February 2005 Post Marketing Reports

21746 From: Melanie <melaniep_02@y...>
Date: Thu Feb 3, 2005 4:43am
Subject: Levaquin and insomnia

I am eight days into my first time using Levaquin and I am so
exhausted. I can't sleep more than two or three hours a night. I
normally can't function on less than seven, so I'm just wearing down
physically and emotionally. Does anybody have any suggestions for
what I can do to get to sleep?


21747 From: hjvander <hvandeventer@n...>
Date: Thu Feb 3, 2005 5:06am
Subject: Re: Levaquin and insomnia
Melanie,
I believe that insomnia is a fairly common side effect while taking
Levaquin. It definitely screwed up my sleeping patterns for a
while. I doubt you will be able to sleep normally until your done
taking the medication. You can always ask you doctor for a sleep
aid, such as Ambien or Sonata. Otherwise, you could try taking
benadryl, as this is a pretty common over-the-counter sleep
medication.
BTW, if insomnia is the only side-effect you encounter from taking
Levaquin then you should consider yourself fortunate. Many of us on
this board wish that had been the case for us. Good luck.

21748 From: <go595@c...>
Date: Thu Feb 3, 2005 1:21am
Subject: Re: head pressure
hi, I experienced constant head pressure and some very severe headaches for a
year after being floxed with 3 days of Cipro. Was actually told I had a brain
tumor after a cat scan and told it was not after an MRI showed negative.
Scary stuff!!! it's been two years now and the head pressure and headaches are
finally gone but still wierd eye pressure and the tingling scalp sensations at
times. good luck:)
Greg


21749 From: jrg_lee <jrg_lee@y...>
Date: Thu Feb 3, 2005 9:51am
Subject: Adolescent female
Hi,
My daughter is 7 months out from taking only one 750 mg Levaquin then
14, now 15. She was prescribed this for a suspected middle ear
infection - later ruled out. Her early symptoms were many including
rash, swelling of knee, ankle, wrists, back pain, sunburn, insomnia,
nightmare, fatigue.

Although she is better, she still cannot participate in running or
jumping sports. She cannot stand for long periods without developing
foot and ankle pains. She says her calves are "unstretchy". She is
able to swim, but with a tougher workout of late developed a knee cap
pain. I am concerned about the possible lifelong effects of this one
tablet.

I'm encouraged by those who say they improved with foot and ankle pain
and are now able to run. From what I have read, the female adolescent
group are most severely affected. This drug was not appropriate for
her as her bones are still developing. I feel so guilty for not
checking it out before she took it.
Jorge


21750 From: maggchar <maggchar@y...>
Date: Thu Feb 3, 2005 10:40am
Subject: Re: Anyone with vertigo?


I went to the ER a week and a half ago for vertigo that I'd never
had before my levaquin adr's, and chest pains. The vertigo lasted
the whole night while I was there, and slowly improved the next day
at home (especially after I got some sleep). The ER doc ruled out
anything life-threatening (heart or lung problems) and told me to
follow up with my regular doc. I ended up going to an ENT who said
it was most likely an inner ear viral infection, but that I should
go back in if I experience any more bouts of vertigo. I've been
struggling with colds and respiratory issues like sinus and ear
congestion, so it is possible that my ENT is correct in saying that
my vertigo was from a viral infection, though I'm not completely
convinced yet.
They did hearing tests (confirmed previous hearing loss in L ear and
showed new hearing loss in R ear; I was last tested ~10yrs ago),
looked in my ears with microscope (some evidence of fluid in my
middle ear), and did some test where they dropped the exam chair
backwards (so I ended up upside down) while I had to keep my eyes
focused on the doc's nose.
I found some info (www.vestibular.org) that indicated vestibular
disorders can be caused by ototoxic substances - it listed other
types of antibiotics (aminoglycoside) and some other types of
medications, so maybe fq's can also be ototoxic but no one knows it
yet.

Teri

21754 From: katze1977 <katze1977@y...>
Date: Thu Feb 3, 2005 10:14pm
Subject: popping / cracking joints

Does anyone have popping / cracking joints, will this ever stop?
I'm 26 female, I was on Norfloxacin for UTI. After having just 5
pills (November 2004), my joints started to make popping and cracking
sounds. Few days later pain came along with swelling….
I have long list of other side effects but this one makes me wonder,
I'm 26 and I want to be able to walk again like 26 year old.
My other side effects are:
- Indigestion
- Stomach pains
- Weight loss
- Floaters and flashers, vision problems
- Pale nails (I never had anything like this)
- Insomnia (now is little better)
- Night sweats (better)
- Popping / cracking joints, spine
- Joint pain
- Tendon pain
- Depression, (almost gone)
- Panic attacks (are gone)


21763 From: Blue Balloon <redwhiteblueballoons@y...>
Date: Fri Feb 4, 2005 5:43am
Subject: peripheral neuropathy
I was diagnosed with peripheral neuropathy recently (add that to other diagnoses from other Dr's of fibromyalgia and chronic fatigue).
I am at six months post floxing.
Anyone have any thoughts, advice, anything at all for me ? Does this get better or go away (PN specifically).
I woke up yesterday feeling totally paralyzed. For a period of hours twice yesterday I could not move, not even the muscles like the gluteus maximus or other ones as I simply lay there.
Also my lower face felt numb/paralysed (that began the day before that, I think, in a minor way) and my throat paralysed and like it was constricting. Breathing wasn't easy.
Late that night, breathing suddenly got better and today I can move a bit more although it feels like several ligaments in my body are about to tear any second - especially if I walk.
I can't walk by myself but only if leaning on my husband, he even has to help me to the bathroom now. I could not risk showering, can't stand long enough and might slip in shower.
It only seems to get worse and new things pop up... I am sorry I don't want to scare others. I remind them that every case is different.
I just want to know what this latest thing means. I feared I was paralysed for life because well I could not move ! Is that going to stay that way - get worse - come back ?
Will I be fearing recurrences for life even if I do get better ? I had no idea at all it could get this bad.
What can anyone tell me about this facial paralysis thing and about PN ? THANK YOU!!!


hjvander <hvandeventer@n...> wrote:
21771 From: cutte71 <nhoward5@h...>
Date: Fri Feb 4, 2005 4:16pm
Subject: Re: popping / cracking joints


I am five months post floxing. The jint popping was one of the first
things that I noticed that raised an alarm bell. I never in my life
had that much cracking and popping. When my spine started popping
that really freaked me out. But, I have noticed that as of late my
joints are a lot quieter. :-) So, maybe your's will do the same.

I am still having the problems with the floaters and flashers. I've
been hoping to find someone I could compare mine to. My floaters are
dots and lines. The flashers are like pinpoints of light. Can you
decribe yours to me?


21773 From: hlnczn <acenzi@f...>
Date: Fri Feb 4, 2005 5:33pm
Subject: ear problems

Just got back from Dr and he said I have some fluid in my ear and
that's what is causing the tinnitus. Well, I can feel something in
my ear but only for the last two days. I have had the tinnitus
since I wqas floxed three months ago. He insists this is not from
the Levaquin. Does anyone have any ear problems from this poison?


21775 From: katze1977 <katze1977@y...>
Date: Fri Feb 4, 2005 6:10pm
Subject: Re: popping / cracking joints for cutte71


Floaters when looking at the bright sky, it is like millions of
translucent dots. Sometimes I have single very bright dot moving
vertically from bottom to top (very rare but dramatic). I have
vertical lines that move for one side to another. I have something
like flashing vision with is really hard to describe, sort of like
disco light (not as dramatic).
I hope this helps, this is really hard to describe, does it sound
familiar?

21776 From: cutte71 <nhoward5@h...>
Date: Fri Feb 4, 2005 7:30pm
Subject: Re: popping / cracking joints for cutte71
Yours sounds exactly like mine. I also have a vertical line that
moves from left to right. I have a couple of dots along with what
looks like a strand. The strand was really dark at first but has
since lightened up. So, if yours are really dark now, they do lighten
up. My flashers sound somewhat like yours, I find them really
bothersome except that they appear like pinpoints sometimes. The
weird thing is that I see them sometimes when my eyes are closed.

I went to the opthamologist and they said no retinal detachment. So,
I believe firmly it was the cipro. I just hope this is another cycle
that goes away for both of us.



21794 From: emibustillo <emibustillo@y...>
Date: Sun Feb 6, 2005 4:57pm
Subject: please help me anyone


Im feeling very dizzi. cant stand up from bed. I took cipro for 2
days then I stoped 4 days ago, can I still be feeling sick from it???
how loing is this going to last. please help me


21797 From: medication_problem <medication_problem@y...>
Date: Mon Feb 7, 2005 4:15am
Subject: took one tablet of levaquin


Hi,

I just took one tablet of levaquin,I was having a light burning
sensation after peeing if I ate a lot of cashewnuts and the doctor
gave me levaquin.Within three hours after taking levaquin I had to
pee every fifteen minutes and although its more than a week now I
still have the problem and I didn't have this befre I took the
levaquin,frequent urination is listed under the 'rare' side effects
in the link below,
http://www.drugs.com/cons/Levaquin.html

Its eight days now and I still have the problem.Immediately after
urinating I feel like all the fluids are being drawn downwards from
my mouth,throat,stomach and I am getting dehydrated and I have a very
dry mouth.I feel thirsty and hungry although its not an hour after
drinking water or eating food. I also have a bad headache and my head
and chest feels heavy,please let me know if anybody has seen the same
thing and what to do.

regards,
joe


21798 From: Carol Peterson <carolpeterson@y...>
Date: Mon Feb 7, 2005 8:15am
Subject: Levaquin, optic neuritis, ischemic, vasculitis, blind, blindness, vision


Hello,

I was mostly blind, about a year ago, after 3 levaquin doses. I'm
writing to pass on information that helped me.

I received help through this forum, and from
http://groups.yahoo.com/group/fq_research/

After taking 4 levaquin doses, I was mostly blind. Tests showed
ischemic damage (lack of blood flow) to the retina. My vision
returned slightly after ceasing levaquin.

A forum member suggested L-arginine: a natural, over-the-counter
vasodilater (helps dilate vessels to circulate blood). I took it 2
times a day, and my vision has improved over the last year. I still
have permanent blind spots (cells that died from lack of blood
supply). But much of my vision has returned.

I never replied to that wonderful person who helped me. It was a
struggle to read. I couldn't see across the street, I couldn't see
TV, I couldn't see the pictures of my kids on the mantle. I
couldn't drive when I needed to, when my Dad went into a nursing
home, 3 states away.

I never replied to that person who helped me. I didn't even know
her suggestion would help. I wish I could thank her, and I want to
help others, as she did.

My retinologist (eye doctor) filed a report saying my eye damage was
due to "vascular abnormalities" (lack of blood flow) after taking
levaquin.

Vasculitis is listed, on the info with levaquin & other fq's. But I
never knew "vasculitis" meant cutting off blood flow. Or that
vasculitis could cause you to go blind.

Possibly, the other ADR's are also due to vasculitis?

I haven't read this site for several months, but when I read it
tonight, it sounded like political debates. May I ask you to please
put your differences about Dr Lockhart in the past?

Please offer your compassion, and suggestions to help people. That
is what people suffering from ADR's need, they need compassion and
help. That's what this site is intended to do, is it not? And I
thank God for the compassion & help I received.

Let's not argue. Let's just help others, if we can.

Well, God bless you.

- Carol carolpeterson@y...


21801 From: robertplone <robertplone@y...>
Date: Tue Feb 8, 2005 0:06am
Subject: info please - dry eyes/severity of FQ reaction


I am relatively new to this forum

I am about 4MO ADR with many symptoms - the worst being
pain of the nerve/muscle/tendon type as well as CNS symptoms.

I had the test for dry eyes yesterday at the eye doctor and
it came back negative for dry eyes - 8mm-9mm

I read somewhere that dry eyes are a telltale sign of
a severe reaction.

Should I be happy and/or read anything into this result at this
time?

I appreciate any information or advise


21802 From: emibustillo <emibustillo@y...>
Date: Tue Feb 8, 2005 0:23am
Subject: Re: took one tablet of levaquin


it is a relief to me to hear you, because I took 3 pills of cipro 6
days ago, first I felt like I was going to faint, then I when to the
doctor and they gave me another antibiotic. after taking that poison
I m not the same again, I have been in the ER 3 times now, and they
can find anything wrong with me , they think Im crazy , because I
have been having a lot of different symptoms from been dizzy, having
trouble remembering things, feeling anxiety etc, and NOW my biggest
problem apart from feeling horrible and dizzy most of the day is that
I have to pee 10 times a day and I practically pee everything I
drink.

So I hope this stops soon. Are you still peen a lot??? Is some one
else feeling the same ????


21803 From: emibustillo <emibustillo@y...>
Date: Tue Feb 8, 2005 0:56am
Subject: urinating often and big amounts


is this happening to anyone???
I m sick of feeling sick. apart from feeling dizzy I got to pee so
often and my mouth feels so dry. allthough today after 6 days of
taking cipro I felt I bit better, my need to pee very often is not
helping . does anyone have this simptom ? does anyone knows how long
wuold it lastttt????


21804 From: gotoline37 <gotoline37@y...>
Date: Tue Feb 8, 2005 1:31am
Subject: Over-sleeping, hungover feeling??


I hav'nt posted here in several months. I was on Levaquin for a whole
month and also took a month's worth of Cipro and Cipro XR. I had all
the usual problems but then went into what I can only describe as some
sort of remission. Now a lot of the symptoms seem to have returned and
I am sleeping in late every morning (sometimes until noon) and I
always feel achey and VERY hungover (even though I don't even drink).

I have this tension/sinus/stress type headache and my eyes hurt a lot
as if there is pressure in them. My whole body feels like it has
poison running through it. I recently had a CBC w/ DIFF and an SMA
(comprehensive) and all test supposedly came back normal. This last
time around, I had a test for mercury, lead, zinc, copper, Vitamin B6
& B12 because I have had this strong metallic taste in my mouth for
over a year (dentist and ENT ruled out fillings, oral cancer and doc
ruled out kidney probs and other ailments that would cause this).

This is'nt the first time I have been floxed so maybe some of these
side affects are a carry-over from several years ago. Basically, I'm a
wreck!.

- Regards


21806 From: delusion301 <delusion301@y...>
Date: Tue Feb 8, 2005 3:32am
Subject: Levaquin


Was given Levaquin for perhaps the 7th or 8th time in the last five
or so years. Previously had no "known" reactions. This last time
was psychiatrically bizarre. I had total insomnia for 3 1/2 days
even though I had a "raging strep" infection in my throat that came
out of no where. I had enormous anxiety and a feeling of total panic
from time to time. When I finally got to sleep I had one nightmare
after another, from finding my granddaughter in a pipe in the ground
and not being able to rescue her to being beaten in my own home by my
loving husband (who would never lay a hand on me) and then my sister
(who died suddenly in June) stepping in to save me from him. The
dreams were so scarey. Then on day 5 I found myself having
completely bizarre thoughts, such as, I was supposed to fly away with
the songbirds and die. I am telling you I was so frightened...I
experienced double vision in the sense that the written word was as
if it had been highlighted and outlined. After finally feeling like
I needed to head to a psyche ward I typed in Levaquin+anxiety and
found all the symptoms I was experiencing as listed side effects.
Thank God. Even thought the symptoms continued I at least understood
why. I reported my symptoms to my doc who insisted that I continue
to take them. I did and finished the last dose last Monday. I have
continued to explore the effects and have found so many that relate
to the way I have been feeling for the last five years or so that I
feel validated. I have knots in my achilles tendons that over the
last 5 years have been so painful and all my doc said was, "Are you
still taking your antidepressants?" I have experienced muscle aches
and pains to the point that I have been sleep deprived and have had
no medical answers to any of that pain. I went to physical therapy
from June to September and was treated for pain in my hips that they
are calling chronic bursitis and continue, even now to have that
pain. I have constant pain in my knees, directly under the knee cap
and have complained to my doctor about my almost constant state of
exhaustion. Last year I asked the doctor to explain to me, why I
have to push myself through everyday if there is nothing wrong with
me. I have been on Levaquin, as I said at least 7 or 8 times.
Mostly for pneumonia and bronchitis. I have felt like such a slug
and blamed myself for not being able to push past the exhaustion for
all these years, allowing myself to be convinced that it is all in my
head. I can't tell you how I feel as if I am finding an answer to
these problems. When I met with my doc last week and said I will
never take this medication again, she looked at me as if I were crazy
for thinking these symptoms were related to levaquin. I have asked
her to research it for herself. I have an appointment on Weds and
we'll see if she did it. Even I am tired of hearing myself whine and
I really appreciate this site so that I feel less crazy..thank you.



21808 From: hjvander <hvandeventer@n...>
Date: Tue Feb 8, 2005 6:16am
Subject: One-Month Post Floxing


Well, it was a month ago last Thursday that I took my last dose of
Levaquin. It's been quite a roller coaster for me ever since.
Gary, Gina, and many others on this board have been very helpful and
I appreciate everones support.

I had numerous symptoms the first couple of weeks (i.e. cold
extremeties, metallic taste in mouth, food aversion, pain in every
joint - would float around, severe diarrhea, unable to walk
correctly, peripheral neuropathy affecting lower legs, etc, etc).

At the one month mark, I'm made some progress. My main issue at
this time seems to be the continued problems I'm having with my
knees. My knee joints are very sore, achey, and don't seem to want
to function correctly. I can frequently hear various popping and
crunching sounds cominng from my knee joints, and I know that can't
be normal. I saw an orthoepedic specialist last week who
prescrbibed "Lodine" for the pain and inflamation. I am curious if
anyone else might have some experiences with this medication. I
would hate to take anything that might make my condition worse. The
specialist wants to see me back in 3 weeks to review my condition,
at which time he may order MRI's of my knees.

Last week I went back to see my dr's office for continued sinus
pressure and problems wity my ears. MD wrote me an antibiotic that
he swore would be very safe. HE wrote me a script for z-pak.
Unfortunately after two doses of the zpak, i began exeriencing a
constant ringing in my ears. I'm hoping this does develop into life-
long tinnitus.

No drugs are safe.


21809 From: briandraver <briandraver@y...>
Date: Tue Feb 8, 2005 2:50pm
Subject: Re: Levaquin

Hi Gary,

I am in the midst of doing the same thing. I didn't think about the
pharmacy though. I am going to request copies of my medical records
from my doctor. If they try to charge me for the copies then I will
request to see "ALL" my medical records. That is a patient's right.

I understand you've been suffering from BFS for quite a while even
before you took the Cipro. Is this correct? The reason why I
recall this comment is because I, like you, suffered from BFS about
6 years ago. My whole body was twitching 24/7. From my skull and
face to my back and to my legs. I wento through all kinds of
diagnostic tests back then and they found nothing. They did blood
work for lime, syphillys, (sp), vitamin 12 and so on. They did a
nerve conduction study, an EMG (electro myogram), EEG, (electro
encephalogram), brain mri and catscan, and even plugged my head with
a whole bunch of wires and I had to sleep with them for a computer
to read the electrical impulses coming from my brain in a 24 hour
period. And guess what, they found nothing. The THIRD neurologist
I visited repeated some of the tests and asked me to not worry if
the findings were the same again. He told me to promise him that if
nothing was found that I would put the anxiety aside (because
anxiety makes things worse), and that I would probably feel better.
Well, 1 1/2 years later my BFS were completely gone!. every month
that went by I started to feel better and better until one day they
dissapeared completely.

I was fine for years until i ingested the posion levaquin. 3 1/2
months or so after I took it that's when my twitching returned as
you know. I must say that aside for an episode I had about 2 weeks
ago after eating a whole bunch of shrimps at red lobster (never
again), (at least not for a while :), I love shrimp!, the twitching
has gone down to like 5%.

Anyways, because I know now about the "side effects" of drugs more
than I ever wanted to know. I think that the answer the the BFS
syndrome I had before HAS TO BE RELATED TO medications I took in the
past. I, like you, want to know what triggered them in the first
place. I am interested in knowing what I was taking up to 1 year
back from when they started and the ONLY way to know is to read my
medical records and find the answer to that. Perhaps you took the
same or similar medication in the past that I took, I'll be very
interesting to know that, don't you think?

I hope you are making progress like I am. I feel about 98%
already. It's been 9 months and 1 week since my poisoning. I have
worked out so far and no probs. I think that what might have helped
me was that even unknowingly, because of my acid reflux problem, I
was eating a ton of tums everyday back then, perhaps that help in
making the symptoms not to last long. Who knows.

take care,

Brian


21810 From: briandraver <briandraver@y...>
Date: Tue Feb 8, 2005 3:01pm
Subject: Re: One-Month Post Floxing
--- In quinolones@yahoogroups.com, "hjvander" <hvandeventer@n...>
wrote:
>
> My main issue at
> this time seems to be the continued problems I'm having with my
> knees. My knee joints are very sore, achey, and don't seem to
want
> to function correctly. I can frequently hear various popping and
> crunching sounds cominng from my knee joints, and I know that
can't
> be normal.
hvander,
I had the same feeling you have. My knees felt so weak I though
that my upper leg was going to pop off as I walked. Especially the
right knee. I had cramp-like feelings int he back of back keens and
calves.

that lasted for about 7 months until it finally went away
completely. I jogged 4 miles the other day with no problems and I
also did leg presses at the gym. Don't be discouraged about this.
I didn't take anything for it, because I, like you, was affraid of
more side effects from drugs. Thank God that the body has the
potential to regenerate itself and fixed problems on it's own.


I saw an orthoepedic specialist last week who
> prescrbibed "Lodine" for the pain and inflamation. I am curious
if
> anyone else might have some experiences with this medication. I
> would hate to take anything that might make my condition worse.

If I were you, I woldn't take the medication but would go back 3
weeks later to the specialist and tell him that you are "still"
haveing the same problems with the same intensity. This will prompt
him to do the MRI (which, if you ask me, he should do BEFORE he
gives you something for something he doesn't know you have). Lots
of times when they do these tests nothing shows anyway. So if you
don't show inflamation, why should you take a medicine for it?
Besides NSAID's as well as steroidal drugs do not go along with
fluoroquinolones even months after you take them since the poisons
stay in your body for quite a while.


Take care of yourself because God knows the "healthcare industry"
isn't.

Brian



21812 From: hlnczn <acenzi@f...>
Date: Tue Feb 8, 2005 4:07pm
Subject: 3-1/2 months and counting


I read your stories everyday and I thank God that you're all here.
It has truly helped me.
My story starts with my doctor who checked me because I had a
slight fever and an all-over sick feeling. My throat felt a little
sore. She gave me clindomycin because I'm allergic to pennicillin.
I took it for two days but started feeling very congested in my
chest. I called and she called in a prescription for z-pak. I took
it for 5 days. Five days after that (it works for 10 days)I still
didn't feel well so she gave me the poison Levaquin 500. After the
first pill I had pain in my ribs. I thought I cracked a rib from
coughing. I had nightmares, sweats. I lost my sense of taste and
smell. I had ringing in my ears. I had pschotic episodes that were
more than frightening. Three weeks later I had a yeast infection and
had to take medicine for that. During this time I checked and
rechecked the warning for levaquin that I got from the pharmacy. I
just didn't make the connection based on those warnings. Then I
checked the warnings on the internet. That was when I knew I had
been poisoned. It took me almost two months of wondering why I
didn't feel right. I can taste and smell a little better. I'm seeing
a ENT this afternoon for the ringing in my ears. I'm afraid to take
any antibiotic. I have pain constantly. It just moves from place to
place. Right now I have it on my left shoulder. It feels like
someone punched me. It hurts to touch it. I feel foggy much of the
time but for the last two weeks even that's been better. I'm taking
magnesium and calcium because so many of you said it's helped you. I
hope it helps me too.
Thanks to all of you that have helped me without even knowing it.
Helen

21815 From: cjt2202 <cjt2202@y...>
Date: Tue Feb 8, 2005 5:40pm
Subject: Re: One-Month Post Floxing


I also have ear problems, pressure, sensitivity, tinnitus and I
agree with you that all drugs may be dangerous for FQ victims!
I have not taken an antibiotic since Levaquin and I will not, except
as a last resort.
I have read several posts here describing re-poisonings by different
antibiotics. Thank you for describing your symptoms from Z-pak. I
will save this to refer to it in the future, should I be forced to
use an antibiotic.
I have also heard of re-poisonings related to nsaids, benedryl, and
steroid drugs.
Good luck,
rick

21818 From: naturefreak2002 <naturefreak@n...>
Date: Tue Feb 8, 2005 5:58pm
Subject: Looking for Cause + Cure of Tendon/Joint Inflammation


Hi,
I was on Levaquin for 3 days last April for chronic Lyme and
developed inflammation in my shoulders, arms, wrists, hands fingers,
legs, knees, feet and heels. Over the past year these symtpoms have
followed a pattern of gradually improving somewhat over a period of
weeks or months, but re-flaring immediately every time I take any
type of drug or any type of nutritional supplements (vitamins,
antioxidants, herbals, perhaps some foods, etc.) or engage in any
significant (or often even seemingly insignificant) physical
activity. I am currently off all drugs, supplements, and very
careful with my diet and physical activity, but I continue to re-
flare from the most minor of causes and just won't resolve.

QUESTIONS

1) By what specific chemical mechanism were the joint and tendon
tissues damaged by the Levaquin.

2) Through what specific mechanism has the Levaquin altered my
biochemical/immunological/allergic response to drugs, supplements,
and foods to create this pattern of biochemical sensitivity/reactive
inflammation.

I'm looking for someone who has answered the above questions and can
help me, and ultimately a doctor who understands Levaquin-induced
tendonitis/joint inflammation and has had some success in treating it
(at this point I'd go almost anywhere). Can anyone help me out with
this?

Thanks,
Jim


21822 From: sarah <bmsbms_8@h...>
Date: Tue Feb 8, 2005 9:46pm
Subject: Re: scared again


--- In quinolones@yahoogroups.com, "hlnczn" <acenzi@f...> wrote:
>
> I just got back from ENT appt. He said I have fluid in ear. I
either
> have my ear drum punctured so they can put in a tube and drain it
or
> I have to take an antibiotic. He gave me a z-pak. I took that
five
> days before taking levaquin. I'm scared to take it again but I
also
> don't want that procedure done in my ear.
> Has anyone else out there taken a z-pak since being floxed?

Hi,
I rarely post but thought I would let you know that just prior to
being floxed I was on z-pak, I had some serious stomach problems
with zithromyacin,terrible gut pain. but much better than the
stevens-johnson that the levaquin caused I will be at my 2 year mark
in may and it's been a battle.
Best of luck and health
Sarah


21830 From: tomskitten4ever <tomskitten4ever@y...>
Date: Wed Feb 9, 2005 5:15am
Subject: Levaquin


Only took four! Are these really side effects? After first dose
within 1-2 hours Awlful dizzy,Pain between eyes-pressure,
Confusion,Sudden sadness-to uncontrolled crying,Insomia
(4days&nights!-No sleep!) In a strange Fog, anxiety, jitters,
feeling like some one coated - me-inside and out with Ben Gay or
Menthol feeling, and Many more! Stopped taking after 4 days-Dr put
me on Z-pack - after 2 doses started getting horrible kidney/back
pain! Now on Erythrocin. kidney pain has let up, Other come & go! I
just don't feel right! Am I imagining all this? I'd rather have the
sinis infection!! The so called cure is making me sicker then,
infection!


21835 From: Leslea_Bates <leslea@h...>
Date: Wed Feb 9, 2005 2:29pm
Subject: Re: Levaquin


To: Delusion 301
I hope your doctor does do the research and will start to understand what you are going through, I too have nightmares and unrelenting pain in my knees and hips. My mental state has been helped with Lexapro and I am in aqua therapy for my joints, it seemed to be helping until they started adding additional therapy and now I feel like I am in a relapse, but still hopeful, I am going to request to going back to just the pool exercising today and will see if I go back to improving. Hang in there, and if your doctor doesn't have an attitude change, change doctors. I was lucky that my GP understood and has helped me find an ortho that deals with tendon damage. I am 14 months out from my last dose of Avelox, and I only took two. I had had a previous reaction to Levaquin that lasted 6 months. Didn't recognize Avelox as a quinolone (trusted my ENT because he was aware of my allergies).
But the main thing is to remain hopeful, I know eventually that this has to get better, I unfortunately had to take prednisone for 3 months to be able to function mentally at the beginning of my reaction and didn't know it was contraindicated for the joint problems, so I may be in for the long haul, but I got better the first time and will get better this time.
Keep us informed. Leslea


21846 From: <go595@c...>
Date: Wed Feb 9, 2005 1:27pm
Subject: Re: Ciprofloxacin


Hi, it doesn't take long-term use of Cipro for severe side effects. I took
just 3 days worth of Cipro/500mg dose and suffered for over a year and a half.
Anxiety attacks, severe head aches, eye pain, peripheral neuropathy
(especially at the beginning), joint pain. I'm very sorry to hear of someone else going
through this, it's not pleasant. It does seem to get better with time, but I
still have times when it starts up again. Keep reading the posts for good
info and support. All the best,

Greg


21847 From: Mary Moncrief <mmoncrief@r...>
Date: Wed Feb 9, 2005 6:55pm
Subject: Re: Ciprofloxacin

My daughter has been taking this drug for the past four years for
UTI's and has experienced health problems such as joint pain,
exhaustion, foggy brain, headaches and anxiety. She thought her
symptoms were due to repeated UTI's. Last November her anxiety
level was so high and she started to experience auditory
hallucinations. She felt it was stress of University and part-time
work, so she quit both and moved home. Her GP referred her to a
phychiatrist who believed her problems were due to drug toxicity.
Since then I have been researching on the net and I cannot believe
what I am reading about this drug. I am so upset that she was
prescribed this medication and that the doctor's didn't recognize
her symptoms as an adverse reaction. This drug has essentially
destroyed her life.
Thanks for your input.
Mary


21849 From: cutte71 <nhoward5@h...>
Date: Wed Feb 9, 2005 7:17pm
Subject: How have you convinced your GP?


I recently switched insurance and subsequently GPs. I had my first
visit with my new GP and I had to chronicle my recent history. I told
her all the symptoms we know too well: muscle spasms, floaters, joint
pain, muscle pain, rapid heartbeat, etc...along wth the recent bout
of vertigo. She wants to send me back to the neuro b/c she thinks the
vertigo warrants a re-visit even though I had an MRI in Mid November.
Fine, I'll go. I told her my belief that my symptoms were an adr from
fq. She told me: not possible b/c the adr wasn't immediate.

Here is my question. This is the second time I have had a doc tell me
this. What can I bring to show them that (1) I'm not crazy, and (2)
there's a whole group of folks with same issues after taking a fq. If
any of you have convinced your docs, what did you do?


21852 From: Betty Crawley <beejay31@c...>
Date: Wed Feb 9, 2005 9:23pm
Subject: Re: Re: Ciprofloxacin


I can vouch for the fact one does not have to take Cipro over a long period of time to have disastrous side effects. Our 38 year old daughter took Cipro for 2 1/2 days -- then died quite suddenly and unexpectedly in May of 2002. We later learned she NEVER should have been given Cipro as she had major kidney problems!
She was prescribed Cipro (given samples by her Physician -- with NO discussion at all about any adverse reactions) and told by her Physician that she "should feel much better in just a few days!

So, IF anyone has kidney problems, and sees a Doctor for upper respiratory infection, PLEASE tell your Dr. you do not want to take Cipro. There are a number of other medications which work quite well for respiratory infections. Cipro is considered 'THE DRUG OF LAST RESORT", and should only be used to treat an individual with major kidney disease when there is absolutely NO other drug to be used. Even then, the patient should be hospitalized and monitored closely while on Cipro. Our daughter was given samples of Cipro, sent home, and
2 1/2 days later she was gone.


21855 From: garym52 <ggmab@f...>
Date: Wed Feb 9, 2005 9:44pm
Subject: Re: How have you convinced your GP?
Cutte,

No, I haven't been able to convince any of my docs that my problems
were caused by cipro except for the psychiatrist they sent me too
(because all the docs wanted to blame my problems on stress/anxiety,
which I didn't have before cipro!). He believed me because a
relative of his had the same problems from levaquin. He also said I
didn't need to see a psych., but rather needed time to heal and low
dose valium as that was the only thing that helped his cousin. I
only took the valium for a few weeks, and then tappered off.

So i haven't convinced any other docs, and to be truthful, I've
stopped trying. It's amazing how fast docs are to label you as
anxious/hypocondriacal when you start trying to prove something to
them that they don't really understand. And make no mistake about
it, most docs do not understand adr's. There sources of info are
the drug reps that sell this garbage. When i first spoke to my GP,
she seemed to believe me and said she would talk to her rep about
it. Two weeks later, at my next appt., she totally dismissed the
possibility. I guess the rep. told her it wasn't possibly the
cipro, but what else would he/she have said. That doc writing those
scripts is how the rep makes a living. He/she isn't going to talk
about the "negatives" of their cash cow. It is much easier to make
us seem like crazies.

So don't be discouraged if they don't believe you, and you might
want to give up trying to convince them. But if you want to prove a
point, ask them how/why there are CONFIRMED CASES of tendon rupture
months after discontinuation of fq's. Bottom line is that there
have been hundreds if not thousands of cases reported on this and
other websites of delayed onset of sxs from fq's. That is a fact
whether the docs/drug co's want you to know it or not.

Take care,

Gary

21866 From: tomskitten4ever <tomskitten4ever@y...>
Date: Thu Feb 10, 2005 3:23am
Subject: Levaquin


Well, Everyday seems to bring more ! Woke with pain in my calves
this morning. Was itching so bad-I decided I'm not finishing my,
Erothrocin! My Arms and legs are stiff/weak. I only took 4 Levaquin!
Took the first on 1/25/05! I am writting a letter to GP! Probably
won't do any good, But she did tell me to stop taking them and wait
24 hours B4 starting Z-Pack ( which I only tolerated 3) I'm not sure
if I'm more scared or angry!!! They put, My Neice on Cipro yesterday-
For Bladder infection, I begged her,NOT to take it!!!!

21894 From: pttmnlyn <laynepittman@m...>
Date: Thu Feb 10, 2005 6:26pm
Subject: My experience


Hi. was so glad to find this site. Has so much great info and encouragement. I was given
6 weeks of levaquin in November 2004 to try and knock out a case of chronic sinusitis.
My reaction to the drug was mild at first. In fact, I did not put 2 and 2 together. I
remember a slight eye twitch in my left eye lid and i started telling my husband i was
afraid i was developing arthritis as my joints in my hands were started to hurt. That was
about the extent of the reaction until the second week of January. I awoke one night with
terrible pain in my wrists and i couldn't sleep. I took a couple of advil and felt better. The
pain slowly left over the next couple of days. My finger joints were still experiencing mild
pain.

Then on January 24, I was prescribed another course of levaquin for a sinus infection. Duh
me for taking it. After only the second pill, I awoke in the middle of the night with terrible
pain in my knees and shoulders. I panicked and got online and did a search for "levaquin
side effects" and you could have knocked me over with a feather. I am shocked at how
much information there is out there. So, i called my doctor the next morning who told me
to keep taking it and i just said "NO" so he prescribed Ceftin. Then i went to the store and
bought Milk of Magnesium, Omega 3 Fish oils, Euchenasia Goldenseal and Acidophilus. I
have been drinking water like there is no tomorrow and taking my supplements. Plus i am
taking melatonin so i can sleep. Im not sure the insomnia is a levaquin reaction or the
anxiety of knowing i've been poisoned.

Anyway, It's been 2.5 weeks since i took my last levaquin - i am having continuing side
effects. some days the pain is very light, most days i would call it limiting but not severe.
i am a runner, but have been too scared to try - t hinking i might rupture an achilles or
blow out a knee. in the mornings especially, i have a hard time tying my kids shoes and
even walking but by lunchtime i can manage ok. and like as i write this, my pain is totally
gone. as it has been for two days. then maybe tomorrow or the next day it will be back. i
am encouraged because maybe this means i am already cycling... I am going to continue
religiously with the supplements i listed above and drinking water. Based on the reports
i've read it appears i have an intermediate reaction and can expect to recover in 10 months
to a year or so.

Is there anything i should be doing differently? I was thinking of just walking and not
running and doing yoga or very very light weights? Advil really really helps me but ive read
not to take it... what do you think?

Anyone new to this forum, please know that you will get better with time, but some of the
things i have been doing seem to be speeding the process. Plus no more insomnia!!!
God Bless all of you.


21895 From: Dachman <dachman@a...>
Date: Thu Feb 10, 2005 6:31pm
Subject: What Diagnostic tests should be run please help


This is my first posting to this board. I'm having a pretty severe
ADR to levequin/cipro I took for a prostate infection I had. I'm
about 5 weeks out from the last dose of levequin. I'm interested in
hearing what tests others have done and which ones are important to
have done to get things checked out. I've seen CT scan and MRI's
done alot. I assume the CT scan are the brain and MRI is that of
brain or whole body. Just want to find out which one are important
to have done. Thank you for any feedback you might have

David
SYMPTOMS


1. EYE PAIN AT TIMES ALSO MY DISTANCE VISION SEEMS TO HAVE BEEN
EFFECTED SEEMS NOT AS GOOD AS BEFORE.

2. LEFT SIDE IS NUMB FACE,HAND FOOT, FEELS LIKE I'M WALKING ON
SPRINGS IN LEFT FOOT

3. KIDNEYS ACHE AT TIMES LEFT MORE THEN RIGHT

4. MOST OF MY JOINTS ARE SORE ELBOWS, KNEES, HIPS, THEY ALSO POP A
LOT LIKE THE LIGAMENTS HAVE LOOSENED UP ON THEM

5.BAD CHILLS AT TIMES

6. SOMETIMES I GET A JERKING SENSATION WHERE A LEG OR ARM WILL
INVOLUNTARILY JERK OUT THIS HAS QUIETED DOWN SOME. I BELIEVE I HAD A
SEIZURE WHILE I WAS ON THIS DRUG AND THESE ARE THE RESIDUAL FROM
THAT NOT SURE

7. MUSCLES ACHE

8. RASH HANDS FACE….ALSO BURNING FEELING ON FACE AT TIMES


21896 From: Dachman <dachman@a...>
Date: Thu Feb 10, 2005 6:46pm
Subject: Diagnostic tests which are important to have done?


I'm having a pretty severe ADR to some levaquin/cipro I took for a
prostate infection. I'm wondering which tests are important to have
done to get things checked out.Also I would appreciate any feedback
on what supplements and or anything else that has been helpful for
others in dealing with these awful side effects. Any feedback is
most appreciated my heart goes out to all of you who are suffering

David
SYMPTOMS


1. EYE PAIN AT TIMES ALSO MY DISTANCE VISION SEEMS TO HAVE BEEN
AFFECTED SEEMS NOT AS GOOD AS BEFORE.

2. LEFT SIDE IS NUMB FACE, HAND FOOT, FEELS LIKE I'M WALKING ON
SPRINGS IN LEFT FOOT

3. KIDNEYS ACHE AT TIMES LEFT MORE THEN RIGHT

4. MOST OF MY JOINTS ARE SORE ELBOWS, KNEES, HIPS, THEY ALSO POP A
LOT LIKE THE LIGAMENTS HAVE LOOSENED UP ON THEM

5. BAD CHILLS AT TIMES

6. SOMETIMES I GET A JERKING SENSATION WHERE A LEG OR ARM WILL
INVOLUNTARILY JERK OUT THIS HAS QUIETED DOWN SOME. I BELIEVE I HAD A
SEIZURE WHILE I WAS ON THIS DRUG AND THESE ARE THE RESIDUAL FROM
THAT NOT SURE

7. MUSCLES ACHE

8. RASH HANDS FACE….ALSO BURNING FEELING ON FACE AT TIMES

9. HEADACHES IN THE FOREHEAD AREA

10.SERIOUS ANXIETY HARD TIME TO RELAX


21898 From: briandraver <briandraver@y...>
Date: Thu Feb 10, 2005 7:02pm
Subject: Re: How have you convinced your GP?

Gary,
The research conducted by Dr. Cohen is on the Fluoroquinolone
Research Foundation Website. There, you find letters sent to
Senators, as well as responses from them. They also have letters
sent to the FDA and its responses. It is way more serious that we
think. There are many studies done in animals and humans that proof
how detrimental to humans these drugs really are.

Brian

21902 From: Dachman <dachman@a...>
Date: Fri Feb 11, 2005 1:37am
Subject: any help with anixiety,headaches-eyepain,numbness-tingling?


Hi

I'm into my 6th week of being floxed and I have the above
syptoms along with insomnia,joint pain/poping at times but its weird
how that comes and goes and memory probs,burning on face feeling and
sometimes rashy say on hands currently. These are what I'm currently
experiening or have experienced. I would appreciate others feedback
on there experiences ie what they did that helped there symptoms,how
long they took to resolve and any other feedback you might be able to
give would be most appreciated.

Sincerely
David



21905 From: aimee anderson <andersonaimee@h...>
Date: Fri Feb 11, 2005 2:52am
Subject: RE: How have you convinced your GP?

I would love to hear from someone who has a believing doctor. I landed in
the hospital three times beginning the day after I first took cipro, and
none of them would believe me.

They clocked my heart rate at 200 bpm and said my potassium was borderline
which is probably what caused it! Anyway, they gave me a bunch of giant
potassium pills, checked my thyroid about 10 times and sent me home.

Anyone know a DOCTOR who had a reaction to cipro? He would be a great ally.

Aimee


21917 From: cjt2202 <cjt2202@y...>
Date: Fri Feb 11, 2005 9:19pm
Subject: Re: How have you convinced your GP?


Good Luck!
My doctor laughed in my face when I told him I had measured my pulse
at 180bpm. BTW, my potassium and magnesium both measured low when
tested at that time.
Good luck, really!
rick



21919 From: Mary Moncrief <mmoncrief@r...>
Date: Sat Feb 12, 2005 2:13pm
Subject: Re: Diagnostic tests which are important to have done?


--- In quinolones@yahoogroups.com, "chiggins1066"
<chiggins1066@y...> wrote:
>
> Here are some good tests to have done
>
> 1. immunoelectrophoresis
> 2. c-reactive protein
> 3. ANA

Hi:
Could you tell me what the ANA positive test actually means? My
daughter was on Nalidixic Acid since 1998 to 1993 for urinary reflux
condition and experienced all sorts of ADR's which were attributed
to kidney infections resulting in further medicating. I finally
stopped all drugs in 1993 and she had seven years of fairly good
health. In 2000 she was prescribed Cipro for a UTI and mega
problems started. She kept getting additional prescriptions of
Cipro up until Nov 2004 (We didn't know Cipro and Nalidixic acid
were basically one and the same. When I went back and reviewed her
medical history (which I kept over the years) I discovered she had
two positive ANA tests in 1993. Now you have allerted me to
something I think I should look into further.
Thank you and everyone else out there for being there.
Mary



21922 From: solarcubstar <solarcubstar@y...>
Date: Sun Feb 13, 2005 1:59am
Subject: Ciprofloxacin advice needed


Hi all,

I am new to this forum and wondered if you could please help me. I
was doing a search on the Internet about the drug Ciprofloxacin and
am stunned by all the adverse side affects that can result from
taking it. I noticed there were a few posted messaged, here on the
subject and I would greatly appreciate any advice you may have
concerning whether I should continuing to take this drug.

Here is the situation. I was diagnosed with Urinary track (bladder)
infection and given a seven day dose of Ciprofloxacin - 1000 mg
per day, time released form. I took one yesterday. I woke up with
a headache and fuzzy head but it went away as the day wore on. This
is day two. I took another one of the pills. After reading the
adverse affects I am now inclined not to take any more. I am also
taking large quanties of good bottled water (8oz per half hour) to
try to flush out the florides (I hope) and also Cranberry and
blueberry juice and a urinary flush supplement, plus acidophilus
pills. I would like to now stop taking the Ciprofloxacin and resume
taking larger quanties of cranberry juice and other supplements.

The only reason I am hesitant to stop taking the remaining drugs is
that my condition may have spread into the kidneys as there was
blood in my urine and I had the chills and a fever. The final urine
test has not come back yet from the labs to confirm the kidney
infection, however. I was told cranberry therapy would not work for
kidney infection and I would need to continue taking the drug to not
risk damaging my kidneys. My bladder condition feel fine right now,
since I took the first two pills so maybe resuming the cranberry
regimen may work now to prevent the kidney infectioin. I feel I am
in a no win situation here and feel frustrated and confused.

Any advice would be appreciated.

Thanks so much for your reply,
Lin


21925 From: Betty Crawley <beejay31@c...>
Date: Sun Feb 13, 2005 3:24am
Subject: Re: Re: Ciprofloxacin advice needed


Dear Lin:

Just read your e-mail concerning Cipro -- and I URGE you to call your Doctor and ask him to prescribe a different antibiotic for you instead of Cipro. Cipro is a DANGEROUS medication!. Our family has been affected in a most devastating manner by a Doctor prescribing Cipro -- in fact, giving Samples of Cipro, without any discussion about possible side effects. Again, I FERVENTLY hope you will contact your Physician ASAP about taking you OFF Cipro and prescribing a different antibiotic.

Following is some info I found on the Internet concerning Treat ent of Urinary Tract Infection. It does not mention Cipro - tho I am aware Doctors often prescribe it -- even tho a different antibiotic would work just as well! People with kidney problems should ONLY be given Cipro IF it is the "Drug of Last Resort" -- in other words, when other drugs have not worked -- and there is nothing else to use. Even then, if the person has kidney problems, and must be given Cipro, the person should be given a reduced dose of Cipro, hospitalized and monitored closely for adverse reactions.

"Treatment of Urinary Tract Infection:

The drugs most often used to treat routine, uncomplicated UTI's are trimethoprim (Trimpex), trimethoprim/sufamethoxazole (Bactrim, Septra, Cotrim), amoxicillin (Amoxil, Trimox, Wymox), nitrofurantoin (Macrodantin, Furadantin), and ampicillin.
Drink plenty of water every day. Some doctors suggest drinking cranberry juice, which in large amounts inhibits the growth of some bacteria by acidifying the urine. Vitamin C (Ascorbic Acid) supplements have the same effect. "

The following information by David Fuller, appears on the Internet -- and discusses fluroquinolones -- and contains material about Cipro. It is very Frightening, to say the Least -- but Mr. Fuller himself has suffered from severe adverse reactions -- and has done much to help spread the word about the Devastating effects these medications can have.

PLEASE CONSULT WITH YOUR DOCTOR ASAP ABOUT PRESCRIBING A DIFFERENT ANTIBIOTIC INSTEAD OF CIPRO.

Below is the article written by Mr. Fuller as it appears on the Internet:

"Fluoroquinolones

First and foremost one must understand that fluoroquinolones are NOT an antibiotic but man made concocted in a laboratory, genetically engineered to destroy the DNA of the bacterial agent. They are not and cannot be put in the same class as antibiotics, which are substances produced as metabolic products of one microorganism, which inhibit or kill other microorganisms.

Antibiotics may exhibit adverse drug reactions but such reactions resolve upon cessation of therapy or modification of the therapeutic dose. The toxic adverse drug reactions associated with fluoroquinolones do not appear to be not dose dependent and do NOT resolve upon cessation of therapy in some cases. In some cases such adverse drug reactions do not even manifest until weeks, months and even years after such therapy has been terminated. These latent reactions also do NOT appear to resolve and become chronic conditions to which there is no known treatment protocol. Tens of thousands (literally) of patients may have died as a result of such therapy and hundreds of thousands more have had their lives destroyed by these drugs.

A review of the med watch database (November 1997- November 2001) indicates that the FDA has received no less than 32,000 adverse drug reaction reports with 774 associated fatalities involving Cipro, Floxin and Levaquin. (Note the fact that such fatalities are only associated with the use of the drug which means that the patient died while taking the drug. One must keep in mind that the data found within the med watch data base consist of LESS than 4% of such events. 96% of the adverse events are NEVER reported to the FDA. A majority of the physicians are not even aware such a program even exists. Less than 5% even bother to make such reports to the FDA. Often times citing that they find it to be a nuisance and an inconvenience. The threat of litigation, should they document an adverse drug reaction, appears to be the primary motivation for failure to take such action. Reviewing the data that was received from the FDA we find the following:

Adverse drug reactions, MedWatch November 1997 - November 2001 (four years)

Drug ADRS DEATHS

Cipro 12,444 328

Floxin 7,255 173

Levaquin 11,656 273

A total of 31,355 adverse drug reactions and 774 associated fatalities. Bayer, the manufacturer of Cipro states that 30% of the patients treated with Cipro will experience an adverse drug reaction. With over fourteen million prescriptions filled for Cipro alone we would expect a reported ADR rate of at least four million. We find a little over twelve thousand within the med watch database. These numbers found within the med watch database do NOT indicate a safe and effective antibiotic with an excellent safety profile and to be remarkably free of clinically significant adverse effects,

The utilization of the fluoroquinolones differs significantly by gender with 69% of such prescriptions prescribed for women. Perhaps this can be explainedby the fact that among obstetricians/gynecologist 72% of the fluoroquinolone prescriptions were for Cipro, followed by Levaquin. Amongst Urologist, Cipro accounts for 52% of fluoroquinolone prescriptions.

Despite the fact that in 95% of the cases diagnosis as bacterial prostatitis we find no bacterial agent present. The patient is often times started on such therapy anyhow. Only about5% of sinus infections are bacteria induced and in adults with upper respiratory infections we find about 2% of the cases complicated by bacterial sinusitis (sinus infection). In cases of bronchitis and pharyngitis (sore throat) we find 90% being the result of a viral infection. Rarely do we find bacteria to be the cause of episodes of sinusitis. Only about 10% of sore throats are true cases of strep throat. Taken as a whole one could arrive at the unmistakable conclusion that in 90% of the cases outlined above such therapy is useless.

Thefluoroquinolones have no effect whatsoever on viral infections. In acute bronchitis a viral infection is the cause 90% of the time.

In the rare cases that a bacterial agent is actually the cause of the infection there are proven agents MUCH SAFER THAN THE FLUROQUINOLONES. Doctors prescribe the fluoroquinolones with the attitude that they may not help, but they won't hurt.

You will find within the research site over 4000 medical articles, etc., that support all that is being stated here. The allegations being made are self-evident and the research so compelling that a Congressional Hearing is mandated into the class of chemotherapeutic agents we refer to as Fluoroquinolones. I believe these adverse drug reactions to be of such a grievous nature that this class of drugs should be removed from clinical practice immediately.

The issuing of free samples should no longer be allowed as such warnings are rarely if ever included

David T Fuller, Director

Fluoroquinolone Toxicity Research Foundation'




21936 From: hlnczn <acenzi@f...>
Date: Mon Feb 14, 2005 5:53pm
Subject: certified mail from johnson and johnson


Hi Everyone,
I just got a certified letter from J&J asking me to sign a release
for medical
info from my Dr. I had e-mailed and called them to ask them what
they did for the under 1% that had adverse reaction from their
Levaquin poison. I told their nurse that I had no insurance and all
I wanted was to know what to do to to feel normal again. Of course,
the nurse said to talk to my doctor. Well, my Dr. doesn't believe
that anything happed to me from the medication. I'm seeing a new Dr.
on Friday.
Has anyone heard from J&J. If you have, exactly what did you do?
Thanks, Helen



21942 From: mistervnv <bu2@s...>
Date: Mon Feb 14, 2005 9:00pm
Subject: Levaquin - Five Months Later


For what it's worth here is my update regarding my recovery
from over a month of treatment for a prostate condition. Now it is
exactly 5 months since my last Levaquin pill. I took a 500 mg pill
of that blasted Levofloxacin for 27 consecutive days. What my uro
gave me was a cocktail of antibiotics plus variety of other drugs
and treatments. I am not sure if it has helped me or not.

What I am sure of is I had a vast array of symptoms and ADRs
that generally matched most of the ADRs reported on this forum.
At first nobody believed it was Levaquin and they all told me to
continue taking it.

In the end I managed to convince my uro and my family doctor and
they accepted that I am "sensitive" to the FQs, or at least Levaquin.
What I actually think is: I am not particularly sensitive to
Levaquin, it was simply too strong a dosage, at least for me. I
generally respond well to most drugs and treatments and never had
any significant ADRs in the past.

Incidentally, my uro offered to switch me to Cipro which I refused.

The problems I still have are:

- Some eye dryness (I take Genteal drops), pain is largely gone.

- I still have some shimmering in my left eye. (It appears I may
be suffering from an atypical migraine. I suffered a TIA like
episode 2 days before I stopped my Levaquin treatment and
ended up in an ER. Even then nobody blamed the FQ. After
a series of tests which included 2 Doppler ultra sound tests
(carotids and heart) as well as CT-Scan of the head, I was
declared to be okay.) Shimmering was the start of the possible
TIA. It was rather scary. My ophthalmologist, after hearing
about the experience told me it was likely "an ocular migraine"
rather than a TIA.

- I still have moments of confusion and trouble concentrating
usually with a bit of weakness and/or light headedness. This
happens almost daily. If I lie down it passes fairly quickly.
Luckily I have retired a couple of years ago otherwise this
would be a real problem.

- I thought I would not have it anymore but lately I had ringing
in my ears sometimes followed by itching or pain.

- I have occasional pains in my head, not your normal headache,
more like a localized pain in different areas.

- Also, pressure in my face, around eyes and nose that is not
painful but rather unpleasant.

All the other symptoms are either gone or very weak such as joint
pain, vision problems, panic attacks, extreme sensitivity to light
and sound etc.

In conclusion: hang in there it is likely to get better. Apart from
time what might be helping in my case is:

I am careful what I eat.
I take herbal remedies for my problems including the prostate one.
I take natural fish oils with Omega-3, Calcium with Magnesium
2:1 ratio, etc.

I think that what Levaquin did in my case is it acted as a catalyst
and launched all kinds of problems. Additionally, it acted as a sort
of a "magnifying glass" and intensified all my usual problems which
prior to FQ were either low level or gone for years.


21950 From: <tailsclown@a...>
Date: Tue Feb 15, 2005 0:29pm
Subject: Changes


Well, the neuro guy at Yale New Haven said that what I'm experiencing
"could" be reaction to Avelox. All my muscle aches and pains went completely away
and left me with a burning sensation that washes over my whole body. Terrible
pain! I was at Yale's ER to get help with the pain. Now that pain seems to
be lessening, but i still have it in my genital area.... this is where the
nerves are still jumping. Anyone else have anything like this?
Sally

21960 From: Peter <raavenwing@y...>
Date: Thu Feb 17, 2005 7:53am
Subject: Cipro Horrors & the Anthrax Scam - WAKE UP EVERYONE!


I was given Cipro after an appendectomy a few months ago. I was on a drip, that also
contained morphine. Even through the effects of the morphine, I felt so uncomfortable I
left the hospital the day after surgery - less than 12 hours after. I literally threatened to
pull the tubes out of me and walk out unless they released me. Unfortunately, I didn't
connect the Cipro (which already had red flags attached to it because of the anthrax scam)
with the awful feelings that were overwhelming me - so I continued to take the poison (I
don't even consider this garbage a drug) at home. I never felt so terrible in my life - as
though I was crawling out of my skin. (the fucking "doctor" wouldn't even prescribe
sleeping pills/tranquillizers for me either!) mind you, I was also taking heavy doses of
Hydrocodone, so I should have been feeling "no pain." but instead I thought I was going to
go crazy. after two or three caps, I began to associate the Cipro with the horrors I was
experiencing and stopped taking it. about 12 hours later, I started to feel human again.
In case anyone out there hasn't figured it out yet, anthrax was a scam. it fit in with the
whole 911 thing, which was orchestrated from within the U.S. government, to push the
"patriot act" and gain support for the Iraq genocide.
the anthrax scam made hundreds of millions of dollars for the drug companies and a lot
really evil people, who don't give a damn what they do to others, as long as they make a
buck. this is the truth, and until people start waking up to it and DO something about it, it
will not only continue but get worse.
my mother in law was recently prescribed Cipro for a UTI. mother in law jokes aside, I told
my wife to call her and DEMAND that she stop taking it at once (or I was going to go over
to her house and throw it in the toilet.) MIL is a doctor-worshipper, so she had to call the
pharmacy to check out what I was saying, but the pharmacist reiterated my warnings and
she stopped taking it and asked her "doctor" for a safer pill.
So ask yourself, with all the relatively safe antibiotics on the market, WHY are doctors
prescribing this poison for routine infections?


21962 From: Betty Crawley <beejay31@c...>
Date: Thu Feb 17, 2005 1:25pm
Subject: Re: Cipro Horrors & the Anthrax Scam - WAKE UP EVERYONE!


In a message dated 2/17/2005 2:54:38 AM Eastern Standard Time,
raavenwing wrote:

"So ask yourself, with all the relatively safe antibiotics on the market,
WHY are doctors prescribing this poison for routine infections?

An excellent question -- and one our family has asked so many times, since the sudden and unexpected death of our 38 year old daughter two and one half years ago -- two days after being given CIPRO for an upper respiratory infection.

The only answers we have been able to come up with are as follows:

Physicians possibly are not familiar with the dangerous Adverse Reactions which these Fluroquinolones can cause. The Pharmaceutical Companies supply Doctors with samples of these medications, and quite possibly they do not explain to the Doctors that there ARE risks in these drugs -- and they should be used with caution.
I also hold the FDA responsible somewhat. I believe the Food an Drug Administration should insist "Black Box Warnings:" be printed on these drugs --warnings to Physicians, Pharmacists, and the patients themselves concerning the risks in taking one of these FQs.

Some medications, such as Cipro, should not be used in certain cases. For example, if a patient has severe kidney disease they should ONLY be given Cipro if it is the "Drug of Last Resort"! And, under those circumstances, the patient should be hospitalized and monitored closely -- and possibly a reduced dose of he Cipro given.

Our daughter had major kidney problems -- yet her Physician gave her SAMPLES of Cipro, with NO discussion at all of possible adverse reactions. It is possible the Physician was not aware of the risks in prescribing Cipro to our daughter -- BUT, I believe it is the obligation of Pharmaceutical Companies (and their Reps) to make Physicians very AWARE of the possible side effects of these FQs, and that the FQs themselves are NOT always the drug of choice in any particular case.

I am aware there are a number of other safer medications to treat not only upper respiratory infections, UTIs, and other infections - and I have to believe IF Physicians themselves were made aware of th risks in using FQs, hopefully they would choose a less dangerous medication.

I am also aware that the Media often gives "Credence" to the fact drugs are safe -- and later it turns out these very medications which were so highly advertised on TV and in the Newspaper, have to be withdrawn from the Market! I, for one, was prescribed VIOXX for pain of osteoarthitis -- but fortunately, I only took it for a short period of time. Now it has been removed from the Market as it can cause Heart Attacks and Strokes -- and class action law suits have been filed on the behalf of those injuried by this drug. Other drugs too have been found to have life threatening reactions -- and removed from the Market. Unfortunately, this has not been the case with Fluroquinolones.

Perhaps there is a time when a Fluroquinolone is the best (or perhaps the only) medication to treat a particular problem. But, I firmly believe that before prescribing any of the FQs, the Physician owes it to his/her patient to research the medication and find out the possible adverse reactions -- rather than just accepting what the Pharmaceutical Reps tell them.

I too have found on occasions my Physician will give me "samples" of a particular medication, particularly if it is an expensive one. (For example, I was recently given 'samples" of a medication which cost $125. if I had to have it filled at the Pharmacy). I have learned to ask my Physician questions concerning the particular medication, and if I have reservations about the drug, then I ask if another drug is available. Then even though I may feel comfortable that the drug is "safe", I make it a point to check on the Internet and read all the information I can about that particular medication prior to taking it.

Statistics have shown that each year many individuals are harmed by medications which supposedly are SAFE. We rely on our Doctors to know the risks in prescribing any particular medication, and though some doctors may not appreciate the patient 'questioning' them prescribing a particular medication, we have EVERY RIGHT to be informed of possible side effects (even minor ones) of any/all medications we take. It is OUR BODIES -- we have the right to know of any risks involved with meds, and then make our own informed decision.

I apologize for "getting on my soap box" -- but I feel so strongly about these Fluroquinolones. My heart goes out to each and everyone who has been harmed by these medications.
Sincerely,
Betty



21968 From: raghlg <raghlg@a...>
Date: Sat Feb 19, 2005 1:21am
Subject: Ralf Stahlmann #1


Arch Toxicol. 2003 Jan;77(1):7-11. Epub 2002 Oct 26. Related
Articles, Links


Children as a special population at risk--quinolones as an example
for xenobiotics exhibiting skeletal toxicity.

Stahlmann R.

Department of Toxicology, Institute of Clinical Pharmacology and
Toxicology, Benjamin Franklin Medical Center, Freie Universitat
Berlin, Garystrasse 5, 14195 Berlin, Germany.
ralf.stahlmann@m...

The sensitivity of the immature skeletal system during postnatal
mammalian development was discussed during the workshop "Children as
a Sensitive Subgroup and their Role in Regulatory Toxicology"
(Schwenk et al. 2002, Arch Toxicol, in press). As a typical example
of xenobiotics exhibiting this extraordinary type of toxicity, the
quinolone-induced effects on cartilage, bone growth, and tendons
were considered in depth. Animal experiments indicate that
chondrotoxicity of quinolones can affect articular cartilage
depending on the developmental stage. Results from studies with
pipemidic acid in dogs at various developmental stages from 1 week
old to 17 months old showed pronounced effects in the most sensitive
age groups: 3- to 6-month-old dogs exhibited gait alterations and
lameness, but signs of toxicity were not observed in 12- or 17-month-
old dogs. Similarly, experiments performed in rats indicate that
they exhibit the highest sensitivity for articular cartilage defects
at a certain stage of development between 3 and 6 weeks postnatally;
mature articular cartilage does not seem to be a target for
quinolone-induced toxicity. Some very limited data indicate that in
animals at an early developmental phase the epiphyseal growth plate
can also be damaged by quinolones, and that these effects are
associated with irreversible bone damage and growth inhibition.
Another manifestation of toxic effects of quinolones on connective
tissue structures are tendopathies. For this effect, it is not quite
clear whether juveniles are more susceptible than adults because
clinical and experimental data seem to point in different
directions. Pathogenesis of both effects can probably be explained
by the magnesium-chelating properties of these drugs, leading to a
deficit of functionally available magnesium and, subsequently, to
radical formation and irreversible connective tissue lesions.
However, unequivocal explanations for the phase-dependency of the
effects are lacking.

Publication Types:
Review
Review, Tutorial



21977 From: Dan <udukeshere@h...>
Date: Sat Feb 19, 2005 3:08am
Subject: Nuro Appointment


I had a nuro appointment on Thursday and I was surprised that he
agreed that the numb spots on my skin around about every joint
could have very well been caused by the Cipro but he said there is
no test he can do that will confirm that it is from the Cipro. All
he can do is test for and rule out any other possible cause. He said
assuming we can find nothing else that appear to be causing it, it's
probably the Cipro and if that is the case there is nothing he can
do. The only thing that will help is time.

Although I kind of knew that it was nice to have a doctor say it
could have been the Cipro. I'll just be happy if we can rule out any
other possible causes.

I'm going for an MRI of my neck and possibly blood work (might not
need this as I had a ton wile in the hospital 2 months ago) If
that's negative then he wants to do an EMG.

Wish me luck

Dan


21978 From: Gary Heiland <Gary@m...>
Date: Sat Feb 19, 2005 2:09pm
Subject: Levaquin


I was recently in for a quick outpatient surgery appointment for a
urology issue and prior to surgery they gave me Levaquin in an IV.
Only after about a minute or two on the IV, I began feeling strange.
My upper chest and face became hot and red and then I began to feel
pressure in my chest and lungs. Quickly it became much worse putting
me in to severe panic and discomfort. My lungs, throat, nose because
very swollen and i began having difficulty breathing. I was coughing
uncontrollably. The nurse turned off the Levaquin drip and in about
5 minutes I was feeling better. I took a few hours to fully wear
off. It was a very horrible experience!

If I am allergic to this particular med, what else should I watch
out for? Anyone have any thoughts or experience with this?


21979 From: emibustillo <emibustillo@y...>
Date: Sat Feb 19, 2005 2:31pm
Subject: back pain, stomach upset. help


please help me .
I took cipro for 3days , and then I had restlessness and all the
other simptoms that you all discribe. after a week they where gone,
but then I started to develop a back pain that it would not go away,
and now I have pain in my abdomen area as well as feeling of upset
stomach and reflux. I feel dizzy as well during the day. has some
one experience some thing like that . please help. the doctor thougt
it was the kidney but not they dont think is that now they think it
may be some other stomach thing. but everything started when I took
cipro. can some one help meeeeeee

Emi


21986 From: cellolang <cellolang@y...>
Date: Sun Feb 20, 2005 0:06am
Subject: Re: How have you convinced your GP?


Yes, please! At first I thought I had convinced a rheumatologist that
my sudden joint and shooting muscle pains were related to my having
taken Levaquin for 3-4 days, but now he says that isn't the reason. I
need a referral for a doctor in the tristate (NY, NJ, PA) area who
understands these reactions and is willing to help.

TIA,

Jennifer
21987 From: cellolang <cellolang@y...>
Date: Sun Feb 20, 2005 1:03am
Subject: Re: Nuro Appointment


I hope all went well. My doctor agreed with me initially, but now that
I'm still having symptoms, he says the Levaquin (in my case) couldn't
be the cause. I cited articles, etc., but I think he's of the school
that patients don't/shouldn't know anything.

Don't give up!

22016 From: buddy9144 <buddy9144@y...>
Date: Mon Feb 21, 2005 11:07pm
Subject: New to site


Hello all,

I'm new to this site and hoping to get some advise. Over the last
year I was treated for Lyme disease. During the treatment I
received 3 months of Cipro, followed by 1 month of Tequin (a total
of 4 months from Feb-June 04. I noticed that I had some unusual
nerve pains in my arms, night tremors, and I got very fatigued after
excercising. I also had neck and hip pains. I spoke to my doctor
about it but we both thought it was the Lyme disease. A month after
taking my last Tequin I deveoped tendonitis. I was playing the
piano a lot and assumed I had gotten tendonitis from that. Someone
suggested putting ice on my forearms to help the pain. Labour Day
weekend, I iced my arms for about 20-25min every hour for 1/2 of a
day hoping to help the tendonitis. The next night, I woke up with
severe nerve pain in my arms. I figured I must had done some kind
of nerve damage with the ice on my arms but every doctor I went to
said the nerve pain couldn't be from the ice. I had a UTI right
before Labour day and given 1 wk of Cipro followed by 5 days of
Levaquin. I had 3 more rounds of Levaquin between September and
January 1st of this year for a UTI that kept coming back. During
this time I went to every kind Dr. to figure out what was causing my
severe nerve pain. On January 1st I took my last pill of Levaquin.
It burnt my whole body. I felt like I was burnt from the inside
out. I had a rash that lasted over 3 wks. That's when I did a
search and found out it was the quinolones causing all my problems.
I'm now 7 weeks out and feeling a little better though the nerve
pains in my arms are still bad. I have eye twitches, along with
muscle and joint pains too. I'm taking vitamins along with B12
shots, and Elavil for the pain. It seems to help some. I just
wanted to know if anybody else had taken quinolones for a long time
and gotten better from the ADRs especially from the nerve pain.
Also if anyone could recommend a good doctor in the New York City
area, I would really appreciate it.



22022 From: tsip19 <tsip19@y...>
Date: Tue Feb 22, 2005 5:30pm
Subject: new here/how long/ doctor in dallas?


This forum has given me hope! Thanks everyone.

I took 3 rounds of Levaquin (500mg) for an infection from October
through January. My symptoms started showing up in December -- sore
feet, aching calves and thighs, and painful wrist (feels like
tendinitis).

Since then, my infectious doctor thinks I have a TB-like bacteria,
though all blood tests and scans have come back negative. I
originally did have an infection. He put me on TB drugs in mid
January.

My symptoms now include sore feet, aching in my calves, thighs, and
back, sore joints in my ankles, knees, and shoulders, plus very
tight/painful ACLs, and I'm exhausted all the time. It seems the
pains move around and some days are better than others, but none are
good. Still, it is painful to walk, though I am still going to work.
I try to walk a little each night, but it hurts. (I ran 5 miles a
day, 6 days a week before all this, so I was in good shape. Now I
struggle to make it around the block with my wife.

How long will this take to get better? I've started taking some
supplements that some here have had success with and cut out the non-
organic foods. Uggh.

Also, has anyone in Dallas had luck with a doctor that will listen.
I've talked to several who said this could not be the levaquin.
Perhaps its not, but I'm not so sure.

After calling and complaining about my aches and pains, my infectious
disease doctor prescribed a week of prednisone, but after reading
everything on here, I held off taking it. Better to remain stable
than worsen the effects.

I'm returning to my Internist tomorrow to give him an update on my
stituation. I'll take some articles with me, as well, though I have
my doubts that he will listen.

Anyway... the two main questions... any ideas how long these pains
will last and what can I do to help the process? and... any doctors
in Dallas that will listen with an open mind and not immediately rule
out this possibility? (Well, I know that's 3 questions.)

Thanks to all who have written on this board. This is my first time
and I've never posted on a message board before. I'm totally
frustrated and depressed by this whole process and don't know where
to turn.

Roger


22027 From: hjvander <hvandeventer@n...>
Date: Tue Feb 22, 2005 10:42pm
Subject: Anyone heard of "Wegener's" disease?


I saw a Rheumatologist yesterday who mentioned this particular
disorder as potentially fitting my symptoms (joint pain, continued
upper respiratory problems). I started having my joint pains
immediately following taking Levaquin last month. My joint pains
flared back up last week w/o any known reason. Anyway, I guess that
the joint pains I'm having coupled with my continued sinus
(congestion, ear pain, post nasal drip) problems indicate the
possibility of this rare disease (which involves both vasculitis and
auto-immune issues) and needs to be ruled out. Anyone have any
info / experience with this?


22035 From: kapt14 <kapt14@m...>
Date: Wed Feb 23, 2005 4:06pm
Subject: A little worried


I started taking Cipro for about 1 week 1/2, for a Prostate
flare up ... unfortunately it looks like I may have come upon
this site too late. I wasn't told about the side effects by my
doctor. My constant, fatigue, dizziness, and nausea have
subsided after I stopped but I now have an extreme pain in
the patella tendons in my knee, & feels like arthritis
in my hands & feet.

I'm an athletic, active, 28 yr old, and this would affect my
lifestyle greatly .
Has anyone experienced 100% recovery? What did you do? Any
excersises, Physical Therapy, Specialist Doctors that helped?

Your advice is appreciated, wish you all the best in recovery.




22038 From: Vandeventer, Heath <hvandeventer@n...>
Date: Wed Feb 23, 2005 6:23pm
Subject: RE: Re: Anyone heard of "Wegener's" disease?


I appreciate your input! I tend to agree with you, especially since
many of my symptoms (especially joint pain) started right after starting
the Levaquin. However, it was eerie reading about this particular
disease, especially since all of this (for me) started with upper
respiratory problems (which is why I was placed on the Levaquin to begin
with) which have also yet to resolve. It does seem like many of us tend
to suffer from vasculitis-like symptoms after being exposed to these
drugs. I'll wait to see what my blood tests show and see what the good
dr says.


________________________________

22039 From: buddy9144 <buddy9144@y...>
Date: Wed Feb 23, 2005 7:44pm
Subject: nerve pain


I have severe neuropathic pain from taking quinolones. Has anyone
had success with a medication for their nerve pain? Neurontin
didn't help, Elavil helped some but not enough. My neurologist said
Zanaflex might help but I thought I might get some feedback before
trying anything else. Any thought would be appreciated.


22043 From: ruthlilycat <ruthlilycat@y...>
Date: Thu Feb 24, 2005 9:51am
Subject: Heart palpitations?


My husband is having heart palpitations from Cipro. He is under 30,
anyone else having these reactions? We're phoning the dr. in the
morning. He's been on Cipro for 6 days for prostatitis.

He also says he's feeling "dumb", ie, he's having memory issues.


22044 From: Betty Crawley <beejay31@c...>
Date: Thu Feb 24, 2005 1:21pm
Subject: Re: Heart palpitations?


To the person who wrote her husband was having heart palpitations after being on Cipro -- I am quiteinterested in hearing what his Physician has to say. I am painfully aware of the fact Cipro can caus cardiac distress although Bayer advised me that the risk are extremely slim this can happen. But, it can and does happen! Does your husband's Physician agree? Hopefully, he will stop the Cipro immediately

Betty

22046 From: <tailsclown@a...>
Date: Thu Feb 24, 2005 10:03am
Subject: New Drug


I was put on a drug called Cymbalta for peripheral neuropathy and also for
depression.. It's supposedly a brand new drug. Has anyone heard anything about
this drug?
I am at the mercy of doctors who think all my symptoms are from anxiety and
depression. I wasn't anxious or depressed before Dec 7th, 04 when I took
Avelox. I ended up at Yale New Haven 2 weeks ago for severe pain. My entire body
felt like it was on fire. They gave me pain and anxiety pills. I've had every
test known to man, I guess and they all think I'm crazy. I went to the ER at
UConn hospital and they called psych down to interview me! Again, they think
the I've had some sort of break down that's causing all these symptoms. Where
do you go when everyone just dismisses you as crazy! Now I AM anxious
because I'm so miserable. I can't work. Is there anyone in the Ct, RI, Mass, NY
area who knows a doc that I can see that would be helpful and listen to me?
Sally


[Non-text portions of this message have been removed]


22047 From: jnhdzg <jnhdzg@y...>
Date: Fri Feb 25, 2005 0:42am
Subject: need dr in pa,ny,oh new 2 site


hi
my story is alot like these except it's been since aug of 2002 &
still have alot of symptoms. really just figured out that it was the
levaquin i was given. had a good idea that's what happened back then
and never went back to that dr after going to his office barely able
to walk or think. felt worse than before my hospital stay for uti
and ruptured ovarian cyst.anyway i had to concentrate all enegy into
getting better at least enough to earn a living. it has been rough
to say the least. great to finally get some support. going to ent
now. going thru all tests,mri, allergies and some balance stuff. get
results nxt wk. am in process of getting all my records- quite a job
since iv'e gone to quite a few. just want to put more of the pieces
together. right now taking mag. b's & c. i think that most days iv'e
felt better but can feel specific bad spots. thinking of trying
trigger point therapy. any help greatly appriciated.


22052 From: busiscoming2 <chadshouse@b...>
Date: Fri Feb 25, 2005 10:31am
Subject: immunisation booster after cipro reaction


Hi
My 14 year old son was prescribed Ciprofloxacin on Jan 14th 2005 for
a UTI, he was perfectly healthy before taking this. He reacted badly
from the first dose, being a weekend I called our NHS direct service,
where I was basically advised this was not an adverse reaction
(although my gut reation said differently) and that one should not
stop & start antibiotics. So he kept taking the tablets - 250mg
twice a day. I took him to the GP on Monday, who told me his
symptoms: head pressure to the top of his head and drowsiness was not
an ADR and for him to take the tablet due and then no more. (He took
a total of 6). The pressure and drowsiness are worse in the morning
but it diminishes within a couple of hours. I found this site quite
early on and have been a regular visitor. Thank you all for your
support it has helped a lot over the last month. Of course my Dr
refuses to entertain the idea it may be an adr. We have seen a
peadiatric consultant who is of the same opinion. Although the
pressure & drowsiness are there constantly!! They think it is a
tension (stress headache)!! My problem now is that my son is due
to have his Tetanus/Diptheria/Polio booster vaccination in a couple
of weeks, does anyone know if this will be safe for him. He was fine
with all his childhood/baby jabs. Many Many thanks.


22054 From: Kathleen Connolly <kathleen_cnnlly@y...>
Date: Fri Feb 25, 2005 2:42pm
Subject: Re: New Drug


Sally

First let me say that you are NOT CRAZY!!! I have had the same problem with peripheral neuropathy and severe nerve and muscle pain in my arms, hands and legs since November 15th when my previous doctor put me on tequin after I had a severe reaction to bactrim and levaquin..

My new PCP and neurologist at Mass General have not been willing to admit that my symptoms are definitely a result of an ADR, but they have ruled out most other causes and are saying that it is a "mystery". They say we will not be able to determine what caused it, but that it could have been caused by an ADR.

I am on Neurontin for the nerve pain and am taking 1200mgs a day. It is helping me so far. I also am on zanax for anxiety and to calm my nerves down. I find the combination of these two drugs to be very effective for the pain. I also have a prescription for davocet that I use if the pain gets really bad.

My recommendation is to stay away from the doctors if you can. I find it frustrating and upsetting because they won't validate my problems as being caused by ADR. I have tried to concentrate on getting better and giving myself the time to heal. I am also unable to work because I can't drive and I am on the road every day when I work.

I had a really bad two months from November 15th when this happened. I have slowly started to feel better and am able to do more without suffering painful repercussions the next day. I am starting physical and occupational therapy next week and I have started to walk on my treadmill every day very slowly.

My nerve damage is not generalized, but "spotty" but my hands and arms are the main problem. I can't grip or do anything strenuous with my hands. I can type with the three end fingers on either hand, but can't use the thumb or forefinger on either hand for much.

I have had MRI's, CAT scans, EMG testing and all it has done is to confirm the diagnosis that I myself concluded of peripheral neuropathy.

The best thing to do is to wait this out and give yourself time to heal. The nerves heal very slowly and my PCP and neurologist have said that I may be left with residual damage, but only time will tell how much.

Hang in there and you will heal.

God Bless
Kathy



22057 From: Sally <tailsclown@a...>
Date: Sat Feb 26, 2005 5:44pm
Subject: Question


I had not heard that anyone here has this symptom that I am having.
I feel as though my insides are burning. Sometimes this burn "washes"
over my body, lasts a few minutes to a few hours... lessens and
increases... But is very painful. Has anyone else suffered this
particular symptom? It seems worse in any area of my body that is
lowest. For example, if I'm sitting, it will burn in my butt or
genital area. Or like this morning, when I woke up, my right arm was
on fire and my right side because I had slept on that side. If I
stand my feet will burn. Can anyone shed any light on this?
Sally




22064 From: medication_problem <medication_problem@y...>
Date: Sat Feb 26, 2005 11:36pm
Subject: Re: back pain, stomach upset. help


Hi All,

I took just one tablet of levaquin around four weeks ago and since
the past two to three weeks I have been getting pain in the area
where the lower abdomen meets the thigh on both legs,some times its
very bad and I feel a lot of pain while walking but sometimes its
not there.Please let me know if anybody had something like this.

regards,
jim

22067 From: Mark & Kim <starrenz1963@y...>
Date: Sun Feb 27, 2005 5:47pm
Subject: Lavaquin Reactions.


I had a really weird reaction to lavaquin. I had the shakes all over
my body and especially my shoulders for over a 2 years. I had a
problems focusing and shakiness with my sight. If I worked my
muscles to hard they would strain and hurt. It's has been three
years and I am finally back to normal. I don't care with anyone says
there is something wrong with that drug.

22087 From: Joy Scurr <joyscurr@h...>
Date: Tue Mar 1, 2005 0:03am
Subject: Re: Re: Worried about this symptom


Sally,
I have the same burning sensation. it started in lower abdomen, pelvic area and then up to chest. I never had a history of heartburn, and had been healthy all my life (I am 45).I have been to several doctors. The doctors in the past 7 months have said I could have gastritis, h. pylori, depression... the list goes on and on.
Last week I went to an OBGYN and they found a complex ovarian mass cyst.I am sheduled for surgery next week. I have been burning for 7 months after taking Avlox. I have been reading all the posts on this site and have been planning to tell my story. Sally, Have you been to see an OBGYN? Joy



22100 From: <tailsclown@a...>
Date: Tue Mar 1, 2005 10:49am
Subject: To Joy


Joy,
My doc said that the burning Is the peripheral neuropathy, though... it's
not really "peripheral" when it's also located in the chest, stomach, lower
abdomen. I have a obgyn visit this month but I'm closely monitored cause I had
surgery on my cervix last Sept. (atypical pap) I saw my doc yesterday and I
gave him all the info on quinolones and was really sympathic and said he'd read
all the material. He knew immediately about the tendon rupture side effect
and his comment was that I was the first person he's met that had the
neuropathy side effects. So... He's sending me to physical therapy and I feel that
he's on my side. Hopefully he'll be an allie in my struggle.
I found out that I had Cipro in 2002!!!!!! Didn't know this! And all my
stomach troubles start