other things not
covered. I never sued, looking back I probably should have but I had
a lot of caring doctors. I would have had to go after the
manufacturer, and that probably would have cost me at least
300,000.00.
Here are somethings that worked for me but everyone is different.
Getting into to see the right doctors is extremely important. Many
PCP or family physians are not able to diagnose or deal with the
symptoms. I found a lot of help by seeing medical professionals
associated with large University's. Infectious disease MD's seem to
be very knowledge able about this, especially one's associated with
the VA. You would not believe the number of people with these
problems there. If you think FQ's are bad, try Lariam. I talked
with one doctor that thought in the early stages (under six months)
Depakote could be used to rebuild the GABA receptors. As the
affinity for attaching is extremely strong attaching a carboxyle
group. There are a lot of theorys on this especially concerning the
third and fourth generation drugs like Avelox and even levaquinn. I
don't know how many out there has studying the chemical structures
but the ring structure of Avelox compared to Cipro is much larger.
One idea to help many people out would be to raise money to "hire" a
researching facility to study the effects and possibily work on some
kind of resolution. Killing the pain got me out of the house, and my
mind on other things. I would go thru periods of good and bad. The
biggest mistake I made was during the bad I would just stay at home.
This caused additional muscle atrophy, depression (like it wasn't bad
enough), anxiety, and a bunch of other mental stuff. Stay active the
best you can does help in the long run. Also regarding supplements
watch what your taking. Magnesium is highly tauted on here but with
me this made things worst, especially in large doses taken at once.
I had my blood level tested and it was extremely high (magnesium
level). I believe it's better to eat foods that are high in the
various vitamins and minerals. Plus supplements are drugs and should
be regarded as such. I never did eat chicken so can not comment on
that. Living on the coast in Florida seafood has always been a large
part of our diet. I also did not have any problems with beef or
pork, although I don't each much of either. I do eat farmed catfish,
and tilapi. But the only ADX approved for use in aquaculture in the
US is oxytetracline and tetracyline derivites. There are others in
out of country items like tiger shrimp, but I never have seen any
report they contain fq, but they do contain other ABX's that are
banned in the US. I got all that information from several of the
seafood importation inspection area's that test incoming food. They
also explained that Batrin is not approved for aquaculture in any
country including ours, so I doubt anyone is going to throw Cipro
into water considering the price, plus the water based life is
suseptable to entirely different pathogens then land based. Again
everyone has a different opinion on food, this is simply mine. I
took a lot of interest in this whole thing as I have a chemistry
degree and wanted to study this whole affect. Also there are labs
available that will test food for ABX's, the one that Maverick meat
uses is expensive but will do it. You simply send a frozen sample
plus the fee, which was 530.00 in 2003.
Anyway I'm back now to doing the things I used to do, a lot of water
sports, horse back riding, and working around the house. I'm back
flying again. I never was a big runner unless chased, but I do feel
I can start surfing again when the water warms up, which is huge
considering how bad my calves and ankles were.
Good luck and God bless to all. If I can be of any additional help
to anyone I can be emailed at jay.davis@....
Jay
22128 From: "greghagerman" <greghagerman@...>
Date: Thu Mar 3, 2005 10:37pm
Subject: Re: p450 enzymes, testing and more greghagerman
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I basically had two floxings, 1998-Cipro and 2003-Levaquin.
In 1998 what thought was a case of giardia was treated with Cipro,
while on it (10 days), i was severely nervous and could barely
sleep. Took all 20 pills of the 10 day Rx. In subsequent weeks my
immune system started acting funny..got a random staph infection then
when I tried to exercise I had some numnbess on the skin on y face
and part of my hands. June 21st, 1998 after about 3 months after I'd
taken Cipro I woke up feeing somewhat like I'd had about 5 drinks of
alcohol, maybe more. The analogy isn't perfect but it is/was a
foreign type of 'daze'. Seeing stars and all my skin had lost enough
sensation to where EG i can't feel sunburn, couldn't feel a comb
running across my scalp. Fatigue, memory, concentration problems.
Although the timeline for the Cipro is a little loose, I'm betting it
caused the CNS problems.
Over the next 5 years they discovered I had some food allergies and
(they still can't agree if I have also a mild case of Crohn's or
something) so I have a strict diet and still have some degree of
stomach upset each day. In the months following the June 1998
incident I got somewhat better over 4 months or so then hit a
pleateau in regards to improvement. Never made the connection that
Cipro may have played a role in all this, they weren't sure what to
make of it. A high ANA level showed up at some point so they thought
I had Lupus, possibly Lupus in the brain, but that was only loose
spculation, essentially no doctor had a firm or even probably
diagnosis.
Feb 2003 I take Levaquin for a suspected sinus infection. Within
hours my anxiety was going through the roof and I could barely
sleep. This time much worse than the Cipro. I didn't make an
immediate connectioin since I was changing antidepresants during this
time period. However, looking at my medical diary it pointed much
more to the Levaquin. Ever since then I've had heightened anxiety,
depressive problems, insomnia, lost complete interest in sex and
other things too.
Currently, what has persisted to a significant degree since June 1998
is a "brain fog". I know this term is used loosely and may mean
different things to different people but it is like having an
unpleasant alcohol buzz. My memory, concentration and coherency is
affected, so every waking moment seems surreal, I feel very
detached. I see stars almost constantly and an MRA of the brain
partially suggests there may be a blood floow problem in the brain,
but Neurologists dismissed it as 'normal variation'. A doctor at
Emory felt confident I had inflammation in the brain ad blood vessels
to the brain stemming from an auto-immune problem. Also, ALL my skin
has lost a certain degree of sensation. i can't feel sunburn.
Scratching my skin doesn't feel normal. In sum, that's it.
22125 From: go595@...
Date: Wed Mar 2, 2005 9:42pm
Subject: Re: Levaquin side effects grego595
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Hi, sorry to hear you've had this reaction, but you're not alone. My
experience with Cipro and Levaquin (same class of drugs) was a very
similar reaction.
Joint pain, peripheral neuropathy (burning pain on legs, head, neck),
anxiety
attacks, severe headaches and they lasted over a year!. Don't despair
though,
it will get better:) Hang in there and keep checking the posts on this
group
for support. All the best.
Greg
22182 From: tailsclown@...
Date: Wed Mar 9, 2005 5:19pm
Subject: Re: hel me pls aeroclowngirl
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This happened to in 2002 after taking Cipro. I just realized this
since my
recent episode with Avelox. Found the Cipro in my records and realized
that
my stomach problems happened after that! I had pain on my right side,
in my
back too. Also reflux and esophageal spasms. They put me on GERD meds
but I
had bad reactions to the meds. They gave me a colonoscopy, scope down
the
stomach, stomach emptying study and then recently a cat scan of my
abdomen. They
found nothing but a little erosion in my lower esophagus. What I did
in those 2
years was to become a vegetarian, eat less, stopped drinking wine or
alcohol
all together and took acidophelis. I was feeling pretty good up until
Dec
7, 04 when I took Avelox and developed all the nerve damage. They
never found
out what the pain was, and didn't seem too interested in it! I used a
heating pad alot, but really watched what I ate. No fried or spicey
food. I don't
know why the Cipro could do this. And it may, still be a coincidence.
But
when I saw your post, I thought...hmmmm... this sounds too familiar. I
did get
better from that by diet though. Wish I had more to tell you, but I"m
at a
loss myself.
Sally
22181 From: "Betty Crawley" <beejay31@...>
Date: Wed Mar 9, 2005 8:35pm
Subject: Re: hel me pls bettycrawley
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If you are taking Cipro, and especially if you have kidney or liver
problems, PLEASE ask your Physician to change yu to another
medication. I can vouch for the fact Cipro is a dangerous medication
-- AND it should only be given to individuals with Kidney problems if
"it (Cipro) is the DRUG OF LAST RESORT -- after other medications have
not worked. If an individual has kidney problems and MUST take Cipro,
they should be hospitalized and monitored closely. I speak from
experience.
emibustillo <emibustillo@...> wrote:
HELPPPPPPPPPPP ANYONE,
I have back pain on the right side , the doctors think is the
kidney, but everything started when I took 3 pills of cipro.
I have taking 100 test and everything comes out fine,
what can it be?? has someone experience back pain and flank pain
with some stomach pain.
help me pls .
Emi
22176 From: "Helen" <acenzi@...>
Date: Wed Mar 9, 2005 6:41pm
Subject: Re: Ear Problems hlnczn
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Hi, I have had ear problems since I took the first levaquin in oct
2004. I had tinnnitus immediately. Two week ago I went to the ent
and he said I had fluid in my middle ear. He tried to give me a z-
pak but I was afraid to take it. I went to an allergist to see if
he could tell me if I was allergic to the z-pak but he couldn't. He
checked my ear and said there was hardley any fluid and not to take
anything. He is the first Dr. to believe this was from the
levaquin. As I was telling him what I was feeling since taking that
poison, he was reading in his reference book and nodding his head.
I never had an ear problem in my life (I'm 60). The fluid is gone
so my ear isn't plugged anymore but the fullness in my head and the
ringing in my ears are just as bad as it was when I was floxed 4-1/2
months ago. It all felt better a month ago and now it's like the
first day all over again. What a nightmare. But I'm hanging in
there because there's hope from the postings I've read. I hope we
are better soon.
22174 From: "build_it95" <build_it95@...>
Date: Wed Mar 9, 2005 4:46pm
Subject: Re: hel me pls build_it95
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I'm going through the same now. I'm eighteen months "post-floxed".
--- In quinolones@yahoogroups.com, "emibustillo" <emibustillo@y...>
wrote:
>
> HELPPPPPPPPPPP ANYONE,
> I have back pain on the right side , the doctors think is the
> kidney, but everything started when I took 3 pills of cipro.
> I have taking 100 test and everything comes out fine,
> what can it be?? has someone experience back pain and flank pain
> with some stomach pain.
> help me pls .
> Emi
22170 From: "pttmnlyn" <laynepittman@...>
Date: Tue Mar 8, 2005 5:04pm
Subject: Re: Recovery Update pttmnlyn
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hang in there david. i am still better but having joint pain again for
the past two days. for
any females out there - it seems to return around the time of my cycle
for a few days??? go
figure. thanks for filling me in david. i wil keep up with you. i also
have been drinking
coffee and am going to be stopping that again.
oh and p.s. this is incredible. my husband had a sinus infection and
without even seeing
his doctor she called in levaquin. when i picked it up at the pharmacy
and saw what it was
i was like no no no don't take this crap. hahaha. he didn't and called
and made her call in
a z pack i think. anyway, can you believe that?
layne
22169 From: "Dachman" <dachman@...>
Date: Tue Mar 8, 2005 5:36am
Subject: Re: Recovery Update Dachman
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At nine weeks to tell you the truth I just don't know
Right now I feel numb desensitized all over I also have had a strange
tightness down around my ankle of my left foot which scares me about
tendon rupture. I have alot more floaters then I used to have and my
right eye is blurry with distance vision at times and pain in both
eyes but more so in right. I'm lucky in the respect that I can get
around with not too much pain must of the time but feel fatiqued and
weak without doing anything. I have an appt to see a nuerolgist on
Wed mainly to see if I can get some tests ie MRI and other run to
rule out strokes MS etc....So really I'm not doing all that well and
some times a whole lot worse then others so it's like cycling I would
say but I always have something going on but some times are definatly
worse then others.
I haven't really isolated what helps but I'm taking
some supplements and one thing that does seem to help the eyes is
Bilberry.
Thats all for now
My thoughts go out to all of you
David
22168 From: "Michele Ruffin" <ruffin@...>
Date: Tue Mar 8, 2005 1:15am
Subject: Re: Re: Complete Recovery - Final Message ruffin144
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Jim,
I would say, yes you could have this after a month or even longer. I
have
had a lot of lingering problems with my muscles for 10 months. Muscle
pain
(intense) was one of my first side effects of Levaquin. I did not
realize
it then, though. I finally called my Dr. crying from the pain in my
back
and numbness on whole left side of body and had 3 MRI's the next day.
That
would have been about 4 or 5 days after starting DRUG FROM HELL!!!!!
All
tests normal. I have suffered from vibrating, buzzing, electric shocks
and
twitching ever since. I would like to say, right now, my buzzing and
vibrating is better. The electric shock feeling was better months ago.
We
have to specify the right now's on this website, because it might
change
later on the same day. It is really a shame how we are forced to live
now.
For anyone who had hair loss like I did, it comes back. My hair fell
out
for 5-6 months and it stopped around Christmas and has been growing
back.
It's quite funny looking, because I have these 1-2 inch long hairs
sticking
up all over my head. Luckily, it did not all fall out---just very
thin. My
hair dresser was quite shocked about it all. She had to modify my hair
style to cover up the thinness.
I also still have numbness and pain in my feet at times. Cold weather
and
certain shoes trigger this. I am pretty sure my diet triggers things
too.
I recently had a bout with arm weakness. I had driven a lot for 3 days
on
business and had eaten chicken that weekend. I also had drank some
alcohol.
It seems something triggered pain and weakness. I decided to take MSM
and
calcium/magnesium supplements, which made it very worse. My twitching
was
wild for several days. I just can't take the supplements. I get worse
everytime I try them.
Hope this site helps you. Don't be too alarmed at the symptoms you
experience over the next several months. I would not exercise much for
a
while. I tried to when I was first floxed and have suffered damage to
my
shoulder blade area as a result. Weak tendons I guess.
Michele
----- Original Message -----
From: "medication_problem" <medication_problem@...>
To: <quinolones@yahoogroups.com>
Sent: Saturday, March 05, 2005 4:02 AM
Subject: [quinolones] Re: Complete Recovery - Final Message
22167 From: "garym52" <ggmab@...>
Date: Mon Mar 7, 2005 3:45pm
Subject: Re: Complete Recovery - Final Message garym52
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Brian,
When I relapse it is mainly muscle/joint aches and fatigue.
Sometimes, my twitching increases and so does the cramping but they
are always happening, even when I'm feeling good.
I'm still having problems with the ear, but I think it is just about
cleared up. I've got an appt. with the ent tomorrow, so I'll find
out then. Hopefully no more ab's or drops. This was a crazy deal.
Hope you are feeling better.
Gary
briandraver <briandraver@...> wrote:
--- In quinolones@yahoogroups.com, "pacokitty1" <pacokitty1@y...>
wrote:
Toni,
Sorry about your father. These fluoroquinolone antibiotics are
Poisons from Hell to the human body. They might have a purpose as a
last resort when the benefit of living outwages the damage thay they
can cause. As you can read from the thousands upon thousand of
posts in this and other forums, many of us have been battling the
adverse reactions so bizarre at times one doesn't know what to think
sometimes.
The first thing your father should do is to STAY POSITIVE. Start
taking calcium and magnesium supplements. It is a fact supplements
containing minerals like calcium and magnesium interact with the
quinolones and make them less potent. Unfortunately there are so
many bizarre symptoms that you don't get right away. Sometimes they
show up 6 and even 10 months later. Rupture tendons is one of
them. Pain and inflamation of joints is another. Hopefully your
father will not get any of these. Tell him to drink lots of water
preferebly distilled water. Stay away from chicken, and any meats
that is not antibiotic free. People in here prefer to eat an
organic diet. No one knows exactly how and why these antibiotics
make you feel so bad and give you so many side effects. I took 2
pills of Levaquin and couldn't sleep for about 4 months even taking
sleeping pills. Melatonin and Valerian Root help me get through
with at least 4 to 5 hours of sleep every day 'til I got my sleep
back after about 6 to 7 months. It also helped me with the terrible
anxiety and knots in my stomach. Most of the bizarre symptoms do go
away. Some will linger for a while and will cycle or relapse back
but many here have gotten better over time. Unfortunately, doctors
out there are so ignorant (unexcusable of course) and so arrogant
that you can tell them that you didn't have any symptoms until you
started taking this garbage and they tell you that is not possible.
(even though they ARE ALL LISTED AS POSSIBLE SIDE EFFECTS IN THEIR
PDR). Tell you father not to get discouraged if non of them
believes him. That is the story of the majority here. There are
very few doctors that actually believe it and try to do something
about it but trust me they are very, very, very, few.
Tell your father not to try to do any strenuous(sp?) exercise as his
tissue "might" have become briddle from the quinolones too. From
now on it is a long road to recovery but he eventually get better.
He should start taking acidopholus (sp?) or yogurt to replenish back
all the friendly bacteria that the cipro destroyed in his
intestines. Encourage him to eat as the body is trying to fight
back, but without proper nutrition it will be almost impossible.
Stay away from anti-inflamatories in case he starts to complain
about pains in in joints. They "might" cause more problems in a
long run. They are contra-indicated with quinolones. Even though
his last dose was about 1 month ago the particles of these posions
stay in your body even for years depending on the amount ingested.
These drugs should be banned from the market. They are worst that
the disease itself for many of us. Another important thing, TELL
HIM TO NEVER AGAIN take another antibiotic of the Fluoroquinolone
Family. From now on any medication he or you or your family get
prescribed, check it out on the internet websites where they list
all the possible side effects of them. NOT KNOWING IN ADVANCE is
what got us in the first place.
I hope this helps and let us know how is doing.
Brian
22164 From: "pacokitty1" <pacokitty1@...>
Date: Mon Mar 7, 2005 1:49am
Subject: Help! pacokitty1
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My father was on cipro for over a month for a prostate infection,
during the last half of treatment with cipro he experienced anxiety
agitation loss of appetite I'm sure that there is more that I don't
know about. he's been off of the drug for about a month he's lost 24
pounds from not having an appetite, he can't sleep and still has
anxiety, like I said I dont know what else he's going through I know
about the anxiety because he felt he could talk about that with me
because I have an anxiety disorder he's gone from an active healthy
working every day man to a person who is afraid to be alone and to
leave the house he is taking xanax which isn't enough. i don't know
what to do our family Dr is of no help. does anyone know who he can
talk to to get some help or how to get help what can he do? Thank
you for any information~
Toni
22158 From: "briandraver" <briandraver@...>
Date: Sun Mar 6, 2005 2:29pm
Subject: Re: Complete Recovery - Final Message briandraver
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Hi Michele,
It seems that we are in this for a while. I feel your frustration
about the twitching and the uncertainty. I don't get the thightness
that you talk about in my neck or shoulders now, I did have it a
while ago. Where I feel it is in the back of my right kneee. At
times I check the calf muscle to see if it is tensed up and it is.
It becomes pretty tight. Not often but when it does I feel like a
cramp feeling.
I don't know what caused my relapse but for about 4 days now I have
been feeling pretty bad. Not to the extent of the first time but it
is just scary to know that it can actually cycle again. The reason
why I said that I am doubting the food theory is because I haven't
had chicken or shrimp in a while. I don't drink caffeinated coffe
yet (although about a month ago I did drink a a cup for a day or
two) I did notice a little bit of nervousness back then but nothing
really bad. I have been drinking water, and I even stop taking the
calcium and magnesium at one point because I noticed (LIKE YOU),
that it seemed to be making my buzzing and vibrating symptoms a
little worse.
Even if it was something that I ate, it must take its time to give
you symptoms because the only things that I remember eating during
that period was tuna, eggs, potatoes, rice, french fries,
decaffeinated coffe, beef (I never had any problems with beef), and
a few other vegetables and fruits. I don't know what to do with all
of this. Some of the anxiety came back but very mild in a scale of
1 to 10 to being the worst, I'll say it's about a 1 1/2. Nothing
really bothersome just annoying. My overall state of mind and body
is another story. My physical strenght hasn't been affected since I
gained it back 100% a while ago. I still have pain on the right
side of my upper back but I don't need pain killers for it. My
phsycological state of mind is affected everytime the symptoms come
back or are made worse. I am sure everyone here goes through the
same.
I can only hope that whatever caused it this time will subside with
time again. I will be paying a lot of attention to what I eat, how
I feel everyday, what supplements I take, what exercises I do, and
what events affect me to try to pin point what triggers some of the
reactions. What do you think??
Take care and hope everyone here continues to feel better one day at
the time.
Brian
22156 From: "Sally" <tailsclown@...>
Date: Sun Mar 6, 2005 1:05am
Subject: Wondering aeroclowngirl
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Quinolones in and of themselves are a poison to us. But what if
particular "batches" were more lethal than others? How would anyone
know this? I have the bottle of Avelox still sitting in my medicine
cabinet. I was unwilling to throw it out in case a lab needed to
check them out. It's just a thought. I don't know if it's been
discussed before but I've been in contact with a chemist and this
thought crossed my mind. What do you think?
By the way, the terrible burning pain that I was having constantly
has subsided. I have more strength, but the pain in the joints are
back with a vengence. This is the most "either/or" condition I've
ever encountered. But I've had 4 functioning days so I'm grateful for
this small miracle.
Sally
22210 From: "missutiny" <missutiny@...>
Date: Sat Mar 12, 2005 1:13pm
Subject: Re: New Member/Victim of Levaquin missutiny
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had no idea, either. at the very least, should have been warned NOT
to exercise, not even mildly. have had, and still have, virtually,
every side effect (i.e. ears are ringing right now), and the ruptured
patellar tendons in both knees crippled me. not knowing what had
happened to me, virtually overnight, was like awakening in the
twilight zone, and then, a month ago, found this site, et. al. it's
been a long, torturous four + months, so far. my doctors have NOT
acknowledged my fluoroquinolone (levaquin) adr. you are younger, and
should fare better. learn patience, take control of your care, and
have faith...
lrzbrown <lrzbrown@...> wrote:
Greetings and my sincere sympathy to all,
I was prescribed levaquin for ten day along with steroids for a
severe sinus infection. I did not have any ADR's during treatment. I
am post treatment two months now.
I'm an average active guy 40somthing who jogs, worksout, tennis,
golf...just the guy next door. Fit and active and healthy lifestyle.
I began getting back into exercise about 2 weeks after treatment.
Within a week or two I began having muscle and joint pain in my legs
and achillies tendons that has progressivly gotten much worse. I
thought this was strain, but I had not done anything to excess to
begin with. I immediately stopped to give myself a rest. It has not
improved, but only gotten worse the last 3-4 weeks.
I now find it difficult to walk, stand or sit for any length of time.
Most of the pain is in my lower extremities, but I've had pain and
strange spasams in my hands, arms neck, facal tics..etc.
I went to my Gp this week and he explained that it could be a
reaction, but he was sceptical. He did a chem panel, CED rate and
some other test that I have not heard back on yet. Yesterday, I went
to the ENT who prescribed and told him. He was shocked to hear of
side effects this severe and was reasonably sure that the levaquin
was responsible. He told me he would do research and talk to my GP
and get back to me.
I found this forum a few days ago. I am quite sure you can imagine my
astonishment and despare at what I have learned in just these few
days.
I'm doing all I can from what I have learned here and I'll keep you
posted. Thank you,
22205 From: Rob Greebon <tsip19@...>
Date: Fri Mar 11, 2005 11:37pm
Subject: Re: New Member/Victim of Levaquin tsip19
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hang in there.
i'm a educator/coach, 35, used to run 5 miles a day
most days and was very active in a lot of things.
levaquin has given me the same side effects you've
experienced. my last dose was jan 7th after taking 3
rounds starting in october. today i was able to walk
about 4 miles (my feet were hurting, but at least i
did it).
when it first hit me my calves and thighs ached - in
early december - , my feet hurt like i had arthritis,
and my left hand/wrist hurt (tendons and muscles in
feet, knees, and shoulders). i ignored it at first bc
i figured it was just "getting back into shape" after
a bout with an infection. it just got worse and
finally i ended up missing work for a few weeks. i
stumbled on this board sort of on a fluke - just
taking stabs in the dark and trying to figure out what
was wrong (i tried several doctors and had a myriad of
blood tests/cat scans and everything was negative).
i've tried to follow the suggestions on this board,
and i've beeng slowly (very slowly) seeing signs of
improvement.
my feet now feel like they've got plantar's fiscitis
(i know bc i've had this in my right foot a few years
ago from running)).
about two weeks ago the aches in my thighs and calves
slowly went away. i still have pains in my tendons
around the knees and my feet hurt after walking (and
in the mornings when i wake up) but i don't notice
them like i used to.
the biggest pain now is the ache in the back - almost
flu like with some muscles strain thrown in - but it
comes and goes. it is non-existent in the mornings,
but gradually comes on slowly as my back muscles get
tired as the day goes on. i've tried working out with
light weights for the upper body, but that made my
back really unhappy... felt like i had pulled every
muscle back there.
anyway... just know you are not alone.
like you've probably read here, recovery is measured
in weeks/months and not days. still, i walked for over
an hour today. i could not do this a month ago. i got
overzealous and i did upper body weights a few days
ago and my back reminded me i'm not ready for that
yet. one of these days i'll be able to run again. i
wish you the same recovery. just be disciplined about
food and give your body time to rest.
email any time if you have questions.
hope this helps.
rob
22203 From: "lrzbrown" <lrzbrown@...>
Date: Fri Mar 11, 2005 11:06pm
Subject: New Member/Victim of Levaquin lrzbrown
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Greetings and my sincere sympathy to all,
I was prescribed levaquin for ten day along with steroids for a
severe sinus infection. I did not have any ADR's during treatment. I
am post treatment two months now.
I'm an average active guy 40somthing who jogs, worksout, tennis,
golf...just the guy next door. Fit and active and healthy lifestyle.
I began getting back into exercise about 2 weeks after treatment.
Within a week or two I began having muscle and joint pain in my legs
and achillies tendons that has progressivly gotten much worse. I
thought this was strain, but I had not done anything to excess to
begin with. I immediately stopped to give myself a rest. It has not
improved, but only gotten worse the last 3-4 weeks.
I now find it difficult to walk, stand or sit for any length of time.
Most of the pain is in my lower extremities, but I've had pain and
strange spasams in my hands, arms neck, facal tics..etc.
I went to my Gp this week and he explained that it could be a
reaction, but he was sceptical. He did a chem panel, CED rate and
some other test that I have not heard back on yet. Yesterday, I went
to the ENT who prescribed and told him. He was shocked to hear of
side effects this severe and was reasonably sure that the levaquin
was responsible. He told me he would do research and talk to my GP
and get back to me.
I found this forum a few days ago. I am quite sure you can imagine my
astonishment and despare at what I have learned in just these few
days.
I'm doing all I can from what I have learned here and I'll keep you
posted. Thank you,
LZ
22195 From: "cjt2202" <cjt2202@...>
Date: Thu Mar 10, 2005 10:38pm
Subject: Re: Ear Problems cjt2202
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My experience is nearly identical to "Hjvander".
Never had an ear problem before Levaquin. Now, ear pressure, pain on
occassion, ears feel plugged, varying degrees of tinnitus. And just
recently. dizziness with headaches and neck aches.
I attribute all this to levaquin, but can't be positive.
Good luck,
Rick
22194 From: "BIL and LARRY" <woodbil@...>
Date: Thu Mar 10, 2005 6:10pm
Subject: First time post bearmenus
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Hello all I joined this group because I discovered it because of a
illness I had at the first of the year. I was diagnosed with
Diverticulitis after ending up at hospital doubled over and feeling
like I was being ripped in 2.
I was put on Cipro for 2 weeks and I took the whole course of the
drug.
I have been feeling run down every since. I also have been very
Dyslexic since I took this medicine. I used to never have to run
spellcheck now I have to run it all the time. I am constantly
swapping letters when I type and have to double check and recheck my
work because I always miss the mis-spells even while looking at them
the second time. I am a 41 year old otherwise healthy man. I just
wondered if anyone else has had these issues with these drugs?
The only thing I have found that clears my head and helps me out
these days is Red Bull Energy drink. I started drinking it because
its loaded with Taurine a amino acid that helps promote the
production of digestive acids and is loaded with a few other things.
That help with the detxoification of the body. While I understand the
jolt I get comes from the 80mgs of caffine in each one. I can
honestly say I believe it helps me in many other ways that last long
after the caffine wears off during the day. I feel better the fog
clears in my head and I spell better. I read it also helps your liver
clear itself of toxins aqnd minerals that may build up. I read these
things on sites other than the Red Bull site so its not some ad I am
falling for. Just though I would pass this along since its helping me
with my issues at this point and it seems everyone is affected in a
different way from these drugs.
I also had major oral surgery less than a month after the bout with
Diverticulitis and was put on Clindamycin. I got home and after a few
days of feeling like crap on that drug I did some research and found
out it was the last thing I should have been prescribed. I warned the
Oral surgeon I was getting over a bout of Diverticulitis and had been
on Cipro with-in the last month. That I had major digestive tract
problems at the moment and he put me on a drug that warns first off
of possible Colitis As a side effect. Because the drug kills off all
the bacteria in your digestive tract in much the same way something
like Cipro can from what I have been told. So here I sit WORRIED AS
HELL that the next thing I may face will be a bout of Colitis
compounded by Diverticulitis. If I get Colitis I intend to contact a
lawyer right away. The doctor was informed and he still prescribed me
the wrong drug. It really amazes me that these people practice
medicine at all. They hold back pain relief because they are worried
about a visit from the DEA but think nothing of prescribing things
without even doing the simple check of opening a PDR. This stuff just
amazes me.
Just sitting here wondering Is not a good thing.
I just passed a couple of spots of blood in my stool yesterday and
have a feling its the Colitis I have been fearing coming on. They
warned that the Colitis could occur while on the drug or a month or 2
after.
I Never trusted Doctors and well this last 2 months just confirmed it
all for me. Thye do not care about the patients they care about the
almighty dollar. If they cared honestly about the human condition
they all would do alot more pro bono work and alot more people would
get medical care.
Worried In Chicago,
Bil
P.S. I am also sure that these money hungry Doctors will deny
anything they did have caused any of my current problems. I
understand I had a bad infection in the first case and had major
surgery in my mouth but they both skipped right over the normal
course of treatments and went right to the nuclear bomb of
antibiotics in both cases. I hate this stuff I should'nt have to be
my own Doctor and 2nd opinion. I just hope the ablity to sue gets
left in place and does'nt get taken away from people who have
problems with doctors and drugs.They both have a very powerful
lobbists in Washington.
22192 From: "hjvander" <hvandeventer@...>
Date: Thu Mar 10, 2005 4:34am
Subject: Re: Ear Problems hjvander
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Yes, I've experienced a lot of ear problems. Mainly severe
pressure, pain, and a plugged up sensation. My ear problems come
and go...sometimes can bother me for several days, but then may
suddenly clear up and go away for a couple of days - only to
reappear with a vengance. I also had really bad tinnitus in my
right ear for a couple of weeks, but this has gradually dissipated
over time (it's still there, but its at a low enough level that I'm
able to effectively ignore it most of the time). I went to an ENT
doc last month: The audiogram showed that I have some high
frequency hearing loss in my right ear. But they found no evidence
of fluid in the middle ear.
I however can't say for certain that the Levaquin caused my ear
problems, as I was having some mild ear pain about a week before I
started the Levaquin (for a sinus infection), but the symptoms have
certainly gotten worse since being floxed. My primary symptoms post
floxing have been joint pain and neuropathy.
Hope this helps.
22190 From: "emibustillo" <emibustillo@...>
Date: Thu Mar 10, 2005 1:49am
Subject: to medicatoin_problem emibustillo
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I have the same, and before was worse, I peed like 10 times a day
and feel like I had to pee again, and again.
now I feel so much pain in my back and now the worse is the feling
of passingout. help now is 8 weeks pass cipro.
only took 3 pills .
22189 From: "emibustillo" <emibustillo@...>
Date: Thu Mar 10, 2005 1:43am
Subject: to build_it95 emibustillo
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tell me what else do you feel pls, it is so important for me to know
that im not going to die from this, coz some times I feel like that.
Ihave this horrible feeling that im going to passout,also this
terrible pain in the right side of my back, and also goes to become
flank pain, also I get like a bit of pain in my legg up like up to
my bottom, dont know if you have the same , some shoulder pain,
pls help,
22187 From: "emibustillo" <emibustillo@...>
Date: Thu Mar 10, 2005 1:26am
Subject: Re: help me pls pls pls emibustillo
Send IM
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did you peopole also felt like dizzi, like you are going to pass
out. what does it help, im desperate, plssssssssssss
22185 From: "medication_problem" <medication_problem@...>
Date: Thu Mar 10, 2005 0:50am
Subject: Re: hel me pls medication_prob...
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Did anybody have frequent urination,I took just one tablet of
levaquin 5.5 weeks ago and I need to urinate frequently and there is
a lot of urine each time and I get dehydrated and my stomach feels
empty and this has not improved at all.Anybody ,please let me know
how long this can last and any medication to help this.
Jim
Sort by Date
22244 From: "Dwight Ruffin" <ruffin@...>
Date: Wed Mar 16, 2005 2:50am
Subject: Re: Lower back pain? ruffin144
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I have been posting here for months. I am 10 months out and my
original
symptom was SEVERE back pain, numbness on left side of body and muscle
pain
and twitching. Tendon issues were to follow. I thought my back was
broken. I had MRI's--all normal. I am now having neck problems. I
think
this poison has harmed the cartilage and everything else in my body.
I have electric shocks-better, vibrating, buzzing and twitching which
is
some sort of neuropathy. Chicken brings a relapse. I still have back
pain
and can't wear any shoes unless they are flat or my back hurts. I am
limited in the way I move---or back hurts.
michele
22243 From: "Helen" <acenzi@...>
Date: Wed Mar 16, 2005 2:41am
Subject: no subject hlnczn
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For 4-1/2 months I have been reading about the muscle aches and
pains but not much about some the other symptoms I have. I have
tinnitus since day one, depression, psychotic episodes along with
the aches and pains that move from place to place. Now I have a
stabbing pain in my head behind my ear. I',m so angry at my dr.,
the pharmacy, the manufacturer because nobody warned me, not even
about not taking aspirin or advil because it would make the cns
damage worse. I at least want an apology but they won't even admit
that this poison ruined my life.
22240 From: "medication_problem" <medication_problem@...>
Date: Wed Mar 16, 2005 1:49am
Subject: Re: Lower back pain? medication_prob...
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Please let me know how many tablets of levaquin you had taken.
I am having a bad lower back pain and burning sensation which becomes
worse with bending .I took just one tablet of levaquin more than 6
weeks ago and I have been having this since the past 4 weeks.I didn't
have it the first two weeks after I took it,can anybody know how long
this can last and does it depend on the number of doses/tablets taken.
Jim
22239 From: "pttmnlyn" <laynepittman@...>
Date: Wed Mar 16, 2005 1:36am
Subject: SWOLLEN JOINTS? pttmnlyn
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Hi all. Was floxed in november. my main symptons now seem to be
recurring pain in my
wrists, fingers, ankles, toes and knees. But here's my question.... I
feel totally fine for a
couple of weeks and then it comes back for a few days to a week. and
now my finger
joints are swelling. i can't even get my wedding ring off... is anyone
experiencing the
swelling with the pain? just wondering if i should get it checked out
on the off chance it
isn't the levafromhellquin... thanks and blessings
22238 From: "hjvander" <hvandeventer@...>
Date: Wed Mar 16, 2005 1:08am
Subject: Lower back pain? hjvander
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Can lower back pain be an ADR from Levaquin? Since I was floxed 2
1/2 months ago most all of my symptoms have been related joint pain
in my legs and arms. Now just today I've started having some lower
back pain, and since I don't believe I've done anything physically
that could have caused this - I'm beginning to wonder if it's
possibly an (delayed onset) ADR?
22237 From: "Vandeventer, Heath" <hvandeventer@...>
Date: Tue Mar 15, 2005 9:54pm
Subject: RE: Joint pain/popping hjvander
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Time. Unfortunately, that's all we truly have to battle these
symptoms.
If someone else has found something to be effective I'd be thrilled to
know what it is. My main ADR's largely involve joint pain and popping
/
cracking of joints. The Rheumatologist said that I don't have
arthritis
and isn't worried about the constant popping of joints. He ordered a
bunch of tests, which have all come back normal so far. He did give me
some free samples of Celebrex, but I'm afraid to even try it since
there's so many posts on here about avoiding NSAID's. I've tried
Tylenol, aspirin, Advil (tried these before reading about potential
danger of taking NSAID post floxing) but none of it helped me with my
joint pain. Aside from a really bad flare up a few weeks ago, time
does
seem to be the biggest factor for me in terms of healing. Hope this
helps.
From: Dachman [mailto:dachman@...]
Sent: Tuesday, March 15, 2005 3:28 PM
To: quinolones@yahoogroups.com
Subject: [quinolones] Joint pain/popping
Hi
I'm having a ADR and a big issuse for me is joint
pain and popping. Does anyone know of something that helps with this
that is not detrimental long term. Thanks for any feedback.
David
22234 From: "Sally" <tailsclown@...>
Date: Tue Mar 15, 2005 6:16pm
Subject: Cycling? aeroclowngirl
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I've read about symptoms cycling. And I was holding out hope that it
wouldn't happen to me. I had been free of the burning pain in my
nerves for over a week and a half. Last night, right after I ate my
supper, my arms started to tremble and the terribly burning sensation
traveled down my arms, into my torso and down my legs. Leaving me
with that horrible burning for over 2 hours. My legs were left
hurting more than before as the burn subsided. I'd almost describe
this like a "hot flash" but with that burning deep inside my body. I
am 53 and menopausal which confuses the heck out of me. Could hot
flashes be "also" effecting my nerves in this strange way? The crazy
thing is, there isn't a professional I can ask about this. I go to
see my OBGYN on Thursday. I won't take hormone replacement therapy
anyway. Any other women going through menopause also having confusion
over there quinolone symptoms. I'm really bummed out. I was really
improving and I am try hard not to be depressed or scared that I'm
going backwards.
Sally
22233 From: "pmfddm" <pamsy48@...>
Date: Tue Mar 15, 2005 2:38pm
Subject: Re: The Poisoning of America pmfddm
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I was just wondering if we send Oprah this information and a link to
our site she would be sensitive to what we are going through and
bring it to everyone's attention. We are all reaching out and
comforting each other, but it is so very frustrating no one is
hearing our cries for help. It was just a thought. I have just
passed my fourth month of Cipro poisoning and slowly, very slowly am
emerging from the fog. Stay strong, it does get better and hold on
to spring's arrival and the hope for brighter, healthier days for
all of us. Thank You.
22232 From: "Helen" <acenzi@...>
Date: Tue Mar 15, 2005 2:27pm
Subject: head pain hlnczn
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Hi, It's almost five months since I was poisoned. I'm now having
pain in my head behind my ear. It feels like an electric shock type
pain. Has anyone had anything like this? It's not constant. It
happens when I move just right or bend. I've had pain like this in
my ribs, knees, shoulders, but not in my head.
22228 From: "Dwight Ruffin" <ruffin@...>
Date: Mon Mar 14, 2005 8:20pm
Subject: Re: New Member/Victim of Levaquin ruffin144
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I have this problem as well. I took 7 pills of levaquin 500mg starting
Memorial weekend 2004. I still have feet pain and can't walk if I
change
shoes. My feet burn, vibrate, buzz and hurt. Lower legs do the same.
They
are better, but not well. I had achilles tendonitis as well.
Good luck,
Michele
22227 From: "pttmnlyn" <laynepittman@...>
Date: Mon Mar 14, 2005 5:12pm
Subject: Re: Anyone with this symptom? pttmnlyn
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my nails are doing the exact same thing. and yes, let's make weirder a
word. i took
levafromhellquin in november and have had some good weeks but today my
wrists,
fingers, ankles and toes hurt so bad i look like an old lady walking
around. it comes and
goes. im assuming i had a "intermediate" reaction based on my symptoms
and this crap
could last 1 to 2 years to get totally out of my system. nice. I am
much better, but today
is a bummer. good luck with the nails sally!!!
God bless.
22225 From: "Sally" <tailsclown@...>
Date: Mon Mar 14, 2005 3:25pm
Subject: Anyone with this symptom? aeroclowngirl
Send IM
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I looked at my finger nails and noticed that every one of them have
vertical ridges covering them from top to bottom. Wierd!!! Never had
my nails grow like that before. Looks terrible! This thing just gets
weirder and weirder (if there is such a word!)
Sally
22224 From: "lrzbrown" <lrzbrown@...>
Date: Mon Mar 14, 2005 6:40am
Subject: Re: New Member/Victim of Levaquin lrzbrown
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jwk
My Gp's out on vacation for a week so I may not get lab work for a
while. I'm in WA. The email may not have been set up if you tried to
reach me before now...(new user) it should work now.
I just took three days off and feel a little bit better, but I'm
still in some pain and feeling kinda fragile. It's so funny, because
I'm usually very active and ready to rumble. Now I feel like I'm made
of glass and might break is I fall over.
I was told last Friday that they may want to put me on crutches or
even maybe casts to prevent me from rupturing my tendons.
CAN YOU BELIEVE THIS S***?
Sorry, as you can see I'm a little distressed by this.
I wish you all a good week.
LZ
22223 From: "quilthreads" <Leequilts@...>
Date: Mon Mar 14, 2005 6:00am
Subject: Leg and joint pain quilthreads
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I have chronic Pseudomonas Aeruginosa in my sinuses since moving to
Florida 7 years ago. Surgeries did help (trimming the turbinates
helped with drainage) and apparently the only antibiotics affecting
this opportunistic bacteria are Levaquin, Cipro and Tobramycin.
I've had them all, and if I'm free of infection, it's only for a few
days a couple of weeks at the most -- and just completed 14 days of
Levaquin. My legs and back hurt so badly, and I feel as if I'm
crippled. I had this problem years ago, the first time I figured
out that it was the Levaquin that caused my crippling, and since
then would list it as a drug I am unable to take.
But the sinus infection/pain in frontal sinuses made me want to try
it again, and I'm back in the same pain, and it's been about 2 weeks
since I quit. Prednisone tapers occasionally relieve the painful
pressure build-up. But, I hate to take that steroid since I'm
osteporitic from life=long malabsorbtion of calcium. I'm a 76-yr.
old Celiac, diagnosed only 15 years ago.
My ENT is very good and wants me to see Dr. Lanza, the
reputed "guru" of Pseudomonas Adruginosa and sinuses, under whom he
did his residency at the U. of PA , and who has just moved to St.
Petersburg, because I'm one of a few of his patients with chronic
recurent Pseudomonas, and have these severe reactions to Levaquin --
which does clear up the infection for a short while.
I feel as though I'm between a rock and a hard place, and would
appreciate any suggestions.
Would
22222 From: KAROL KELLEY <karol61@...>
Date: Mon Mar 14, 2005 5:07am
Subject: Re: New Member/Victim of Levaquin kkelley111
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After 9 days on Levaquin I noticed that the bottom of my foot after
walking/hiking was just killing me. I didn't relate this to my drug
but it got worse and I just went to a podiatrist and told him I have
never had anything like this and he said it could not be related to an
antibiotic and looked at me like I was crazy. I know it must be a
tendon or something..he said I'm not wearing proper shoes although I
have never had a problem until I took this drug. Has anyone suffered
from this on the bottom of the foot?
Please let me know as I dread hiking and walking now with this
problem.
22218 From: "Betty Crawley" <beejay31@...>
Date: Sat Mar 12, 2005 9:34pm
Subject: (No subject) bettycrawley
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I was particularly interested in reading the following information
(see below) which appeared on the Site -- submitted by 'vm.'
Can you tell me where you obtained this data? I have been trying to
find information on the Internet which gives statistics aout the
number of cardiovascular ADRs due to Ciro which have been reported to
the FDA.
Thanks for any information you can provide. We lsot our 38 year old
daughter two and a half years ago -- due to Acute Circulatory Collapse
-- after TWO DAYS of Cipro treatment.
Betty
22217 From: "vmuleus" <vmule@...>
Date: Sat Mar 12, 2005 9:01pm
Subject: Re: Emailing: A28967-2005Mar12 vmuleus
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Acute Ciruclatory Failure was the largest cardiovascular adverse
event reported to FDA's Medwatch Program, From Nov 1997 to Nov 2001
for Cipro. There were 1,361 reports of Acute Circulatory Failure
reported for Cipro. There were roughly overalll, 67,000 Adverse
Events reported for Cipro for the above said time period. 30 percent
of the 67,000 ADR's were follow-up reports.
vm
22216 From: "Betty Crawley" <beejay31@...>
Date: Sat Mar 12, 2005 6:48pm
Subject: Re: Re: Emailing: A28967-2005Mar12 bettycrawley
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To the individual who wrote the following:
"The way I read it, it couldn't have been the drugs that killed her
because she wasn't given any till it was too late.
The first time she went in to th ER she was given Tylenol and sent
home. Obviously something easy to diagnose like pneumonia/ bronchitis
was over their heads. In the military they'd give us "Vitamin "M"
(Horse doses of Motrin)and send us home."
YES -- Fluroquinolones CAN KILL! Our 38 year old daughter was seen by
her Primary Care Physician on May 23, 2002 -- and was diagnosed as
having either "bronchitis or possibly pneumonia". NO x-ray or sputum
culture was done -- the Physician simply gave our daughter SAMPLES of
Cipro, and said to her: "You should feel much better by Monday!? This
was on Thursday.
TWO DAYS later, after being on Cipro two days, she died quite suddenly
and unexpectedly. The Physician at the Emergency Room said our
daughter died from Acute Circulatory Collapse -- her heart just
stopped beating.
Our daughter had kidney problems -- the left kidney did not function,
and the right kidney was damaged from radiation she received for
cancer when she was a very young child. The cancer was cured -- but
her kidneys were damaged as a result of treatments.
Several months after her sudden death, we learned anyone with kidney
problems should NOT be given Cipro -- or it sould ONLY be given if IT
IS THE DRUG OF LAST RESORT -- WHEN NO OTHER MEDICATION WILL WORK!!
There WERE other medications which could have been given to our
daughter -- and her Physician was well aware of her kidney problems.
It is our firm belief that the Physician simply did NOT review our
daughter's chart closely -- or he would have recalled her kidney
problems! She was under the care of a Kidney Specialist -- an had been
seen by this Specialist just two weeks earlier The Specialist ALWAYS
sent a report to the Priamry Care Physician.
It could also be the Physician who gave our daughter the Cipro simply
did NOT know that Cipro should NOT be given to patients with kidney
disease! I feel he should have checked about the medication prior to
giving it to her -- but I also believe Physicians sometimes dispense
SAMPLES BASED SOLELY ON THE INFORMATION THE DRUGS REPS GIVE THEM!!!
Yes, Cipro CAN kill!! We know from our experience and are heartbroken
over losing our precious daughter. She died far too soon -- at the age
of 38 -- simply because she TRUSTED her Physician to only prescribe
SAFE medications for her!!
22270 From: "bobgroz2001" <bobbygr@...>
Date: Fri Mar 18, 2005 2:42am
Subject: Re: Newly poisoned by Levaquin bobgroz2001
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Hi Karen,
I took cipro and vioxx together 3 years ago and suffered a massive
brain injury. I still suffer day and night without end. Recently my
family dissolved under pressure of my illness.
Unfortunately there is no justice. You cannot get anything from the
system that has done this to you.
The only thing you can hope for is a resonable recovery in as short a
time as possible. There really is not justice. It's criminal - I've
lost everything - my mind, my job of 20 years - and now my family.
I wish for you the only thing you can get - and that is a good
recovery in a short time...
Bob
22269 From: "garym52" <ggmab@...>
Date: Fri Mar 18, 2005 2:15am
Subject: Re: Drs. visit today.... garym52
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> She insisted that once one is off the drug
> the reactions go away, and where did I ever get info that it stays
in
> ones body!
Docs always say the same exact thing, that the reaction ends when
you stop taking the meds. If that is a fact, how do they explain
the documented cases of spontaneous tendon rupture up to 6 months
after discontinuaton of these drugs? Oh, I guess that isn't
indicative of long term adr's....give me a break! The bottom line
is that docs are educated by the drug reps who sure as hell aren't
going to point out the negatives of their drugs (the drugs after all
are how they feed their families). Also, docs are so afraid of
getting sued, they clam up when a person comes in talking about an
adr. The last thing they are going to admit is fault. One last
thing, all those people that your doc gives lev. to for sinus
infections, I would bet a good portion of them have had the same
issues. They just haven't linked it to the antibiotic yet. It was
one of the last things I considered when all this hell broke loose
in my body.
Hope you get to feeling better soon.
Gary
22266 From: "Kska1" <kska1@...>
Date: Fri Mar 18, 2005 1:20am
Subject: Drs. visit today.... Kska1
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